Table 4b.
Decision-making preferences of ESKD patients not on Dialysis and their caregivers (Same decision-making themes explored in the non-dialysis cohort)
| Questions | Category | Strongly Disagree No. % |
Disagree No. % |
Undecided No. % |
Agree No. % |
Strongly Agree No. % |
|---|---|---|---|---|---|---|
| A.2.1. Future healthcare preferences and options should be discussed and planned | Patient | 6(7.9) | 15(9.7) | 26(34.2) | 28(36.8) | 1(1.3) |
| B.2.1. Future healthcare preferences and options should be discussed and planned | Caregiver | 0(0) | 14(18.4) | 25(32.9) | 30(39.5) | 7(9.2) |
| A.2.2. I prefer my future health care preferences to be documented as an advanced care plan | Patient | 6(7.9) | 23(30.3) | 40(52.6) | 7(9.2) | 0(0) |
| B.2.2. I prefer my patient’s future healthcare preferences should be documented as an advanced care plan | Caregiver | 1(1.3) | 21(27.6) | 37(48.7) | 13(17.1) | 4(5.3) |
| A.2.3. I prefer to be part of all decision-making discussions concerning my current and future healthcare options | Patient | 4(5.3) | 9(11.8) | 22(28.9) | 33(43.4) | 8(10.5) |
|
B.2.3. I prefer my patient to be part of all discussions concerning decision-making about his/her current and future healthcare options |
Caregiver | 0(0) | 13(17.1) | 29(38.2) | 27(35.5) | 7(9.2) |
| A.2.4. I would prefer to make all the health care decisions myself | Patient | 2(2.6) | 8(10.5) | 13(17.1) | 43(56.6) | 10(13.2) |
| B.2.4. I would prefer the patient to make all the health care decisions | Caregiver | 0(0) | 6(7.9) | 23(30.3) | 37(48.7) | 10(13.2) |
| A.2.5. I would prefer family to make all the health care decisions | Patient | 3(3.9) | 6(7.9) | 6(7.9) | 55(72.4) | 6(7.9) |
| B.2.5. I would prefer the family to make all the health care decisions | Caregiver | 0(0) | 4(5.3) | 13(17.1) | 46(60.5) | 13(17.1) |
|
A.2.6. I would prefer health care provider (doctors/dialysis team) to make all the health care decisions |
Patient | 3(3.9) | 6(7.9) | 12(15.8) | 50(65.8) | 5(6.6) |
| B.2.6. I would prefer health care provider to make all the health care decisions | Caregiver | 1(1.3) | 3(3.9) | 15(19.7) | 46(60.5) | 11(14.5) |
| A.2.7. I would prefer myself, my family, and healthcare providers (doctors/dialysis team) are involved in the decision-making process | Patient | 2(2.6) | 6(7.9) | 10(13.2) | 48(63.2) | 10(13.2) |
|
B.2.7. I would prefer a shared decision-making process where patient, family, healthcare providers are involved in the decision-making process |
Caregiver | 0(0) | 4(5.3) | 18(23.7) | 41(53.9) | 13(17.1) |
|
A.2.8. I like my preferences, decisions and wishes made about my future treatment and general care process is respected and implemented |
Patient | 4(5.3) | 8(10.5) | 28(36.8) | 32(42.1) | 4(5.3) |
|
B.2.8. I like my patient’s preferences, decisions and wishes made about his/her future treatment and the general care process is respected and implemented |
Caregiver | 1(1.3) | 5(6.6) | 20(26.3) | 39(51.3) | 11(14.5) |