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. 2025 Aug 22;25(3):23. doi: 10.5334/ijic.9828

Table 1.

Enablers for implementing PROMs in integrated care settings.


Harmonisation
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  • Shared outcomes at place level using tools such as the Shared outcomes toolkit for IC systems i.e., in Leeds, UK, PROM data for frailty populations is collected using the Patient-Reported Outcomes Measurement Information System [PROMIS] Global Health measure and a measure of person centred coordinated care to measure the outcome described as ‘Living and ageing well’ [27].

  • Flexible system design to ensure electronic health record compatibility and Interoperability to support data sharing and data linkage thorough common data standards and information governance frameworks [28] [29]

  • Development of shared and common terminology

  • Initiatives to share PROMs best practice


Training
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  • Develop and promote PROMs awareness and expertise using existing resources such as the PROTEUS-Practice guidelines [30] applicable to a broad range of environments, including integrated health systems

  • Define and communicate key PROM system objectives, such as purpose of completion and who is accessing the data [31]

  • Guidance on systemised approaches to review and action of PROM results and managing expectations.


Resources
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  • Harness existing electronic platforms to administer PROMs

  • Development of dashboard approaches supporting PROMs data alerts, effective interpretability linked to tailored decision support and self-management advice.

  • Use process mining techniques to understand existing care pathways and how PROMs might fit/impact [32] e.g., PROMs informed symptom management that aligns with existing workflow


Inclusivity
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  • Involve all interested parties in design and implementation, focusing on local needs/priorities

  • Identify specific needs of underserved populations i.e., health/digital literacy and access issues

  • Optimise accessibility; allow onsite completion via kiosk/tablet, enable ‘bring your own device’

  • Investigate cultural applicability of chosen measures including language availability.

  • Be aware of distrust in systems or providers, or impact of mental and physical health issues that may lower an individual’s commitment to complete PROMs [33],

  • Developing methods for wider inclusion of people with severe intellectual, communication and cognitive impairments i.e., easy read versions/carer versions. Examples from ASCOT suite of tools in social care [34,35]

  • New and extended roles for clinical ‘champions’ and ‘patient navigators’ to support initiatives for PROMs completion


Burden reduction
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  • Ensure evaluation includes care service users to ensure PROM systems are not over-digitising the person’s experience or adding excessive burden. Utilise expert recommendations on how to reduce respondent burden associated with PROMs [26]

  • Flexible data collection features offering efficient, easy user experience with completion reminders

  • Invest in emerging technologies i.e. Computer Adaptive Testing and item banks to reduce questionnaire burden


Future Research
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  • To investigate empirical evidence of benefit of using PROMs in IC

  • Into measures that may offer most benefit within IC settings i.e., to inform care associated with multiple long-term conditions

  • Employ PROM/PREM data within quality improvement initiatives using in-depth analysis and Plan-Do-Study-Act-cycles [22].