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. 2025 Feb 28;27:e54847. doi: 10.2196/54847

Table 2.

Topic labels, key terms, and descriptions from each topic, along with the topic counts and frequencya (N=3028).

Topic, topic name, and description Topic count, n (%) Key terms
Theme 1: expressing feelings

T1 Expressing feelings: discussing feelings about circumstances, including sadness, guilt, helplessness, frustration, stress, and anger. 2178 (71.93) “just, like, feel, know, things, really, time, feel like, want, does, life, think, make, say, day, hard, people feeling”
Theme 2: seeking advice and support

T4 Seeking advice and support: asking for advice in dealing with circumstances, often in the form of questions. 1982 (65.46) “help, advice, need, does, house, needs, getting, need help, refuses, family, lives, want, health, trying, live, suggestions, looking, support”
Theme 3: health and medical concerns

T2 Duration of medical care: discussing the care recipient’s health or behavioral issues, or the need for long-term medical care. 1954 (64.53) “did, said, hospital, told, days, got, doctor, ago, went, day, today, weeks, week, going, months, called, hospice, just, years, took”

T9 Dementia: seeking or providing information about dementia 1605 (53.01) “dementia, family, people, loved, diagnosed, people dementia, vascular dementia, vascular, caregivers, person, diagnosed dementia”

T7 Alzheimer: seeking or providing information about Alzheimer disease 1584 (52.31) “alzheimer, early, onset, early onset, disease, diagnosed, onset alzheimer, early onset alzheimer, diagnosis, years, stage, experience, memory”

T3 Aging and declining health of parents: discussing the aging and the declining health status of parents 1572 (51.92) “parents, aging, parent, health, life, years, live, aging parents, care, elderly, old, support, time, don, kids, issues, love, age, mental, situation”

T8 Sleep and incontinence: discussing sleep problems in general, or specifically incontinence. 1536 (50.73) “bed, sleep, night, day, time, hours, door, room, toilet, does, bathroom, sleeping, gets, goes, sleeps, walk, wake, fall, diaper, incontinence”

T12 Medical appointments: discussing different types of medical appointments and experiences with such appointments 1082 (35.73) “appointment, make, doctor, make appointment, bad, make doctor, said make appointment, memory gotten really, just yelled, make”
Theme 4: care facilities and services

T6 Memory care facility: discussing memory care facilities for the care recipient, often seeking recommendations for such facilities, or describing their experiences with facilities 1396 (46.10) “care, memory care, memory, facility, care facility, memory care facility, facilities, needs, need, area, elder, home care, residents, unit”

T11 Nursing home: discussing nursing home for the care recipient, often seeking recommendations for such facilities, or describing their experiences with facilities 1221 (40.32) “home, nursing, nursing home, care, hospital, home care, medicaid, homes, rehab, nursing homes, home health, work, health, pay”

T10 Assisted-living facility: discussing assisted-living facilities, often seeking recommendations for such facilities, or describing their experiences with facilities. 1160 (38.31) “living, assisted living, assisted, facility, living facility, assisted living facility, independent living”
Theme 5: care recipients and family relationships

T14 Parents (mom): mentioning issues in dealing with mom 1571 (51.88) “mom, sister, caregiver, dog, live, brother, care mom, care, mom, job, dad, mom does, best, mom diagnosed, taking, getting, don, moms, work, hours”

T16 Parents (mother): mentioning issues in dealing with mother 1534 (50.66) “mother, sister, father, years, time, year, law, away, lives, old, year old, died, siblings, cat, family, passed, brother, care mother, come, mother law”

T15 Parents (dad): mentioning issues in dealing with dad 1525 (50.36) “dad, mum, brother, home, years, just, want, does, months, help dad, ago, mom dad, dad does, live, care dad, angry, old, father, point, away”

T18 Grandparents: mentioning grandparents in general, or specific grandparents, often talking about their health problems. 1178 (38.90) “grandma, grandpa, grandparents, aunt, grandmother, family, uncle, want, know, care grandma, does, live, home, help grandma”
Theme 6: financial, legal, and insurance issues

T5 Finances: discussing finance-related matters, such as bills or handling of the ward’s assets. Many also mention power of attorney. 1348 (44.52) “money, account, bank, poa, card, pay, house, attorney, credit, financial, power, finances, power attorney, trust”

T19 Long-term care insurance: discussing long-term care insurance, often asking for recommendations for long-term care insurance providers. 1182 (39.04) “term, long term, long-term care, term care, long, insurance, care, term care insurance, care insurance, insurance, policy”
Theme 7: technological issues

T13 Cell phone and devices: discussing phones and related devices, descriptions of difficulties encountered by the care recipient in using such devices, and requests for recommendations of devices. 1605 (53.01) “phone, use, hearing, alert, elderly, looking, recommendations, device, app, cell, aids, hearing aids, watch, cell phone, devices”

aFrequency refers to the percentage of posts with nonzero weights for that topic.