Table 3.
Sample demographics
| People with Parkinson’s (n = 12) | Caregivers (n = 12) | Total Sample (n = 24) | |
|---|---|---|---|
| N | |||
| Age (mean (SD)) | 59.42 (7.04) | 49.17 (21.32) | 54.29(16.38) |
| Gender | |||
| Female | 6 | 9 | 15 |
| Male | 6 | 3 | 9 |
| Ethnicity | |||
| White | 10 | 7 | 17 |
| Black and minority ethnicities | 2 | 5 | 7 |
| Employment Status | |||
| Working full time | 2 | 2 | |
| Working part time | 5 | 5 | 10 |
| Retired | 7 | 5 | 12 |
| Occupation | |||
| Managers, directors and senior officials | 2 (16.67) | 2 (16.67) | 4 |
| Professional occupations | 3 (25) | 1 (8.32) | 4 |
| Associate professional occupations | 2 (16.67) | 2 | |
| Administrative and secretarial occupations | 1 (8.32) | 2 (16.67) | 3 |
| Skilled trades occupations | 2(16.67) | 2 | |
| Caring, leisure and other service occupations | 3 (25) | 3 | |
| Sales and customer service occupations | 2 (16.67) | 2 | |
| Elementary occupations | 1 (8.32) | 1 | |
| Prefer not to say | 2 (16.67) | 1 (8.32) | 3 |
| IMD*** | |||
| 1 | 2 (16.67) | 2 (8.33) | |
| 2 | 5 (41.67) | 5 (20.83) | |
| 3 | 7 (58.33) | 7 (58.33) | 14 (58.34) |
| 4 | 2 (16.67) | 2 (8.33) | |
| 5 | 1 (8.33) | 1 (4.17) | |
| Education | |||
| Degree level or above | 8 (66.67) | 5 (41.67) | 13 (54.17) |
| AS, A levels or equivalent | 1 (8.33) | 3 (25) | 4 (16.67) |
| GCSEs or equivalent | 3 (25) | 3 (25) | 6 (25) |
| No qualifications | 1 (8.33) | 1 (4.17) | |
| Annual household income before tax and deductions | |||
| £10,001- £20,000 | 2 (16.67) | 2 (8.33) | |
| £ 20,001 - £30,000 | 2 (16.67) | 2 (16.67) | 4 (16.67) |
| £ 30,001 - £40,000 | 1 (8.33) | 3 (25) | 4 (16.67) |
| £ 40,001 - £50,000 | 2 (16.67) | 1 (8.33) | 3 (12.5) |
| £ 50,001 - £60,000 | 1 (8.33) | 1 (4.17) | |
| £ 60,001 - £70,000 | 1 (8.33) | 1 (4.17) | |
| £ 70,001 - £80,000 | 1 (8.33) | 1 (8.33) | 2 (8.33) |
| Prefer not to say | 4 (33.34) | 3 (25) | 7 (29.17) |
| Years since Parkinson’s diagnosis Mean (SD); Range | 6.91(5.39); 2–21 | ||
|
Age at Parkinson’s diagnosis Mean (SD); Range |
51.36 (7.51); 33–61 | ||
|
Number of prescribed medications per day (medication types) Mean (SD); Range |
3.9 (2.51); 1–9 | ||
|
Number of tablets taken per day Mean (SD); Range |
10.45 (6.73); 3–25 |
* The p-values and χ2 documented here were obtained from independent sample t-tests and chi-squared test of independence which examined whether demographic characteristics significantly differ across participant groups
**Due to the number of respondents selecting non-white ethnicities to preserve anonymity here we categorised ethnicity as white and black and minority ethnicities.
*** Index of Multiple Deprivation (IMD) quintile. IMD is an index of neighbourhood deprivation generating one deprivation score for income, employment, education, health, crime, barriers to housing and services, and living environment. Quintile ‘1’ indicates the most deprived neighbourhoods, and quintile ‘5’ indicating the least deprived neighbourhoods [30]. See data codebook for further details regarding data transformation (https://osf.io/y8ve5/)