Table 5a.
Thematic analysis of patient interview responses (Themes and illustrative quotes from patients on emotional, informational, financial, and Familial experiences)
| Sub-Themes | Participant quotes |
|---|---|
| Cost of dialysis, loss of income, reliance on the spouse for financial support | “Dialysis weekly requires money,” “My wife has to bear all the income,” “Taking leave for dialysis, my salary cuts.” |
| Fear of health deterioration, decision-making about treatment, family welfare | “What will be our future?“, “Fear about the decisions,” “Will I get better health after this?” |
| Spousal support, shared decision-making, reliance on family | “My wife is a big supporter,” “We decide everything together,” “Always being there with me.” |
| Dietary restrictions, reduced mobility, work-life adjustments | “Living a lifestyle which my doctor said, eating less water,” “Traveling is difficult,” “Illness is very tiring.” |
| Depression, fear, loss of faith, frustration | “Lost faith in God,” “Can’t believe I got this disease,” “Scared if the treatment goes right.” |
| Clarifying treatment options, understanding disease progression | “Asking more information about the disease,” “Second opinion about the disease and treatment.” |
| Work disruptions, fatigue, inability to meet responsibilities | “Taking leave for dialysis,” “Tiredness after dialysis,” “Who will take family responsibilities?” |
| Exploring alternative therapies, accepting dialysis as the only option | “Should I go for Ayurveda treatment?“, “Dialysis is the only treatment,” “Whatever my doctor says.” |
| Reliance on family, fear of being a burden | “Who will take care of my family?” “What happens if I can’t make decisions?” |