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. 2025 Aug 12;16:1582173. doi: 10.3389/fneur.2025.1582173

Table 5.

The framework of themes and sub-themes.

Themes Sub-themes
Theme 1: “The Shadow of Knowing Little “Cognitive deficit and response lag Patient neglect of their disease
Co-residents’ misperceptions of the disease
Ignoring the impact of the disease and letting it run its course
Theme 2: “The Fog of Night and Day “Symptom Confusion and Difficulty of Awareness Invisibility and diversity of symptoms
Misattribution of symptoms
Theme 3: “Symbiotic Suffering “Physical and psychological well-being significantly affected Impact on co-residents’ sleep quality
Impact on co-residents’ psychological state
Symptom clandestinity exacerbates distress
Theme 4: “The Hidden Costs “weakening social functions and causing economic losses Safety hazards that come with the territory
Reduced productivity at school
Struggling with social interactions
Theme 5: “Delay in seeking medical care “Delay in seeking medical care, seeking information and guidance Hospital visits driven by subjective feelings
Hospital visits driven by external feedback
Referrals due to co-morbidities
Theme 6: “Complex Choices “Questions about treatment options and prognosis Confusion about treatment options
Prognostic concerns
Theme 7: “Vacancies calling for attention “Insufficient popularization of social propaganda and insufficient professional facilities Lack of social awareness
Silos of technology