TABLE 3 ].
Themes and Representative Quotations
| Themes and Quotations | Family Caregiver Descriptors (Race/Sex/Age [y]/Relationship to Patient)a |
|---|---|
| Less proactive engagement with Black vs White family caregivers about religion and spirituality | |
| "No, I never really talked to them about [religion], no." | Black/male/60/spouse |
| "The chaplain was never even brought up, but I thought they normally do come in when they expect people not to make it." | Black/female/44/child |
| "Yeah, I mean, it [religion] was touched upon, you know, is there something that you would want or whatever? Do you want a chaplain? . . . That part of it was touched upon by the medical team." | White/female/56/child |
| "Yeah, I believe the doctor [told] us to keep praying. He’d tell the family, which was me and his mom, and his sister, and his dad." | White/female/64/spouse |
| Black family caregivers’ relative discomfort with discussing spirituality outside their community | |
| "I didn’t really get into any discussions about faith . . . other than that our pastor would be visiting. . . . So, he was able to come up and pray for mom while she was in the ICU. So, that was and I really did appreciate that because he drove 2 hours." | Black/female/57/child |
| "I did not [use the chaplain] only because the visitors we had would come and we would pray." | Black/male/60/spouse |
| "And I think she had a chaplain come in, you know, a couple of times kind of chatting with her, which I think helped because she was very depressed." | White/female/56/child |
| "There’s a couple of times I asked for chaplain and he came by. . . . That was good. And he came by subsequent times. . . . It was good interaction." | White/female/78/spouse |
| "It was clear from my room, from [patient’s] room, again, we had the crucifix hung up. We had, I’d taken all the Facebook messages, I wrote them on Post-its and stuck them on the wall. . . . It was absolutely acknowledged [by the team]." | White/female/57/spouse |
| Comfort in God’s plan | |
| "Yeah, it helped tremendously. It definitely kept me encouraged and I think it did for her as well. . . . Things haven’t always been the best, but they’ve always worked out according to his plan and I felt like you know in this moment or in that moment that he wasn’t going to take his hands off of my mom." | Black/female/31/child |
| "I have a God perspective on it, which allows me to go through the moments with some kind of peace, you know. Not really high emotions or, you know—try to stay focused on the situation at hand." | Black/male/60/spouse |
| "Well, I just had to trust [God]. . . . I can’t heal [my husband]. If God didn’t heal him, then that was it. . . . You know, a peace of mind. . . . We had to accept what was going on." | Black/female/75/spouse |
| "It was like, every time I turn around, there were scripture that applied. Don’t fear what they fear. Don’t be frightened. . . . It was kind of like a spiritual high. It was really kind of weird. But, [God] was there. He was bolstering me up." | White/female/61/spouse |
| "You know, there was no way that I was going to turn anything down because it was like he was being given a gift from God . . . by being offered any organ. And so that so I couldn’t refuse anything, then I’d be refusing, you know, a second chance at life that that, you know, God was like offering to him." | White/female/55/spouse |
| "[Faith was] incredibly helpful and sustained me and gave me comfort and hope that whatever happened, he’d be OK. He’d be OK. If he’s meant to stay, he’ll stay. And he’ll be OK, which he was. . . . I do hope for a miracle and I do pray for a miracle. But more than that, I pray that God’s will be done. Whatever happens is God’s. Yeah. And I know that he uses pain and illness and death as part of his plan." | White/female/57/spouse |
| Desire for easily accessible spiritual spaces in the ICU | |
| "The only thing that I see would be amazing is a meditation room like they have the cancer clinic. . . . That’s a place where they would not have to actually go so far to walk, to still be somewhere accessible." | Black/female/childa |
| "Instead of families having to go to the chapel, having a space that can be a little closer just because I do think those families are having to rely on their faith more with their family and loved ones in more critical care." | Black/female/31/child |
| "I mean, I don’t even know where the chapel is. . . . That hospital so darn big. Yeah, that [providing information on chapel location] would be actually not bad because I didn’t know." | White/female/78/spouse |
| "I walked over to the [university chapel] several times during that time. So, you know, having it [chapel] there, I mean, in the waiting area, it probably wouldn’t be a bad idea to have some like a Bible or some other, you know, form of, you know, whether it be different types of religions you can have out there in the waiting area, down there in the Interfaith Chapel. I mean, that might be helpful." | White/female/54/spouse |
| Shared desire for proactive clinician involvement in family’s religion and spirituality | |
| "Maybe offer, you know, of course, the chaplain or a place to be able to pray." | Black/female/44/child |
| "I guess they could have told me [about the hospital resources]. I don’t know. I wouldn’t have known." | Black/female/75/spouse |
| "I assumed that there was still a chaplain service. I would like to think, it might be nice, actually not thinking about it. If at some point earlier in the ICU stay, if a medical team member offered up that availability or that possibility if needed and maybe not put so much of that onus on the family member." | White/female/52/spouse |
Did not report age.