Date	Meeting Attendee(s)	Themes/Questions	Decisions
January 2023	KP and TS	Recruiting facilitators, manual, and home visits	No funding in the original grant for parent facilitators, agreed that this was a core value of the programme and funding needed to be sought for this. To apply fast-tracking learning to the manual during workshops, training and piloting. Home visits not needed for this group (already receiving therapy support for this).
February 2023	Adaptation team	Population	Decided not to be too narrow with the population (i.e., not just cerebral palsy) but open up to wider complex neurodisability
May 2023	Adaptation team	Online/in-person delivery How many family members to attend? Outcome measures Specific module discussions	Best for delivery to all to be in person so that group dynamics are not affected. Could consider a hybrid when the group is more established. To keep it to 1–2 family members per child. To consider measuring empowerment as opposed to children’s quality of life, which is often too distal to what the programme can achieve. Changing the name of ‘Everyday Activities’ to ‘Everyday Routines’ ‘Our Community’ module discussion of the importance of addressing stigma in the local communities ‘Going to School’ agreed on the importance of this new module
June 2023	Parent partners and KP	Facilitators Module adaptations	Came up with a job description for the parent facilitator To have facilitators who understand the local contexts (should either work or live in the two boroughs where the study is taking place) Started working through modules 0–2
October 2023	KP and C.T.	Recruiting facilitators	Parent partners felt strongly that the parent facilitator should have lived experience of having a child with a complex neurodisability. We had many parents apply who had children with social communication difficulties or autism. Parent partners felt that they needed better representation and a space of their own as they often feel like they are in the back seat compared to parents of autistic children.
November 2023	Adaptation team	Recruiting facilitators Venues Frequency of groups	Discussed the overrepresentation of parents of autistic children volunteering themselves to be facilitators and how others have found the same in the UK. Looking for community venues, discussed how it needs to be a neutral space that is accessible, clean and open. Decided on fortnightly groups across two school terms
March 2024	Parent partners and KP	Module content	Adaptations made to modules 3–5
April 2024	KP and facilitators during training	Running of the groups Module content	It was decided that parents would benefit from text reminders (if they consented to this) the day before the groups to remind them Adaptations made to modules throughout the training
June 2024	Parent partners and KP	Module content	Adaptations made for modules 6–10