Table 1.
Characteristics of adults with claims for Down Syndrome in Medicaid, 2011–2019
| Down Syndrome | Random Sample | ||
|---|---|---|---|
| N= 119,325 Person–years: 796,984 | N= 3,055,494 Person–years: 11,995,827 | ||
| Deaths | N= 19,335 | N=144,015 | |
| Hospitalizations | Mean=1.14 per year SD=2.9, Median=0, IQR=1 |
Mean=0.65 per year SD=2.6, Median=0, IQR=1 |
|
| Age at First Claim (years), n(%) | 18–25 26–34 35–44 45–54 55–64 65–89 |
42,643 (36) 20,586 (17) 19,096 (16) 22,573 (19) 12,065 (10) 2,362 (2) |
1,047,252 (34) 566,367 (19) 416,024 (14) 366,986 (12) 331,776 (11) 327,089 (11) |
| Race, n(%) a | White Black Pacific Islander Asian Native American Mixed |
89,081 (75 16,835 (14) 1,256 (1) 4,032 (3) 1,035 (1) 7,086 (6) |
1,873,446 (61) 723,538 (24) 67,045 (2) 187,571 (6) 39,711 (1) 164,183 (5) |
| Ethnicity, n(%) b | Non-Hispanic/Latino Hispanic/Latino |
99,444 (83) 19,881 (17) |
2,424,101 (79) 631,393 (21) |
| Sex, n(%) | Male Female |
61,473 (52) 57,852 (49) |
1,338,581 (44) 1,716,913 (56) |
| Region, n(%) | Northeastern Midwest South West Other/US territory |
26,711 (22) 27,615 (23) 38,175 (32) 26,200 (22) 622 (1) |
612,522 (20) 615,027 (20) 1,019,754 (33) 764,493 (25) 43,691 (1) |
| Eligibility Type (Ever), n(%) | Disability Income |
96,879 (81) 56,175 (47) |
745,606 (24) 1,644,528 (53) |
|
Ever dual enrollment with Medicare, n(%) Person years |
Yes No Mean, (SD) Median, (IQR) |
71,086 (60) 48,239 (40) 3.80, (4) 6.0 (0, 8) |
680,356(22) 2,375,138 (78) 3.92 (3) 3(0, 4) |
a
DS missing race pre imputation: 23,041 (24%); Random sample missing race: 71,356 (30%)
b
Missing ethnicity pre imputation: 14,438 (12%); Random sample missing ethnicity 31,979 (13%)