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. Author manuscript; available in PMC: 2025 Mar 14.
Published in final edited form as: J Fam Nurs. 2024 Jul 27;30(3):267–277. doi: 10.1177/10748407241261123

Table 2.

Themes, Subthemes, and Codes.

Theme Subthemes Codes

Reluctant unless motivated • Reluctance to talk about potentially undesirable consequences (barrier)
• Desire for youth to be prepared (facilitator)
• Interest or opinion in topic at hand (facilitator)
• Parent reluctant to tell youth bad things about SCT
• Parent does not want to cause youth negative feelings
• Preparing youth for the SCT experience
• Recognizing youth are physically going through SCT
• Discussing topic of interest to youth
• Youth expressing opinion on topic important to them
• Parent giving child their opinion about SCT
Uncertain but capable • Uncertainty in engagement abilities (barrier)
• Knowledge of stem cell transplant (facilitator)
• Attending to youth’s communication needs (facilitator)
• Parent feels unable to explain SCT to youth
• Parent not confident in youth abilities
• Not recognizing what youth Involvement/role means
• Youth demonstrates understanding of SCT
• Parent understands SCT
• Parent identifies youth abilities
• Parent recognizes youth preference
• Having a positive environment
Limited unless supported • Limited dialogue due to emotions or conflict (barrier)
• Being open and honest with each other (facilitator)
• Appreciating youth role and voice (facilitator)
• Youth not wanting to talk about SCT
• Parent-youth differences
• Parent open to talking about hard topics
• Parent being honest with youth
• Youth finds comfort talking with parent
• Parent asking for youth input
• Parent giving youth options
• Parent seeking youth’s assent

SCT = stem cell transplant.