Table 2.
Demographic characteristics.
| All respondents n = 1160 |
Unmet need for genetic counseling n = 457 |
No unmet need for genetic counseling n = 703 |
|
|---|---|---|---|
| Age |
n = 1160 n (%) |
n = 457 n (%) |
n = 703 n (%) |
| ≤45 years old | 358 (30.8) | 194 (42.5) | 164 (23.3) |
| >45 years old | 802 (69.2) | 263 (57.5) | 539 (76.7) |
| Sex |
n = 1159 n (%) |
n = 457 n (%) |
n = 702 n (%) |
| Male | 545 (47.0) | 189 (41.4) | 356 (50.7) |
| Female | 606 (52.3) | 267 (58.4) | 339 (48.3) |
| Intersex | 2 (0.2) | 0 | 2 (0.3) |
| Prefer to self-describe | 1 (0.1) | 1 (0.2) | 0 |
| Prefer not to say | 5 (0.4) | 0 | 5 (0.7) |
| Gendera |
n = 1159 n (%) |
n = 456 n (%) |
n = 703 n (%) |
| Man | 542 (46.8) | 187 (41.0) | 355 (50.5) |
| Woman | 602 (51.9) | 263 (57.7) | 339 (48.2) |
| Non-binary or agender | 8 (0.7) | 3 (0.7) | 5 (0.7) |
| Prefer to self-describe | 6 (0.5) | 3 (0.7) | 3 (0.4) |
| Prefer not to say | 1 (0.1) | 0 | 1 (0.1) |
| Transgender |
n = 1157 n (%) |
n = 456 n (%) |
n = 701 n (%) |
| Yes | 15 (1.3) | 6 (1.3) | 9 (1.3) |
| No | 1138 (98.4) | 450 (98.7) | 688 (98.1) |
| Prefer not to say | 4 (0.3) | 0 | 4 (0.6) |
| Raceb |
n = 1160 n (%) |
n = 457 n (%) |
n = 703 n (%) |
| South Asian | 56 (4.8) | 25 (5.5) | 31 (4.4) |
| Chinese | 59 (5.1) | 23 (5.0) | 36 (5.1) |
| Black | 39 (3.4) | 15 (3.3) | 24 (3.4) |
| Filipino | 27 (2.3) | 17 (3.7) | 10 (1.4) |
| Latin American | 17 (1.5) | 9 (2.0) | 8 (1.1) |
| Arab | 14 (1.2) | 9 (2.0) | 5 (0.7) |
| Southeast Asian | 8 (0.7) | 3 (0.7) | 5 (0.7) |
| West Asian | 9 (0.8) | 5 (1.1) | 4 (0.6) |
| Korean | 6 (0.5) | 3 (0.7) | 3 (0.4) |
| Japanese | 3 (0.3) | 1 (0.2) | 2 (0.3) |
| White | 864 (74.5) | 317 (69.4) | 547 (77.8) |
| Indigenous | 58 (5.0) | 30 (6.6) | 28 (4.0) |
| Province of residence |
n = 1160 n (%) |
n = 457 n (%) |
n = 703 n (%) |
| British Columbia | 162 (14.0) | 59 (12.9) | 66 (9.4) |
| Alberta | 125 (10.8) | 74 (16.2) | 88 (12.5) |
| Saskatchewan | 37 (3.2) | 12 (2.6) | 25 (3.6) |
| Manitoba | 41 (3.5) | 20 (4.4) | 21 (3.0) |
| Ontario | 447 (38.5) | 182 (39.8) | 265 (37.7) |
| Quebec | 268 (23.1) | 70 (15.3) | 198 (28.2) |
| New Brunswick | 21 (1.8) | 10 (2.2) | 11 (1.6) |
| Nova Scotia | 33 (2.8) | 16 (3.5) | 17 (2.4) |
| Newfoundland & Labrador | 18 (1.6) | 8 (1.8) | 10 (1.4) |
| Prince Edward Islandd | 4 (0.3) | 4 (0.9) | 0 |
| Territories (Yukon, NWT, Nunavut) | 4 (0.3) | 2 (0.4) | 2 (0.3) |
| Income (CAD) |
n = 1131 n (%) |
n = 448 n (%) |
n = 683 n (%) |
| Under 20,000 | 88 (7.8) | 41 (9.2) | 47 (6.9) |
| 20,000–39,999 | 145 (12.8) | 59 (13.2) | 86 (12.6) |
| 40,000–59,999 | 188 (16.6) | 65 (14.5) | 123 (18.0) |
| 60,000–79,999 | 150 (13.3) | 59 (13.2) | 91 (13.3) |
| 80,000–99,999 | 194 (17.2) | 80 (17.9) | 114 (16.7) |
| 100,000–119,999 | 122 (10.8) | 50 (11.2) | 72 (10.5) |
| 120,000–139,999 | 84 (7.4) | 34 (7.6) | 50 (7.3) |
| 140,000–159,999 | 60 (5.3) | 24 (5.4) | 36 (5.3) |
| 160,000–179,999 | 29 (2.6) | 11 (2.5) | 18 (2.8) |
| 180,000–199,999 | 28 (2.5) | 9 (2.0) | 19 (2.8) |
| Over 200,000 | 43 (3.8) | 16 (3.6) | 27 (4.0) |
| Education |
n = 1098 n (%) |
n = 434 n (%) |
n = 664 n (%) |
| Grade 12 or less | 57 (5.2) | 20 (4.6) | 37 (5.6) |
| Completed high school | 210 (19.1) | 81 (18.7) | 129 (19.4) |
| College diploma | 240 (21.9) | 100 (23.0) | 140 (21.1) |
| Apprenticeship or other trades certificate | 97 (8.8) | 37 (8.5) | 60 (9.0) |
| Associates degree | 32 (2.9) | 9 (2.1) | 23 (3.5) |
| Bachelor’s degree | 316 (28.8) | 129 (29.7) | 187 (28.2) |
| Master’s degree | 103 (9.4) | 187 (28.2) | 64 (9.6) |
| Professional degree | 28 (2.6) | 14 (3.2) | 14 (2.1) |
| Doctorate degree | 15 (1.4) | 5 (1.2) | 10 (1.5) |
| Health Status |
n = 1156 n (%) |
n = 455 n (%) |
n = 701 n (%) |
| Excellent | 99 (8.6) | 30 (6.6) | 69 (9.8) |
| Very good | 412 (35.6) | 129 (28.4) | 283 (40.4) |
| Good | 429 (37.1) | 177 (38.9) | 252 (35.9) |
| Fair | 173 (15.0) | 93 (20.4) | 80 (11.4) |
| Poor | 43 (3.7) | 26 (5.7) | 17 (2.4) |
| Mental Health Statusc |
n = 1159 n (%) |
n = 456 n (%) |
n = 703 n (%) |
| Self-diagnosed with mental health concerns | 154 (13.3) | 91 (20.0) | 63 (9.0) |
| Formally diagnosed with mental illness | 202 (17.4) | 127 (27.9) | 75 (10.7) |
| No mental health concerns | 718 (61.9) | 200 (43.9) | 518 (73.7) |
| I don’t know | 85 (7.3) | 39 (8.3) | 47 (6.7) |
| Capability ICECAP-A | n = 1160 | n = 457 | n = 703 |
| Q1 (0–0.691) | 295 (25.4) | 174 (38.1) | 121 (17.2) |
| Q2 (0.692–0.849) | 350 (30.2) | 149 (32.6) | 201 (28.6) |
| Q3 (0.850–0.942) | 255 (22.0) | 72 (15.7) | 183 (26.0) |
| Q4 (0.943–1) | 260 (22.4) | 62 (13.6) | 198 (28.2) |
| Personal Utility PrU | n = 1160 | n = 457 | n = 703 |
| Low (14–41) | 236 (20.3) | 29 (6.3) | 207 (29.4) |
| Moderate (41–69) | 573 (49.4) | 207 (45.3) | 366 (52.1) |
| High (70–98) | 351 (30.3) | 221 (48.4) | 130 (18.5) |
| Healthcare distrust RHCSDS | n = 1160 | n = 457 | n = 703 |
| Mean (SD) | 22.6 (6.0) | 23.4 (5.0) | 22.1 (6.0) |
The n varies by characteristic due to missing responses, the n for each variable is reported.
a“Prefer to self-describe” and “prefer not to say” responses were excluded from regression analysis. The “prefer to self-describe” responses did not yield usable data.
bRace was collapsed into two categories for the regression analysis (White and minoritized racial groups).
c“I don’t know” responses were excluded from the regression analysis. The percentages may not add up to exactly 100% due to rounding.
dAll respondents from PEI had unmet need for genetic counseling, these respondents were excluded from analysis. We also analyzed the province of residence by combining all maritime provinces (New Brunswick, Nova Scotia, Newfoundland & Labrador, and Prince Edward Island) and combining those currently within the catchment of a regional genetics clinic (the IWK Health Centre) (New Brunswick, Nova Scotia, and Prince Edward Island) and these groupings yielded the same statistical results.