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. 2025 Jul 24;26:415. doi: 10.1186/s12882-025-04354-2

Table 3b.

Illness-information preferences of ESKD patients not on Dialysis and their caregivers (Similar preferences assessed for non-dialysis patients and their caregivers)

Questions Category Never
No. %
Rarely
No. %
Sometimes
No. %
Often
No. %
Always
No. %
A.1.1. Do you prefer to know about your illness? Patient 13(17.1) 12(15.8) 23(30.3) 24(31.6) 4(5.3)
B.1.1. Do you prefer for your patient to know about his/her illness? Caregiver 16(21.1) 13(17.1) 16(21.1) 15(19.7) 16(21.1)
A.1.2. Do you prefer to know about the severity of your illness? Patient 13(17.1) 18(23.7) 31(40.8) 13(17.1) 1(1.3)
B.1.2. Do you prefer for your patient to know about the severity of his/her illness? Caregiver 20(26.3) 21(27.6) 12(15.8) 13(17.1) 10(13.2)
A.1.3. Do you prefer to know about the future course of your illness? Patient 14(18.4) 17(22.4) 29(38.2) 15(19.7) 1(1.3)
B.1.3. Do you prefer your patient to know about the future course of his/her illness? Caregiver 18(23.7) 21(27.6) 13(17.1) 13(17.1) 11(14.5)
A.1.4. Do you prefer to know about your treatment options? Patient 13(17.1) 17(22.4) 22(28.9) 18(23.7) 6(7.9)
B.1.4. Do you prefer your patient to know about his/her treatment options? Caregiver 17(22.4) 17(22.4) 13(17.1) 17(22.4) 12(15.8)
A.1.5. Do you prefer to know the success/side-effects of your treatment options? Patient 14(18.4) 16(21.1) 23(30.3) 18(23.7) 5(6.6)

B.1.5. Do you prefer your patient to know the success/side-effects of his/her

treatment options?

Caregiver 18(23.7) 18(23.7) 13(17.1) 16(21.1) 11(14.5)
A.1.6. Do you prefer to know about the future symptoms? Patient 14(18.4) 19(25) 24(31.6) 17(22.4) 2(2.6)
B.1.6. Do you prefer your patient to know about his/her future symptoms? Caregiver 18(23.7) 21(27.6) 13(17.1) 14(18.4) 10(13.2)

A.1.7. Do you prefer to know about the future complications due to illness or

due to its treatment?

Patient 15(19.7) 18(23.7) 23(30.3) 17(22.4) 3(3.9)

B.1.7. Do you prefer your patient to know about his/her future complications due

To illness and its treatment?

Caregiver 21(27.6) 20(26.3) 11(14.5) 14(18.4) 10(13.2)
A.1.8. Do you prefer to know about your expected length of survival? Patient 55(72.4) 8(10.5) 5(6.6) 5(6.6) 3(3.9)
B.1.8. Do you prefer your patient to know about his/her expected length of survival? Caregiver 62(81.6) 2(2.6) 3(3.9) 5(6.6) 4(5.3)