Table 2.
Example of data coding analysis.
Theme | Categories | Initial codes |
---|---|---|
Insufficient Knowledge of Postoperative Rehabilitation for Lymphedema | Insufficient Self-Management Knowledge | Confusion of rehabilitation priorities at different stages (e.g., engaging in high-intensity upper limb exercises in the early postoperative period/ still excessively restricting activities in the late stage). |
Lack of emphasis (e.g., “I didn’t finish watching the video on manual drainage, and I didn’t take it seriously”). | ||
Cognitive biases (e.g., “The doctor said I can’t do heavy work, so I usually avoid physical activity”). | ||
Discrepancy between Self-Management Behavior and Knowledge | Conflicts with lifestyle (e.g., prolonged sitting due to work). | |
Insufficient continuity in self-management (e.g., frequently interrupting the use of compression sleeves due to social activities). | ||
Neglect of Condition Monitoring and Follow-up | Failure to follow medical advice for follow-up (e.g., “I didn’t go for a follow-up and don’t want to, it’s useless”). | |
Failure to follow medical advice for monitoring (e.g., “I can tell the leg is swollen just by looking, no need to measure the circumference”). | ||
Insufficient Experience in Managing Complications | Inadequate ability to identify and respond to complications (e.g., not seeking medical attention promptly when experiencing skin erythema or blisters, applying unknown medications instead). | |
Pessimistic expectations for managing complications (e.g., “Infections will keep recurring, treatment is useless”). | ||
Barriers in Obtaining Disease Management Information | Limited Access and Ability to Obtain Information | Inability to use digital platforms proficiently (e.g., not knowing how to use WeChat mini-programs). |
Lack of family support (family caregivers lack rehabilitation knowledge). | ||
Poor accessibility of medical resources (few authoritative postoperative self-management knowledge available on WeChat or short videos). | ||
Low Willingness to Obtain Information Due to Psychological Factors | Low self-efficacy leading to a fear of difficulty (e.g., believing one cannot learn compression treatment methods, thus avoiding information). | |
Inappropriate Self-Management | Insufficient Mastery of Rehabilitation Skills | Improper control of the tension and density of low-elasticity bandage wrapping. |
Arbitrary and inconsistent execution of manual drainage (abandoned after learning from short videos due to poor results). | ||
Monotonous and non-standardized functional exercises (e.g., only performing simple movements like “raising and lowering the arm”). | ||
Delayed or omitted skin care (forgetting to apply moisturizing lotion until skin dryness occurs). | ||
Non-standardized methods for measuring edema at home (using non-medical soft tape measures or inconsistent measurement sites). | ||
Insufficient Support for Management Resources | Lack of proper guidance and supervision (no rehabilitation therapist providing home visits). | |
Incomplete follow-up mechanisms by medical staff (e.g., phone communication alone is insufficient to correct operational details). | ||
Poor Adherence | Insufficient duration of wearing compression devices | |
Loss of control in dietary management. | ||
Resistance to using doctor-recommended lymphatic drainage techniques, air pressure therapy devices, etc. |