Table 2.
Topic labels, key terms, and descriptions from each topic, along with the topic counts and frequencya (N=3028).
| Topic, topic name, and description | Topic count, n (%) | Key terms | ||||
| Theme 1: expressing feelings | ||||||
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T1 | Expressing feelings: discussing feelings about circumstances, including sadness, guilt, helplessness, frustration, stress, and anger. | 2178 (71.93) | “just, like, feel, know, things, really, time, feel like, want, does, life, think, make, say, day, hard, people feeling” | ||
| Theme 2: seeking advice and support | ||||||
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T4 | Seeking advice and support: asking for advice in dealing with circumstances, often in the form of questions. | 1982 (65.46) | “help, advice, need, does, house, needs, getting, need help, refuses, family, lives, want, health, trying, live, suggestions, looking, support” | ||
| Theme 3: health and medical concerns | ||||||
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T2 | Duration of medical care: discussing the care recipient’s health or behavioral issues, or the need for long-term medical care. | 1954 (64.53) | “did, said, hospital, told, days, got, doctor, ago, went, day, today, weeks, week, going, months, called, hospice, just, years, took” | ||
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T9 | Dementia: seeking or providing information about dementia | 1605 (53.01) | “dementia, family, people, loved, diagnosed, people dementia, vascular dementia, vascular, caregivers, person, diagnosed dementia” | ||
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T7 | Alzheimer: seeking or providing information about Alzheimer disease | 1584 (52.31) | “alzheimer, early, onset, early onset, disease, diagnosed, onset alzheimer, early onset alzheimer, diagnosis, years, stage, experience, memory” | ||
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T3 | Aging and declining health of parents: discussing the aging and the declining health status of parents | 1572 (51.92) | “parents, aging, parent, health, life, years, live, aging parents, care, elderly, old, support, time, don, kids, issues, love, age, mental, situation” | ||
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T8 | Sleep and incontinence: discussing sleep problems in general, or specifically incontinence. | 1536 (50.73) | “bed, sleep, night, day, time, hours, door, room, toilet, does, bathroom, sleeping, gets, goes, sleeps, walk, wake, fall, diaper, incontinence” | ||
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T12 | Medical appointments: discussing different types of medical appointments and experiences with such appointments | 1082 (35.73) | “appointment, make, doctor, make appointment, bad, make doctor, said make appointment, memory gotten really, just yelled, make” | ||
| Theme 4: care facilities and services | ||||||
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T6 | Memory care facility: discussing memory care facilities for the care recipient, often seeking recommendations for such facilities, or describing their experiences with facilities | 1396 (46.10) | “care, memory care, memory, facility, care facility, memory care facility, facilities, needs, need, area, elder, home care, residents, unit” | ||
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T11 | Nursing home: discussing nursing home for the care recipient, often seeking recommendations for such facilities, or describing their experiences with facilities | 1221 (40.32) | “home, nursing, nursing home, care, hospital, home care, medicaid, homes, rehab, nursing homes, home health, work, health, pay” | ||
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T10 | Assisted-living facility: discussing assisted-living facilities, often seeking recommendations for such facilities, or describing their experiences with facilities. | 1160 (38.31) | “living, assisted living, assisted, facility, living facility, assisted living facility, independent living” | ||
| Theme 5: care recipients and family relationships | ||||||
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T14 | Parents (mom): mentioning issues in dealing with mom | 1571 (51.88) | “mom, sister, caregiver, dog, live, brother, care mom, care, mom, job, dad, mom does, best, mom diagnosed, taking, getting, don, moms, work, hours” | ||
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T16 | Parents (mother): mentioning issues in dealing with mother | 1534 (50.66) | “mother, sister, father, years, time, year, law, away, lives, old, year old, died, siblings, cat, family, passed, brother, care mother, come, mother law” | ||
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T15 | Parents (dad): mentioning issues in dealing with dad | 1525 (50.36) | “dad, mum, brother, home, years, just, want, does, months, help dad, ago, mom dad, dad does, live, care dad, angry, old, father, point, away” | ||
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T18 | Grandparents: mentioning grandparents in general, or specific grandparents, often talking about their health problems. | 1178 (38.90) | “grandma, grandpa, grandparents, aunt, grandmother, family, uncle, want, know, care grandma, does, live, home, help grandma” | ||
| Theme 6: financial, legal, and insurance issues | ||||||
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T5 | Finances: discussing finance-related matters, such as bills or handling of the ward’s assets. Many also mention power of attorney. | 1348 (44.52) | “money, account, bank, poa, card, pay, house, attorney, credit, financial, power, finances, power attorney, trust” | ||
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T19 | Long-term care insurance: discussing long-term care insurance, often asking for recommendations for long-term care insurance providers. | 1182 (39.04) | “term, long term, long-term care, term care, long, insurance, care, term care insurance, care insurance, insurance, policy” | ||
| Theme 7: technological issues | ||||||
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T13 | Cell phone and devices: discussing phones and related devices, descriptions of difficulties encountered by the care recipient in using such devices, and requests for recommendations of devices. | 1605 (53.01) | “phone, use, hearing, alert, elderly, looking, recommendations, device, app, cell, aids, hearing aids, watch, cell phone, devices” | ||
aFrequency refers to the percentage of posts with nonzero weights for that topic.