Table 5.
Indicators of agreement and results of the Delphi online survey.
Domain | PRO measure | Round 1 |
Round 1 decision | ||
---|---|---|---|---|---|
R | C | E | |||
Symptom Burden | FACT (BMT) | ? | ? | ✓ | Exclude |
MDSAI-CAR | ? | ? | ? | Exclude | |
QoL-BMT | ? | ? | ?? | Exclude | |
SBQ | ✓ | ✓ | ✓ | Include | |
Impacts of Disease and Treatment | FACT (BMT) | ? | ✓ | ✓ | Round 2a |
MY-POS | ?? | ? | ✓ | Exclude | |
QoL-BMT | ✓ | ✓ | ? | Round 2a | |
QLACS | ✓ | ✓ | ✓ | Include | |
SCNS-SF34 | ? | ? | ? | Exclude |
R, relevance; C, comprehensiveness; E, Ease of understanding; ✓, agreement (>70% responded “yes”; ?, some doubt (50%–70% responded “yes”); ??, substantial doubt (<50% responded “yes”); FACT(BMT), Functional Assessment of Cancer Therapy–Bone Marrow Transplant; MDASI-CAR, MD Anderson Symptom Inventory CAR module; QoL-BMT, Quality of Life Bone Marrow Transplant Survivors; SBQ, Symptom Burden Questionnaire; MYPOS, Myeloma Patient Outcome Scale; QLACS, Quality of Life in Adult Cancer Survivors; SCNS-SF34, Supportive Care Needs Survey—Short Form 34.
Proceed to Round 2 if no measures within a domain receive agreement indicators for all three outcomes.