Table 4a.
Decision-making preferences of ESKD patients on Dialysis and their caregivers (Levels of agreement on ACP documentation, autonomy, family/provider roles, and shared decision-making)
| Questions | Category | Strongly Disagree No. % |
Disagree No. % |
Undecided No. % |
Agree No. % |
Strongly Agree No. % |
|---|---|---|---|---|---|---|
| A.2.1. Future healthcare preferences and options should be discussed and planned | Patient | 6(3.5) | 42(24.6) | 50(29.2) | 65(38) | 8(4.7) |
| B.2.1. Future healthcare preferences and options should be discussed and planned | Caregiver | 3(1.8) | 11(6.4) | 39(22.8) | 94(55) | 24(14) |
| A.2.2. I prefer my future health care preferences to be documented as an advanced care plan | Patient | 6(3.5) | 54(31.6) | 76(44.4) | 30(17.5) | 5(2.9) |
|
B.2.2. I prefer my patient’s future healthcare preferences should be documented as an advanced care plan |
Caregiver | 2(1.2) | 18(10.5) | 89(52) | 49(28.7) | 13(7.6) |
|
A.2.3. I prefer to be part of all decision-making discussions concerning my current and future healthcare options |
Patient | 6(3.5) | 27(15.8) | 45(26.3) | 79(46.2) | 14(8.2) |
|
B.2.3. I prefer my patient to be part of all discussions concerning decision-making about his/her current and future healthcare options |
Caregiver | 0(0) | 15(8.8) | 29(17) | 100(58.5) | 27(15.8) |
| A.2.4. I would prefer to make all the health care decisions myself | Patient | 5(2.9) | 20(11.7) | 34(19.9) | 101(59.1) | 11(6.4) |
| B.2.4. I would prefer the patient to make all the health care decisions | Caregiver | 2(1.2) | 20(11.7) | 20(11.7) | 102(59.6) | 27(15.8) |
| A.2.5. I would prefer family to make all the health care decisions | Patient | 4(2.3) | 10(5.8) | 25(14.6) | 120(70.2) | 12(7) |
| B.2.5. I would prefer the family to make all the health care decisions | Caregiver | 0(0) | 3(1.8) | 16(9.4) | 119(69.6) | 33(19.3) |
|
A.2.6. I would prefer health care provider (doctors/dialysis team) to make all the health care decisions |
Patient | 4(2.3) | 15(8.8) | 27(15.8) | 118(69) | 7(4.1) |
| B.2.6. I would prefer health care provider to make all the health care decisions | Caregiver | 0(0) | 8(4.7) | 32(18.7) | 118(69) | 13(7.6) |
|
A.2.7. I would prefer myself, my family, and healthcare providers (doctors/dialysis team) are involved in the decision-making process |
Patient | 4(2.3) | 12(7) | 31(18.1) | 112(65.5) | 12(7) |
|
B.2.7. I would prefer a shared decision-making process where patient, family, healthcare providers are involved in the decision-making process |
Caregiver | 1(0.6) | 5(2.9) | 19(11.1) | 118(69) | 28(16.4) |
|
A.2.8. I like my preferences, decisions and wishes made about my future treatment and general care process is respected and implemented |
Patient | 6(3.5) | 5(2.9) | 75(43.9) | 73(42.7) | 12(7) |
|
B.2.8. I like my patient’s preferences, decisions, and wishes made about his/ her future treatment, and the general care process is respected and implemented |
Caregiver | 2(1.2) | 1(0.6) | 31(18.1) | 115(67.3) | 22(12.9) |