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. 2025 Apr 16;24(2):39. doi: 10.1007/s10689-025-00464-w

Table 1.

Summary of clinical recommendations for APC I1307K variant carriers

Organization Variant Classification Screening Recommendations Additional Notes
National Comprehensive Cancer Network (NCCN)a Significant risk factor for CRC in average-risk Ashkenazi Jews High-quality colonoscopy every 5 years, starting at age 40 or 10 years prior to CRC diagnosis in a first-degree relative. Applies to all carriers, regardless of ancestry, due to insufficient evidence to support ancestry-specific risk differences. Acknowledges that some individuals may be unaware of their Ashkenazi heritage.
International Society for Gastrointestinal Hereditary Tumours (InSiGHT) [25] Pathogenic with low penetrance, specifically in Ashkenazi Jewish populations Colonoscopy every 5 years, starting at age 45–50 for carriers of Ashkenazi descent. Non-Ashkenazi carriers should follow national CRC screening guidelines. Differentiates recommendations based on ancestry, with additional surveillance limited to Ashkenazi carriers.
UK Cancer Genetics Group (UKCGG) [26] Does not recommend considering or reporting the variant in NHS-funded diagnostic APC testing Additional surveillance only in the presence of a strong family history of CRC