TABLE 1.

Overview on studies assessing the burden of ITP cited in the article.

Reference	Name	Patient population	Characteristics of the study
Klaasen et al.8	Kids’ ITP Tools (KIT)	Children/adolescents 2–17years	- ITP disease specific - Three questionnaires (child 7–17 years; parents on behalf of a child aged 2–17—parent proxy; parents—parent impact)
Mathias et al.9	ITP-Patient Assessment Questionnaire (ITP-PAQ)	Adults ≥18 years	- ITP disease specific - 44 items, six domains
Cooper et al.10	ITP Life Quality Index (ILQI)	Adults ≥18 years	- ITP disease specific - 10 items
Ware et al.12	Medical Outcome Study 36-Item Short Form Survey (SF-36)	Patients ≤14 years	- Generic—to be used in any disease - 36 items, eight domains
Varni et al.13	Pediatric Quality of Life Multidimensional Fatigue Scale (PedsQL MFS)	Children/adolescents 2–18years	- Generic—to be used in paediatric cancer - Three domains - Children self-report (5–18 years); parent proxy report (2–18 years)
Grace et al.14	Hockenberry Fatigue Scale; Fatigue Scale-Child, FS-C; Fatigue Scale Adolescent, FS-A	Children/adolescents 7–17	- Generic - 10 items for FS-C (7–12 years) - 13 items for FS-A (13–17 years)
Fisk et al.15	Fatigue Impact Scale (FIS)	n/a	- Generic - 40 items, three domains
Smets et al.16	Multidimensional Fatigue Inventory (MFI)	n/a	- Generic - 20 items, five domains