Table 2.
Themes, Subthemes, and Codes.
| Theme | Subthemes | Codes |
|---|---|---|
|
| ||
| Reluctant unless motivated | • Reluctance to talk about potentially undesirable consequences (barrier) • Desire for youth to be prepared (facilitator) • Interest or opinion in topic at hand (facilitator) |
• Parent reluctant to tell youth bad things about SCT • Parent does not want to cause youth negative feelings • Preparing youth for the SCT experience • Recognizing youth are physically going through SCT • Discussing topic of interest to youth • Youth expressing opinion on topic important to them • Parent giving child their opinion about SCT |
| Uncertain but capable | • Uncertainty in engagement abilities (barrier) • Knowledge of stem cell transplant (facilitator) • Attending to youth’s communication needs (facilitator) |
• Parent feels unable to explain SCT to youth • Parent not confident in youth abilities • Not recognizing what youth Involvement/role means • Youth demonstrates understanding of SCT • Parent understands SCT • Parent identifies youth abilities • Parent recognizes youth preference • Having a positive environment |
| Limited unless supported | • Limited dialogue due to emotions or conflict (barrier) • Being open and honest with each other (facilitator) • Appreciating youth role and voice (facilitator) |
• Youth not wanting to talk about SCT • Parent-youth differences • Parent open to talking about hard topics • Parent being honest with youth • Youth finds comfort talking with parent • Parent asking for youth input • Parent giving youth options • Parent seeking youth’s assent |
SCT = stem cell transplant.