Table 3.
Study Measures of Interest
| Outcome Measures | |
| Primary Outcomes: Survey | |
| Health Insurance Literacy (Paez et al., 2014) | 1. Understanding of terms (e.g., premium, deductible, co-payments, co-insurance, out-ofpocket spending limits, annual limits) 2. Confidence in choosing, comparing, and using insurance plans |
| Financial Toxicity (de Souza et al., 2014; de Souza et al., 2017) | Perceptions and behaviors regarding costs of cancer care |
| Secondary Outcomes: EHR/claims/facilities data | |
| Surveillance Care for Recurrence | Determinations about the appropriateness of surveillance for each participant will follow National Comprehensive Cancer Network (NCCN) for each disease type. These guidelines incorporate factors such as cancer histology and stage. We will use procedure and diagnosis codes from the medical records, facilities data, and claims data to identify the types of care received. |
| Other Medical Care | Types of providers seen (oncologist, primary care, social workers, health educators, etc); Number of visits/types in the past year. We will use procedure and diagnosis codes from the medical records, facilities data, and claims data to identify the types of care received. |
| Secondary Outcomes: Survey | |
| Survivorship Care | Did they discuss with a provider the need for regular follow-up care and monitoring even after completing your treatment? Do they have a primary care provider? |
| Familiarity with important Health Care Legislation | Familiarity with Affordable Care Act policies (Park et al., 2015) such as appeals, preventive care coverage, and summary of benefits/coverage; No Surprises Act (e.g., appeals on out of network cost sharing) |
| Care access | Trouble finding a provider who accepts insurance/getting an appointment as needed; Unmet health care need due to cost; Out of pocket medical costs>10% of income; Worry about medical costs |
| Cost Related Literacy | Comfort/confidence talking about medical costs with providers (Bestvina et al., 2014) understanding of financial concepts of care |
| Satisfaction with navigation sessions | Acceptability of the intervention |
| Other Measures | |
| Measures from Session Transcripts | |
| Navigator Rapport | Linguistic Inquiry Word Count documenting the proportion of positive and affirming language exchanged between the navigator and participants |
| Demographic Measures: Survey | |
| Individual | Age, gender, sexual orientation, education, race, ethnicity, marital status, rurality, employment status |
| Household | Household & personal income, and housing stability, food insecurity, transportation insecurity |
| Perceived Stress | Stress levels from Perceived Stress Scale |
| Insurance characteristics | Insurance status; Policy holder (e.g., self, spouse, parent) and source Plan source: Employer-sponsored, direct purchase (exchange or outside), Medicaid, Medicare Type of plan: High-deductible plan; Narrow network plan Being forced to switch plans because of cancellation (in past year) Satisfaction with current insurance plan or previous insurance plan if uninsured |
| Clinical Measures: EHR/claims/facilities data | |
| Cancer information | Cancer diagnosis, age at and years since diagnosis, treatment, health status |