Table 5b.
Thematic analysis of caregiver interview responses (Themes and supporting quotes reflecting caregivers’ views on support roles, decision burden, and communication needs)
| Sub-Themes | Participant quotes |
|---|---|
| Cost of treatment, insurance concerns | “Money is a big problem spending on dialysis twice a week,” “What can our financial terms be?” |
| Emotional and practical support, shared decision-making | “I have always been with him for whatever he decided,” “Ready to stop my work and be there with him.” |
| Fear of health deterioration, planning for the unknown | “What will our kids think?“, “What will be our future since spending so much on treatment?” |
| Treatment choices, reliance on medical advice | “Choosing the best treatment where the patient can get better,” “Doctor explaining everything about what to expect later.” |
| Stress, fear, and coping with illness | “Scared what if my decision can cause him anything bad,” “Stress because of what we are going through.” |
| Fatigue, dietary restrictions, lifestyle limitations | “Dialysis is very tiring and causes cramps,” “Can’t eat all favorite foods, water should be taken less.” |
| Understanding treatment options and disease progression | “Doctor explained everything,” “Understanding about dialysis till when to continue dialysis.” |
| Insurance, government support, managing dietary needs | “Government insurance for dialysis,” “Handling medicines and infections.” |