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. 2025 Feb 27;5:1520013. doi: 10.3389/frhs.2025.1520013

Table 3.

Overview of the quantitative instruments and survey time points.

Concept Instruments Survey time point
Item nrs T0 T1 T2
  • (1)

    First questions

 Main treatment department (rheumatology or psychiatry), adolescent or adult department, transition process and participation in the CAT transition programmes 2 ✓ ✓ ✓
  • (2)

    Participant's background

 Sociodemographic background (e.g., age, sex, education, socioeconomic status), medical history 11 ✓
  • (3)

    Transition competencea

 Transition Competence Scale (TCS) (59) 10 (✓) (✓) (✓)
  • (4)

    Satisfaction, utilization and needs assessment

 YHC-SUN-SF (60) 7 ✓ ✓ ✓
  • (5)

    Functioning and social participation (ICF)

 WHODAS 2.0 (61) 12 ✓ ✓ ✓
  • (6)

    Well-being and health-related quality of life

 World Health Organization Well-Being Index (WHO-5) (62) 5 ✓ ✓ ✓
Self-rated (mental and physical) health (single item SF-12/-36) 2 ✓ ✓ ✓
EuroHis QOL 8 (quality of life) 8 ✓ ✓ ✓
Pain (WHOQOL BREF, single item) 1 ✓ ✓ ✓
  • (7)

    Psychopathology

 Depression (PHQ-9) (63, 64) 9 ✓ ✓ ✓
Anxiety (GAD-7) (65) 7 ✓ ✓ ✓
Perception/psychosis (CAPE-9) (66) 9 ✓ ✓ ✓
  • (8)

    Stigma

 SSCI-8 (67) 8 ✓ ✓ ✓
  • (9)

    Transition specific life events (TLE)

 Objective and subjective measure of TLE 7 ✓ ✓ ✓
  • (10)

    Substance use

 Single items from the AUDIT (68) & DUDIT (69) 4 ✓ ✓ ✓
  • (11)

    Medical compliance

 Two single items querying status quo and fifteen items of the MedUseQ (70) 15 ✓ ✓ ✓
a

Only participants who have not yet transferred from the CAHS to AHS will be asked to fill out the TCS.