| “I don't think I could have another husband. I have honestly, the best husband I could probably have as somebody living with IPF. His love language is acts of service so that is so helpful...He probably gets really frustrated because I get so frustrated with my own body and how it's like turned on me...I feel sorry for him because he didn't sign up for this, but I have good qualities. I try to think that I make up for it in other ways.” (48, F) |
| “[My husband] takes care of appointments. He basically just takes care of everything. Keeps my oxygen going. I'm sure this isn't what he wanted to do in his retirement, but he's not resentful at all. He takes care of me. He's taken over most of the cooking. The thing that's getting us through is we both have a pretty good sense of humor and that's really helped. Because if you don't, you're going to just crawl up in a corner and turn into a raisin.” (71, F) |
| “My wife's always worried constantly. With her working and me being home alone she always worries that I'm going to fall or lose my breath and not get it back. There's a lot of worry. My daughter worries. My granddaughter worries. My grandson worries. They check on me a lot.” (70, M) |
| “When I bring home groceries, he [husband] knows to come help because making trips back and forth to the car and carrying groceries – and to carry anything with weight to it, it uses my oxygen that quicker.” (58, F) |
| “[My husband] is very involved. I'm really private and so, he likes to go with me in my appointments because he feels like I won't tell him stuff unless he goes and hears it himself...He likes to know what's going on. He doesn't like to read anything about IPF because he thinks that it's all too depressing.” (72, F) |
| “My husband's way of coping with that was – we came home, and he started booking trips. I'm like,"I know what you're doing."He's going to take us to all the bucket list places before I die in three years, which is what Dr. Google says.” (71, F) |