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. 2025 Aug 22;24:223. doi: 10.1186/s12904-025-01862-8

Table 1.

Characteristics of included studies

Year of Publication Number (n) Percentage (%)
2006–2015 6 24%
2016–2022 19 76%
Country* Number (n) Percentage (%)
Belgium 3 12%
Brazil 1 4%
Canada 4 16%
Italy 1 4%
Israel 2 8%
Netherlands 1 4%
United Kingdom 8 32%
United States 5 20%
Design Number (n) Percentage (%)
Qualitative 17 68%
Quantitative 8 32%
Data Collection Method Number (n) Percentage (%)
Interviews 14 56%
Focus group 1 4%
Interviews & focus group 1 4%
Nominal group technique 1 4%
Questionnaire 8 32%
Sample size** Number (n) Percentage (%)
< 21 participants 8 35%
21–40 participants 3 13%
41–60 participants 5 22%
61–80 participants 3 13%
81–100 participants 0 0%
> 100 participants 4 17%
Participants (caregivers)**-*** Number (n) Percentage (%)
Total number of caregivers 1545 100%
Gender
Male 400 27%
Female 1069 73%
Relationship with the senior with major neurocognitive disorders
Spouse 723 54%
Children 508 38%
Other 111 8%
Age years
Mean age 64
Range 20–92

* Based on where the study was conducted

** Three studies utilized the same sample, which was counted only once. Furthermore, the sample size reflects the total number of participants included in each study

*** Based on the available data