Table 3a.
Illness-information preferences of ESKD patients on Dialysis and their caregivers (Frequency of preference for receiving information on illness, severity, progression, treatment options, and prognosis)
| Questions | Category | Never No. % |
Rarely No. % |
Sometimes No. % |
Often No. % |
Always No. % |
|---|---|---|---|---|---|---|
| A.1.1. Do you prefer to know about your illness? | Patient | 16(9.4) | 24(14) | 75(43.9) | 27(15.8) | 29(17) |
| B.1.1. Do you prefer for your patient to know about his/her illness? | Caregiver | 10(5.8) | 11(6.4) | 44(25.7) | 38(22.2) | 68(39.8) |
| A.1.2. Do you prefer to know about the severity of your illness? | Patient | 35(20.5) | 45(26.3) | 54(31.6) | 13(7.6) | 24(14) |
| B.1.2. Do you prefer for your patient to know about the severity of his/her illness? | Caregiver | 23(13.5) | 33(19.3) | 37(21.6) | 25(14.6) | 53(31) |
| A.1.3. Do you prefer to know about the future course of your illness? | Patient | 47(27.5) | 54(31.6) | 39(22.8) | 9(5.3) | 22(12.9) |
| B.1.3. Do you prefer your patient to know about the future course of his/her illness? | Caregiver | 29(17) | 27(15.8) | 24(14) | 35(20.5) | 56(32.7) |
| A.1.4. Do you prefer to know about your treatment options? | Patient | 38(22.2) | 36(21.1) | 47(27.5) | 20(11.7) | 30(17.5) |
| B.1.4. Do you prefer your patient to know about his/her treatment options? | Caregiver | 15(8.8) | 17(10.0) | 32(18.8) | 36(21.2) | 70(41.2) |
| A.1.5. Do you prefer to know the success/side-effects of your treatment options? | Patient | 39(22.8) | 39(22.8) | 46(26.9) | 16(9.4) | 31(18.1) |
|
B.1.5. Do you prefer your patient to know the success/side-effects of his/her treatment options? |
Caregiver | 16(9.4) | 20(11.7) | 38(22.2) | 44(25.7) | 53(31) |
| A.1.6. Do you prefer to know about the future symptoms? | Patient | 49(28.7) | 51(29.8) | 38(22.2) | 8(4.7) | 25(14.6) |
| B.1.6. Do you prefer your patient to know about his/her future symptoms? | Caregiver | 28(16.4) | 26(15.2) | 32(18.7) | 37(21.6) | 48(28.1) |
|
A.1.7. Do you prefer to know about the future complications due to illness or due to its treatment? |
Patient | 45(26.3) | 39(22.8) | 49(28.7) | 13(7.6) | 25(14.6) |
|
B.1.7. Do you prefer your patient to know about his/her future complications due to illness and its treatment? |
Caregiver | 23(13.5) | 30(17.5) | 40(23.4) | 34(19.9) | 44(25.7) |
| A.1.8. Do you prefer to know about your expected length of survival? | Patient | 105(61.4) | 20(11.7) | 30(17.5) | 0(0) | 16(9.4) |
| B.1.8. Do you prefer your patient to know about his/her expected length of survival? | Caregiver | 118(69) | 8(4.7) | 18(10.5) | 9(5.3) | 18(10.5) |