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. 2025 Aug 23;45(1):124. doi: 10.1007/s10875-025-01912-z

Table 5.

Treatment and outcomes for patients with HAE-nC1-INH

Patient # Gene cDNA change Clinical symptoms Treatment Outcomes Follow-up treatment plans
1 MYOF c.5923G > A Persistent swelling No treatment (refused by the patient) Persistent swelling Icatibant and lanadelumab
2 MYOF c.6001 C > G Recurrent edema with spontaneous resolution Icatibant Shorten duration of edema Lanadelumab 300 mg q2w
Lanadelumab Decreased frequency and shorten duration of edema
3 MYOF c.3965 C > G Recurrent edema with spontaneous resolution Allergen avoidance Decreased frequency of edema Follow-up
4 MYOF c.1097G > T Recurrent edema with spontaneous resolution No treatment (refused by the patient) Frequent attack of edema Icatibant and lanadelumab
5 HS3ST6 c.497G > A Persistent swelling Icatibant and lanadelumab for 6 injections No improvement in symptoms Follow-up
6 FXII c.303_304del Persistent swelling Icatibant No improvement in symptoms Lanadelumab 300 mg q4w
Lanadelumab for 10 injections Fully remission
7 KNG1 c.1690 C > T Recurrent edema with spontaneous resolution No treatment (refused by the patient) No episodes within 1 year of follow-up Follow-up
8 KNG1 c.1143G > C Recurrent edema and bullae with spontaneous resolution Allergen avoidance Decreased frequency of edema Icatibant and lanadelumab