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. Author manuscript; available in PMC: 2025 Aug 16.
Published in final edited form as: Prev Oncol Epidemiol. 2025 Feb 6;3(1):2455706. doi: 10.1080/28322134.2025.2455706

Table 3.

Study Measures of Interest

Outcome Measures
Primary Outcomes: Survey
Health Insurance Literacy (Paez et al., 2014) 1. Understanding of terms (e.g., premium, deductible, co-payments, co-insurance, out-ofpocket spending limits, annual limits)
2. Confidence in choosing, comparing, and using insurance plans
Financial Toxicity (de Souza et al., 2014; de Souza et al., 2017) Perceptions and behaviors regarding costs of cancer care
Secondary Outcomes: EHR/claims/facilities data
Surveillance Care for Recurrence Determinations about the appropriateness of surveillance for each participant will follow National Comprehensive Cancer Network (NCCN) for each disease type. These guidelines incorporate factors such as cancer histology and stage. We will use procedure and diagnosis codes from the medical records, facilities data, and claims data to identify the types of care received.
Other Medical Care Types of providers seen (oncologist, primary care, social workers, health educators, etc); Number of visits/types in the past year. We will use procedure and diagnosis codes from the medical records, facilities data, and claims data to identify the types of care received.
Secondary Outcomes: Survey
Survivorship Care Did they discuss with a provider the need for regular follow-up care and monitoring even after completing your treatment? Do they have a primary care provider?
Familiarity with important Health Care Legislation Familiarity with Affordable Care Act policies (Park et al., 2015) such as appeals, preventive care coverage, and summary of benefits/coverage; No Surprises Act (e.g., appeals on out of network cost sharing)
Care access Trouble finding a provider who accepts insurance/getting an appointment as needed; Unmet health care need due to cost; Out of pocket medical costs>10% of income; Worry about medical costs
Cost Related Literacy Comfort/confidence talking about medical costs with providers (Bestvina et al., 2014) understanding of financial concepts of care
Satisfaction with navigation sessions Acceptability of the intervention
Other Measures
Measures from Session Transcripts
Navigator Rapport Linguistic Inquiry Word Count documenting the proportion of positive and affirming language exchanged between the navigator and participants
Demographic Measures: Survey
Individual Age, gender, sexual orientation, education, race, ethnicity, marital status, rurality, employment status
Household Household & personal income, and housing stability, food insecurity, transportation insecurity
Perceived Stress Stress levels from Perceived Stress Scale
Insurance characteristics Insurance status; Policy holder (e.g., self, spouse, parent) and source
Plan source: Employer-sponsored, direct purchase (exchange or outside), Medicaid, Medicare
Type of plan: High-deductible plan; Narrow network plan
Being forced to switch plans because of cancellation (in past year)
Satisfaction with current insurance plan or previous insurance plan if uninsured
Clinical Measures: EHR/claims/facilities data
Cancer information Cancer diagnosis, age at and years since diagnosis, treatment, health status