Abstract
Background
Parents who themselves have Attention-Deficit/Hyperactivity Disorder (ADHD) tend to benefit less from conventional parent training (PT) interventions than parents without ADHD, reporting suboptimal effects on both parenting-related outcomes and child externalizing or oppositional behaviors. Therefore, we examined the efficacy of a PT protocol tailored to adults with ADHD called Improving Parenting Skills Adult ADHD (IPSA), using a randomized controlled trial design.
Methods
N = 109 self-referred parents with ADHD who had a child with or without ADHD aged 3 to 11 years were randomized to receive IPSA in addition to their routine services (n = 55) or to a comparison group continuing their routine services only (n = 54). Parent-reports of parental self-efficacy (primary outcome), parental stress, home chaos, and externalizing child behaviors (secondary outcomes) were collected pre and post IPSA, as well as at follow-up one and a half to three months later. The primary analyses were conducted according to the intention-to-treat principle, using linear mixed-effects models.
Results
There was a larger pre-to-post increase in parental self-efficacy following IPSA compared to routine services only (Cohen’s d = 0.85, p < .001), which remained at follow-up (d = 0.84, p < .001). In addition, we observed a pattern of pre-to-post change in the expected direction across the study’s secondary outcomes (post intervention d = -0.39 to -0.71), including reductions in parental ratings of child externalizing behaviors. Forty-seven (96%) of the 49 parents who started IPSA completed the program, without signs of unintended harm.
Conclusions
The IPSA PT program effectively and safely supported parents with ADHD in improving their parental self-efficacy. However, the long-term stability of the program’s effect requires further investigation, as does its effectiveness in a regular health care or social services context.
Trial registration
The study was retrospectively registered during data collection, before analyses (clinicaltrials.gov, ID NCT06040996, 28/08/2023).
Supplementary Information
The online version contains supplementary material available at 10.1186/s12888-025-07166-8.
Keywords: Parental ADHD, ADHD adaptation, Parenting intervention efficacy, Parent training intervention, Externalizing behaviors
Introduction
Many of the tasks and activities typically associated with parenting make high demands on parents’ executive and self-regulation functions and can pose particular challenges for adults with Attention-Deficit/Hyperactivity Disorder (ADHD [1]). As indicated by reports of low parental self-efficacy [2] and high parental stress [3], it appears that many parents who themselves have ADHD experience an imbalance, or mismatch, between the demands of the parenting role and their parenting skills or other resources for coping with these demands. For example, it is common for parents with ADHD to report an increased reliance on ineffective, inconsistent, or even harsh parenting behaviors [4]. And given the familial nature of ADHD, many parents with ADHD will have children with ADHD traits and a predisposition to develop non-compliant behaviors that cause extra caregiving complexities [5–7]. Meanwhile, their day-to-day family life is often further complicated by household disorganization (e.g., home chaos [8]), co-occurring psychiatric conditions (e.g., depression [9]), and psychosocial challenge (e.g., socioeconomic disadvantage [10]). Taken together, it is essential that parents with ADHD can access parenting support when needed; preferably at an early stage, whether or not their child or children have already developed ADHD traits or externalizing behaviors.
Parents’ confidence in their own ability to bring-up their children competently and to exert a positive influence on their child’s development – that is, their parental self-efficacy – has been repeatedly linked to parenting efficacy, family adjustment, child well-being, and parental mental health [11–13]. Self-efficacy is key to behavior change including the initiation of challenging tasks [14, 15] and the construct has been identified as a therapy-relevant factor in interventions for adults with ADHD [16]. Relatedly, parental self-efficacy is an important target for support aimed at parents trying to develop their parenting while dealing with challenging, stressful, or otherwise unfavorable circumstances [12, 13, 17].
Behavioral parent training (BPT) is effective in helping parents improve their parental self-efficacy [17, 18] and develop parenting skills to prevent, manage, or reduce externalizing behaviors in their offspring, with or without ADHD [19, 20]. However, the success of BPT varies between families. Previous studies indicate that evidence-based BPT tends to produce less favorable outcomes in families where the parent has ADHD [21], with suboptimal effects seen for both parenting and child behaviors. Why this is the case needs to be further investigated, but many point to the fact that BPT– just like parenting– tends to put high demands on parents’ attentional, executive and self-regulatory functions [1, 21, 22]. Similarly, others have concluded that providing BPT without adequately considering parent characteristics (e.g., functioning profiles) and potential treatment barriers (e.g., a mismatch between BPT demands and resources available to the parent) might well lead to suboptimal or even adverse BPT outcomes [23–25].
Of note, there is a shortage of clinical trials of BPT involving parents meeting ADHD diagnostic criteria. One exception is a trial which found that eight weeks of individual BPT had more consistent effects on parenting than pharmacological treatment of the parents’ ADHD, although the authors also concluded that for most families, neither intervention was sufficient to significantly improve child functioning [26].
To date, most attempts to support parents with ADHD have focused on the possibility of treating the parents’ ADHD symptoms with pharmacological or non-pharmacological interventions (e.g., [27, 28]), rather than on adjusting the contents and delivery of BPT specifically for adults with ADHD. However, pharmacological treatment of parents’ ADHD seems to have limited effect on parenting and family functioning [21, 26]. And in a study randomizing mothers to multimodal treatment of adult ADHD or supportive counselling prior to BPT, treating mothers’ ADHD was associated with improvements in their ADHD symptoms, but not with enhanced BPT outcomes [28, 29]. Common to studies that have evaluated BPT in families where both child and parent has ADHD, is the use of individually delivered BPT, tailored to each family’s needs [26, 28, 30]. But so far, few studies have investigated the potential of a BPT protocol that has itself been adjusted to meet the needs of adults with ADHD [31].
Improving Parenting Skills Adult ADHD (IPSA) is a new BPT program tailored to parents with ADHD. It was developed using an iterative co-creation approach (for details, see [31]) resulting in a program that uses evidence-based BPT protocols [32, 33] but adapts content and delivery to increase relevance, accessibility, and implementability for parents who themselves have ADHD. Unlike more traditional BPT, IPSA combines structured group sessions with individual support by an occupational therapist (OT) who can help parents try out personalized strategies and tools to enable and enhance the execution of targeted tasks, activities, and skills at home [34]. In doing so, it draws on the benefits of both group-based and individual BPT - offering opportunities to share experiences and advice with peers, while providing individually tailored support to facilitate the implementation of BPT contents and skills. Additional measures to reduce common BPT barriers include the use of individualized appointment reminders and adaptations to the program materials, the approach of the BPT therapists, and the physical BPT environment. The clinical feasibility (e.g., acceptability, accessibility, and safety) of IPSA has been previously shown in an uncontrolled study [31], while its potential efficacy remains to be investigated.
In sum, although parents with ADHD appear to be at increased risk for both parenting challenges and suboptimal outcomes following conventional BPT, there is a lack of studies evaluating the potential of BPT tailored specifically to adults with ADHD. Thus, we conducted a randomized controlled trial (RCT) of the IPSA BPT program for adults with ADHD, to examine if participation in IPSA is associated with improvements in parental self-efficacy (primary outcome), parental stress, home chaos, or externalizing behaviors in the participant’s child (secondary outcomes). In addition, we assessed program completion rates and parent use of parenting skills and behaviors addressed by the intervention.
Methods
Study design and setting
A two-arm RCT with parallel groups was conducted to evaluate the efficacy of the IPSA BPT program delivered in addition to the participants’ routine services, compared with continued routine services only. Assessments using self- and parent-report scales were conducted at three time points: at baseline (pre), immediately after IPSA (post), and at follow-up (one and a half to three months after IPSA completion, in connection with an IPSA follow-up session). The study was retrospectively registered with ClinicalTrials.gov during data collection but before analyses (ID NCT06040996, 28/08/2023) and compiled using guidelines for reporting trials and describing interventions [35, 36]. It was carried out in cooperation with a publicly funded outpatient clinic offering group-based and psychoeducational interventions for families of children with ADHD (the ADHD Center, Habilitation & Health, Region Stockholm, Sweden). The clinic provided, among other things, clinical healthcare infrastructure, as well as the possibility to recruit participants among families enrolled at the clinic. Data was collected from January 2019 to January 2024.
Participants
The sample consisted of self-referred parents with ADHD in need of parenting support, recruited via the project website and among families enrolled at the clinic involved. To be eligible for participation, parents needed to have an ADHD diagnosis (any presentation), at least one child aged 3 to 11 years with or without ADHD, and sufficient Swedish language proficiency to understand written material and rating scales. Their ADHD diagnoses, established within regular healthcare1, were corroborated as part of the eligibility assessment, by healthcare professionals (e.g., lic. psychologists or psychologists in training) who obtained access to assessment reports or equivalent diagnostic documentation (in ≥ 80%, ADHD combined presentation according to ICD-10 criteria). The study’s exclusion criteria included diagnosed autism or intellectual disability, as well as any severe psychiatric conditions (e.g., suicidality, psychosis, or substance use disorder) or crisis in the family that would hinder PT participation, as assessed by or in consultation with a study psychologist or OT. None of the participants were members of the same family.
Procedure
Parents were assessed for eligibility in a structured telephone screening interview developed for the study (Suppl. Table 1), mapping family needs for support and interventions. Potentially eligible parents were invited to a complementary clinical assessment. They received both written and oral information about the study and its procedures before giving their written informed consent. The baseline assessment included questions about family characteristics, ongoing treatments, and measures of outcomes as well as safety. Eligible participants were randomly assigned (details below) to receive IPSA (treatment group) or to continue their routine services (comparison group) pending IPSA the following semester. The intervention was delivered by an OT and a psychologist, both with long (> 20 years) clinical experience and co-authors of the current study. For parents participating during the Covid-19 pandemic (two blocks, n = 36), most or all of IPSA had to be administered digitally, through available video services.
Randomization
Eligible participants were block randomized (n = 18 at a time; ratio 1:1) to the treatment group (i.e., IPSA) or the comparison group (i.e., continued routine services). The random allocation sequences were generated by the study’s principal investigator, or a fellow doctoral student not otherwise involved in the current project, using a digital randomization tool (randomizer.org). The sequence and the allocation of individual participants were concealed (kept in opaque envelopes) from both participants and study staff administering the eligibility assessment and baseline questionnaires, until after the baseline assessment was completed.
Sample size
Based on previous literature (e.g [30])., and initial evaluations of IPSA [31], we expected a medium effect size (ES, Cohen’s d) on the primary outcome. A priori power calculations (using an online power calculator) aiming for a power of 80% to detect medium ES (d = 0.50) at significance level alpha = 0.05 resulted in an estimated (intended) sample size of n ≥ 100 (in practice meaning six blocks of n = 18, to fill IPSA groups of n = 9).
Interventions
IPSA
IPSA [31] is a BPT program for adults with ADHD who experience parenting difficulties and have at least one child with or without ADHD aged 3 to 11 years. It applies evidence-based BPT protocols [32, 33] but incorporates additional elements and adaptations to increase relevance and accessibility for adults with ADHD. The 14-session program is delivered in groups of nine parents by two group leaders (one OT and one psychologist or person with similar training) and followed by a booster group session. It alternates between group-based BPT (six sessions) and individual BPT support (eight sessions), such that bi-weekly group sessions (150 min) introducing new BPT skills are alternated with individual sessions (60 min, in the weeks in between) to facilitate their implementation. The six group sessions cover topics and skills such as: (i) how adult (parental) ADHD can manifest in and affect parenting and family life; (ii) how to strengthen one’s own (parental) prerequisites for managing challenging parent-child interaction situations; (iii) how to use positive reinforcement and build better parent-child relationships; (iv) how to communicate effectively and facilitate parent-child cooperation; (v, vi) how to use strategies to regulate one’s own (parental) emotional expressions in parent-child interactions and reduce the risk of parent-child conflict (Suppl. Table 2 provides a program outline). The majority of the individual support is offered by the OT and can be used flexibly for example to help identify BPT barriers, structure situations for BPT skills practice, address parents’ organizational and time management skills, and strengthen parents’ prerequisites for managing particularly challenging parent-child interaction situations. To further facilitate active BPT participation, individualized appointment reminders, inclusive language, information videos, cognitive aids, and visual supports are employed (for more information about the ‘ADHD adaptations’ made, see [31]). Treatment integrity is facilitated by a structured manual. Group sessions follow slide presentations including short lecture segments, video-based skill demonstrations, and information processing components such as discussions. Throughout their participation, parents can access BPT materials (e.g., summaries and information videos) online. Participants focus their BPT work and home assignments on one child, their IPSA ‘target child’.
Treatment fidelity
Treatment fidelity was assessed in a random subsample of 20% of group sessions held face-to-face. The assessment used audio recordings and checklists adapted from applicable intervention adherence instruments focusing on the implementation of key contents and components (yes or no; [37–39]. The assessment was made by research assistants (psychology students) who - after training by the first author and a quality assessment - made independent ratings. The percentage of content adherence averaged 94% (varying between 89% and 100%) across assessed sessions.
Continued routine services
All families continued their regular treatment plans and services throughout their study participation - either in parallel with IPSA (applies to the treatment group) or pending IPSA the following semester (applies to the comparison group). Details on service use in the treatment and comparison groups are presented in the results section. But in brief, most parents had at least one ongoing routine intervention, such as pharmacotherapy, psychological treatment, or psychosocial support (e.g., housing support).
Study instruments
Parents completed primary and secondary outcome measures pre and post intervention, as well as at follow-up. At baseline, parents also rated their recent ADHD symptoms, using the Adult ADHD Self-Report Scale (ASRS) screener [40]. For all scales used, details on items, response scales, minimum/maximum scores, interpretation of sum scores, and internal consistencies (i.e., estimates of Cronbach’s alpha, a) are summarized in Table 1.
Table 1.
Information on response scales, score ranges, interpretations, and internal consistencies of the Parent-Report questionnaires used
| Response scale | Items (n) | Min-max scores | Interpretation (better rating)a |
αb | |
|---|---|---|---|---|---|
| Primary outcome | |||||
| PSE Total Scale | 0 (completely disagree) - 10 (totally agree) | 48 | 0-480 | Higher | .90 |
| s1 Positive emotions | 6 | 0-60 | Higher | .65 | |
| s2 Being w/ your child | 6 | 0-60 | Higher | .82 | |
| s3 Empathy | 6 | 0-60 | Higher | .76 | |
| s4 Guiding | 6 | 0-60 | Higher | .72 | |
| s5 Rules | 6 | 0-60 | Higher | .78 | |
| s6 Pressures | 6 | 0-60 | Higher | .76 | |
| s7 Acceptance | 6 | 0-60 | Higher | .77 | |
| s8 Experience | 6 | 0-60 | Higher | .76 | |
| Secondary outcomes | |||||
| PSS | 1 (strongly disagree) - 5 (strongly agree) | 18 | 18-90 | Lower | .84 |
| CHAOS | 1 (not at all) - 4 (very much) | 15 | 15-60 | Lower | .83 |
| ECBI IS | 1 (never) - 7 (always) | 36 | 36-252 | Lower | .91 |
| ECBI PS | 0 (no) or 1 (yes) | 36 | 0-36 | Lower | .86 |
| Safety measures | |||||
| PSS-10 | 0 (never) - 4 (very often) | 10 | 0-40 | Lower | .81 |
| HADS Anxiety | 0 - 3 (anchors vary) | 7 | 0-21 | Lower | .83 |
| HADS Depression | 0 - 3 (anchors vary) | 7 | 0-21 | Lower | .83 |
| Other measures | |||||
| ASRS screener | 0 (never) - 4 (very often) | 6 | 0-6 | Lower | .66 |
| Skills use | 0 (never) - 6 (very often) | 11 | 0-66 | Higher | .66 |
ASRS Adult ADHD Self-Report Scale, CHAOS Confusion, Hubbub, and Order Scale, ECBI IS Eyberg Child Behavior Inventory, Intensity Scale, ECBI PS ECBI Problem Scale, HADS Hospital Anxiety and Depression Scale, PSE Parental Self-Efficacy scale, PSS Parental Stress Scale, PSS-10 Perceived Stress Scale, 10-item version, s1-sX subscale 1-subscale X
aStates whether a higher or a lower score is “better”, that is, which type of score (a higher or a lower) indicates the desired or preferred level of the rated construct, or in the case of the ASRS screener, a lower symptom rating
bInternal consistency estimated as α (Cronbach’s alpha)
Primary outcome measure
The Parental Self-Efficacy (PSE) scale (based on [41], adapted for a Swedish context by [42]) assesses parental self-efficacy across eight parenting domains, each constituting a subscale: positive emotions (e.g., I can show my child affection), being with your child (e.g., I can plan things that my child enjoys doing), empathy (e.g., I understand my child’s needs), guiding (e.g., I remain calm when my child misbehaves), rules (e.g., I can stick to the rules I have set for my child), pressures (e.g., I have difficulty managing other people’s expectations of me as a parent, reversed coded), acceptance (e.g., I know that I am a good enough parent) and experience (e.g., I can make the changes needed to improve my child’s behavior). The PSE Total Scale (summing all 48 items; details in Table 1) was used as primary outcome, while the eight PSE subscales (6 items each) were treated as secondary. The internal consistency of the Total Scale has previously been estimated at a = 0.94 in a Swedish sample [42]. In the current trial, it was a = 0.90 at baseline, a = 0.92 post intervention, a = 0.94 at follow-up. For more details, see Table 1.
Secondary outcome measures
The Parental Stress Scale (PSS [43]) was used to assess parental stress, including parents’ perceptions of parental stressors and distress as well as a potential lack of parental rewards or satisfaction [44]. The Confusion, Hubbub, and Order Scale (CHAOS [45]) was used to assess levels of home chaos, that is, the degree to which parents perceive their family home environment as disorganized, chaotic, cluttered, or hurried. The Eyberg Child Behavior Inventory (ECBI [46, 47]) was used to assess the occurrence and parental perceptions of externalizing behaviors in the participants’ IPSA target children. It consists of two dimensions: the Intensity Scale (ECBI IS) that measures the frequency of 36 child behaviors (e.g., defiance, non-compliance, and aggressiveness) and the Problem Scale (ECBI PS) which asks whether the targeted behaviors are perceived as problematic or not (yes or no). For details, see Table 1.
Measures to detect unintended harm
The 10-item Perceived Stress Scale (PSS-10 [48, 49]) and the Hospital Anxiety and Depression Scale (HADS; [50, 51]) were used to detect any deterioration with regard to parental mental health. Spontaneously reported adverse events (e.g., any unfavorable, potentially negative, event that occurred during the study period) and serious adverse events (e.g., threatening life or function, requiring hospitalization) were documented and reviewed (IPSA participants only). For details, see Table 1.
Assessment of program completion and use of targeted skills
Program completers were defined as program starters (i.e., parents attending at least one IPSA session) who attended at least nine (≈ two-thirds) of the 14 IPSA sessions. Participants’ use of BPT skills targeted during the intervention was assessed with 11 items on parenting behaviors (e.g., having moments of parent-child quality time, using positive reinforcement, or managing to behave calmly towards their child despite feeling frustrated), rated on a 7-point Likert-type scale from 0 (never) to 6 (very often, e.g., several times a day) at pre- and post-intervention.
Statistical method
The primary analyses were conducted according to the intention-to-treat (ITT) principle, with all randomized participants retained in their assigned groups. Secondarily, the analyses were repeated per protocol, excluding treatment group parents not completing the intervention. For each outcome measure, a linear mixed-effects model (LMM) was run including time (pre, post, follow-up; treated categorically), group (control, treatment), and a group by time interaction as fixed effects, as well as a by-participant random intercept. Different covariance structures were fit in a pre-specified order, from complex to simple, until the LMM converged. The group by time interaction term was used to determine whether the groups differed in their trajectories of (mean) change from pre- to post- or follow-up-assessment. Effect sizes (ES) were calculated by dividing the between-group difference in model-based estimates of mean change from pre to post/follow-up by the pooled standard deviation at baseline [52, 53] and interpreted as Cohen’s d 0.20 = small, 0.50 = medium, and 0.80 = large [54]. To indicate the potential clinical significance of pre-to-post changes on the primary outcome measure, we post hoc calculated the proportion of participants with a reliable change on the PSE, using the Jacobson-Truax (JT) method [55, 56]. To explore the potential of IPSA in supporting families where both parent and child have ADHD, we also conducted an ancillary sensitivity analysis by repeating the primary ITT analysis, including only the subgroup of parents who had non-autistic children with ADHD. All other analyses were planned a priori. LMMs were conducted with alpha = 0.05, with no adjustments for multiplicity. Missing data were handled within the LMM, using restricted maximum likelihood-based estimations of model parameters based on all available data [57]. Model residuals were checked, detecting no extreme outliers or deviations. Analyses were performed in RStudio version 2023.06.0 + 421, using the ‘nlme’ package for LMM analyses [58] and ‘JTRCI’ to obtain and plot the JT and reliable change index indices [59].
Results
Study flow and participant characteristics
A total of 109 parents were randomly assigned to receive IPSA in addition to their routine services (n = 55, 50.5%) or to continued routine services only (n = 54, 49.5%: Fig. 1). Forty-nine treatment group parents (89.1%) started IPSA, that is, attended at least one IPSA session. Six parents randomized to IPSA never started the program, that is, dropped out before receiving BPT, for reasons such as scheduling difficulties or changes in their work and/or family situation. Complete parent report data (primary and secondary measures) were available for 98 parents (89.9%; 47 [85.5%] treatment group parents, 51 [94.4%] comparison group parents) post intervention and for 88 parents (80.7%; 40 [72.7%] treatment group parents, 48 [88.9%] comparison group parents) at follow-up. Little’s Missing Completely At Random test was non-significant (p =.43).
Fig. 1.
Flow of Participants Through Each Stage of the Study. Note. IPSA = Improving Parenting Skills Adult ADHD; ITT = intention-to-treat; PP = per protocol (excluding experimental group participants who did not complete the intervention). a e.g., diagnosed autism (n = 9); no child in the ages between 3 and 11 (n = 9); mental health or life circumstances that need to be prioritized with other types of interventions (n = 9), other (n = 8). b e.g., new work-/family-related circumstances, scheduling difficulties, could not be reached before program start. cn = 6 of whom discontinued their participation before starting the intervention (se b for reasons)
Baseline demographic and clinical characteristics of the participants and their target children are presented in Tables 2 and 3, respectively. Most parents (86.2%) had at least one ongoing routine service or intervention (Table 2); 73.4% used ADHD medication; 35.8% used Antidepressant medication; 40.4% received some form of psychological intervention and/or psychosocial service (e.g., housing support). 71% of the parents lived together with their target child full-time, the rest lived with their child at least half time (50% or more). 34% of the target children had ADHD and/or autism and 39.5% had at least one routine service or intervention of their own (Table 3).
Table 2.
Participant sociodemographic and clinical characteristics at baseline
| Treatment group (n = 55) | Control Group (n = 54) | |||
|---|---|---|---|---|
| Mean (SD) | Min-max | Mean (SD) | Min-max | |
| Age | 42.29 (5.52) | 25-52 | 40.98 (5.53) | 29-53 |
| Years since ADHD diagnosis | 3.77 (3.4) | 0-12 | 3.40 (3.72) | 0-20 |
| Number of children | 2.15 (0.78) | 1-4 | 1.98 (0.69) | 1-4 |
| n | % | n | % | |
| Female gender | 39 | 70.91 | 40 | 74.07 |
| Education | ||||
| Secondary | 19 | 34.55 | 17 | 31.48 |
| University | 24 | 43.64 | 28 | 51.85 |
| Othera | 12 | 21.82 | 9 | 16.67 |
| Main occupation | ||||
| Working or studyingb | 43 | 78.18 | 41 | 75.93 |
| Otherc | 12 | 21.82 | 13 | 24.07 |
| ADHD diagnosis | ||||
| ADHD combined presentation | 45 | 81.82 | 44 | 81.48 |
| ADHD other presentation | 10 | 18.18 | 10 | 18.52 |
| ≥ 1 additional psychiatric conditiond | 20 | 38.46 | 25 | 46.30 |
| ADHD medication | 40 | 72.73 | 40 | 74.07 |
| Parallel interventions and services | ||||
| Pharmacologicale | 28 | 50.91 | 22 | 40.74 |
| Pharmacological and psychological | 8 | 14.55 | 11 | 20.37 |
| Pharmacological and psychosocialf | 6 | 10.90 | 9 | 16.67 |
| Otherg | 5 | 9.09 | 5 | 9.26 |
| No intervention | 8 | 14.55 | 7 | 12.96 |
| Any intervention | 47 | 85.45 | 47 | 87.04 |
| Mean (SD) | Min-max | Mean (SD) | Min-max | |
| ASRS Screener score | 4.24 (1.20) | 2-6 | 4.72 (1.25) | 1-6 |
| PSE Total Scale | 300.53 (52.45) | 189-411 | 304.07 (46.92) | 209-421 |
| ECBI IS | 145.02 (29.32) | 71-196 | 148.81 (29.13) | 87-221 |
| ECBI PS | 17.65 (7.08) | 4-31 | 17.19 (6.81) | 4-29 |
ASRS Adult ADHD Self-Report Scale, ECBI IS Eyberg Child Behavior Inventory, Intensity Scale, ECBI PS ECBI Problem Scale, PSE Parental Self-Efficacy scale
ae.g., primary school or vocational training
bfigure also includes participants on parental leave (n = 4 in the treatment group, n = 2 in the control group)
ce.g., being on sick leave or applying for work
de.g., Bipolar disorder, Depression, Anxiety or Fatigue
ee.g., ADHD medication, antidepressant medication, or other medication
fe.g., ADHD medication and housing support
ge.g., psychological and psychosocial intervention
Table 3.
Demographic and clinical characteristics of the participants’ target children
| Treatment group (n = 55) |
Control Group (n = 54) |
|||
|---|---|---|---|---|
| Mean (SD) | Min-max | Mean (SD) | Min-max | |
| Age | 7.54 (2.12) | 3–11 | 7.04 (2.29) | 3–11 |
| n | % | n | % | |
| Female gender | 21 | 38.18 | 22 | 40.74 |
| Live full time with the participating parent | 40 | 72.73 | 37 | 68.52 |
| NDC diagnosisa | ||||
| ADHD | 15 | 27.27 | 12 | 22.22 |
| Autism w/or w/o ADHD | 5 | 9.09 | 5 | 9.26 |
| Intervention/Service | ||||
| ADHD medication | 10 | 18.18 | 12 | 22.22 |
| Otherb | 12 | 21.82 | 9 | 16.67 |
| No intervention | 33 | 60.00 | 33 | 61.11 |
| Any intervention | 22 | 40.00 | 21 | 38.89 |
NDC Neurodevelopmental condition, w/ with, w/o without
aas reported by their parent
be.g., habilitation services, primary or secondary psychiatric services, municipal service
Primary outcome
A statistically significant group by time interaction (details in Table 4) indicated that the mean change in parental self-efficacy (PSE Total Scale) was greater for parents in the treatment group than for parents in the comparison group both immediately post IPSA (p <.001, d = 0.85) and at follow-up (p <.001, d = 0.84; Fig. 2A). The same pattern applied to the seven PSE subscales (subscales 2 through 8) whose Cronbach’s a exceeded 0.70 and thus could be analyzed (all p <.05, d between 0.42 and 0.79; Table 4; Figs. 2B-H). A re-run of the analyses per protocol did not change the results (data not shown). The number of participants with complete pre and post data (n = 98, 89.9%) classified as reliably improved, unchanged and deteriorated using the JT method were 27 (57.4%), 20 (42.6%) and 0 (0%) in the IPSA group and 6 (11.8%), 42 (82.4%) and 3 (5.9%) in the comparison group, respectively (Suppl. Figure 1).
Table 4.
Results from linear Mixed-Effect modela analyses of the parental Self-Efficacy total scale and subscalesb
| Pre | Post | Follow-up | Pre to post | Pre to (1.5-3 months) follow-up | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Treatment | Control | Treatment | Control | Treatment | Control | Between groups | Between groups | |||||
| Meanc(95% CI) | Meanc(95% CI) | Meanc(95% CI) | Meanc(95% CI) | Meanc(95% CI) | Meanc(95% CI) | Mean change (95% CI) |
t value (p value) | ES d(95% CI) | Mean change (95% CI) |
t value (p value) | ES d(95% CI) | |
| PSE Total Scale | 300.53 (286.61, 314.44) | 304.09 (290.04, 318.13) | 354.68 (340.82, 368.54) | 315.74 (302.07, 329.41) | 351.20 (336.25, 366.15) | 313.02 (298.64, 327.41) | 42.50 (28.57, 56.43) | 6.02 (.000) | 0.85 (0.57, 1.13) | 41.73 (25.89,57.58) | 5.20 (.000) | 0.84 (0.52, 1.16) |
| s2 Being with your child | 41.22 (38.25, 44.19) | 40.54 (37.54, 43.53) | 47.72 (44.96, 50.48) | 42.27 (39.57, 44.98) | 46.64 (43.74, 49.55) | 41.13 (38.34, 43.92) | 4.76 (1.51, 8.02) | 2.89 (.004) | 0.44 (0.14, 0.75) | 4.83 (1.42, 8.25) | 2.79 (.006) | 0.45 (0.13, 0.77 |
| s3 Empathy | 42.73 (40.36, 45.10) | 43.44 (41.05, 45.83) | 48.83 (46.52, 51.14) | 45.14 (42.89, 47.39) | 48.14 (45.85, 50.43) | 45.06 (42.89, 47.24) | 4.40 (1.47, 7.34) | 2.96 (.004) | 0.49 (0.16, 0.82) | 3.79 (0.74, 6.85) | 2.45 (.015) | 0.42 (0.08, 0.76) |
| s4 Guiding | 25.75 (23.00, 28.49) | 26.84 (24.07, 29.61) | 33.44 (30.41, 36.47) | 30.02 (27.04, 33.00) | 34.37 (31.28, 37.47) | 29.38 (26.42, 32.34) | 4.51 (1.39, 7.63) | 2.86 (.005) | 0.45 (0.14, 0.76) | 6.09 (2.73, 9.44) | 3.58 (.000) | 0.61 (0.27, 0.94) |
| s5 Rules | 29.36 (26.31, 32.41) | 28.56 (25.48, 31.64) | 38.64 (35.67, 41.61) | 29.91 (26.99, 32.83) | 38.95 (35.84, 42.07) | 29.32 (26.31, 32.33) | 7.93 (4.78, 11.07) | 4.97 (.000) | 0.71 (0.43, 0.99) | 8.82 (5.63, 12.02) | 5.45 (.000) | 0.79 (0.50, 1.07) |
| s6 Pressures | 33.11 (29.92, 36.30) | 34.38 (31.15, 37.60) | 39.90 (36.73, 43.06) | 35.60 (32.49, 38.71) | 40.42 (37.06, 43.77) | 36.40 (33.20, 39.60) | 5.56 (2.10, 9.02) | 3.17 (.002) | 0.47 (0.18, 0.76) | 5.28 (1.33, 9.24) | 2.64 (.009) | 0.44 (0.11, 0.78) |
| s7 Acceptance | 36.22 (33.54, 38.89) | 37.44 (34.74, 40.14) | 43.71 (41.14, 46.29) | 39.83 (37.29, 42.36) | 42.99 (40.29, 45.70) | 39.63 (37.00, 42.26) | 5.11 (2.47, 7.75) | 3.82 (.000) | 0.52 (0.25, 0.78) | 4.58 (2.01, 7.15) | 3.52 (.001) | 0.46 (0.20, 0.72) |
| s8 Experience | 43.31 (40.58, 46.04) | 43.70 (40.94, 46.45) | 50.37 (48.04, 52.71) | 43.17 (40.90, 45.44) | 48.69 (45.93, 51.45) | 43.78 (41.17, 46.40) | 7.59 (4.26, 10.92) | 4.50 (.000) | 0.75 (0.42, 1.07) | 5.29 (1.71, 8.88) | 2.91 (.004) | 0.52 (0.17, 0.87) |
PSE Parental Self Efficacy scale, s2-s8 subscales 2 through 8
aIncluding time, group and the group by time interaction as fixed effects and a by-participant random intercept; run with covariance structures Unstructured (applies to PSE subscale 8) or Heterogenous first-order autoregressive (applies to PSE Total Scale and PSE subscales 2 through 7)
bSubscale 1 was not analyzed due to a too low α (Cronbach’s alpha, <.70)
cEstimated means
dEffect sizes for estimated pre to post/follow-up mean change and their respective confidence intervals, calculated, and interpreted as Cohen’s d
Fig. 2.
A-H. Estimated Means for the Parental Self-Efficacy Total Scale and Subscales at Pre-, Post-, and Follow-Up Assessments. Note. Plot of Parental Self Efficacy (PSE) scale scores before (Pre) and immediately after (Post) IPSA, and at Follow-up 1.5 to 3 months later, as rated by parents in the experimental/IPSA group (solid/blue line) and parents in the comparison group (dashed/black line). 95% CI = 95 % Confidence intervals. s2-s8 = subscales 2 through 8 (subscale 1 was not analyzed due to a too low Cronbach’s alpha)
Ancillary sensitivity analysis
The results pattern did not change when the primary ITT analysis of pre-to-post change on the PSE Total Scale was exploratively repeated including only parents of children with ADHD (n = 27; post p =.002, d = 1.06 [95% CI 0.40, 1.72]; follow-up p =.012, d = 0.82 [95% CI 0.19, 1.45]; see Suppl. Table 3).
Secondary outcomes
Analyses of changes in parental stress (PSS), home chaos (CHAOS), and child externalizing behaviors (ECBI IS and ECBI PS) showed greater pre-to-post intervention reductions in the treatment group than in the comparison group (all p <.05, d between 0.39 and 0.71; details in Table 5). At follow-up, the group by time interactions remained statistically significant for all scales except the CHAOS (details in Table 5). A re-run of analyses per protocol did not change the results (not shown).
Table 5.
Results from linear Mixed-Effect modela analyses of secondary outcome measures
| Pre | Post | Follow-up | Pre to post | Pre to (1.5-3 months) follow-up | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Treatment | Control | Treatment | Control | Treatment | Control | Between groups | Between groups | |||||
| Meanb (95% CI) |
Meanb (95% CI) |
Meanb (95% CI) |
Meanb (95% CI) |
Meanb (95% CI) |
Meanb (95% CI) |
Mean change (95% CI) |
t value (p value) |
ES c (95% CI) |
Mean change (95% CI) |
t value (p value) |
ESc (95% CI) |
|
| PSS |
44.51 (41.93, 47.09) |
43.94 (41.34, 46.55) |
39.78 (37.00, 42.55) |
43.25 (40.50, 46.01) | 40.75 (38.11, 43.38) |
43.73 (41.18, 46.28) |
−4.04 (−6.30, −1.78) |
−3.53 (0.001) |
−0.42 (−0.65, −0.18) |
−3.55 (−6.26, −0.83) |
−2.58 (0.011) |
−0.37 (−0.65, −0.09) |
| CHAOS | 40.35 (38.34, 42.35) |
43.78 (41.76, 45.80) |
36.81 (34.97, 38.65) |
43.23 (41.42, 45.04) | 37.40 (35.46, 39.33) |
42.38 (40.50, 44.26) |
−2.98 (−5.02, −0.95) |
−2.90 (0.004) |
−0.42 (−0.70, −0.13) |
−1.55 (−3.56, 0.47) |
−1.52 (0.131) |
−0.22 (−0.50, 0.06) |
| ECBI IS |
145.02 (137.09, 152.94) |
148.84 (140.84, 156.83) |
130.22 (122.54, 137.91) |
145.35 (137.71, 152.99) | 130.89 (123.54, 138.24) | 143.77 (136.53, 151.02) |
−11.30 (−17.32, −5.29) |
−3.71 (0.000) |
−0.39 (−0.59, −0.18) |
−9.06 (−15.10, −3.02) |
−2.96 (0.004) |
−0.31 (−0.52, −0.10) |
| ECBI PS | 17.65 (15.71, 19.60) |
17.18 (15.22, 19.14) |
11.71 (9.81, 13.62) |
16.21 (14.34, 18.08) |
10.95 (8.99, 12.91) |
15.15 (13.28, 17.03) |
−4.96 (−7.16, −2.77) |
−4.46 (0.000) |
−0.71 (−1.03, −0.40) |
−4.67 (−6.98, −2.37) |
−4.00 (0.000) |
−0.67 (−1.00, −0.34) |
CHAOS Confusion, Hubbub, and Order Scale, ECBI IS Eyberg Child Behavior Inventory, Intensity Scale, ECBI PS ECBI Problem Scale, HADS Hospital Anxiety and Depression Scale, PSS Parental Stress Scale, PSS-10 Perceived Stress Scale, 10-item version
aRun with covariance structure Heterogenous first-order autoregressive
bEstimated means
cEffect sizes for estimated pre to post/follow-up mean change and their respective confidence intervals, calculated and interpreted as Cohen’s d
Safety/Potential harms
There were no changes regarding general perceived stress (PSS-10), anxiety (HADS Anxiety) or depression (HADS Depression), neither post IPSA (all p >.36), nor at follow-up (all p >.35). The only serious adverse event recorded occurred before the participant concerned had started IPSA and was thus judged not to be related to the intervention.
Completion rate and use of targeted skills
Forty-seven of the 55 parents (85.5%) who were allocated to the treatment group completed the program (i.e., participated in at least nine of the 14 sessions). Among the 49 parents who started IPSA (i.e., attended at least one session), 47 (95.9%) completed the intervention. Program starters attended an average of 88.8% of sessions (median = 13, min = 5, max = 14), specifically 83.7% of group sessions (median = 6, min = 2, max = 6) and 92.6% of the individual sessions (median = 8, min = 3, max = 8).
The frequency with which parents used targeted BPT skills and behaviors before and after IPSA are shown in Fig. 3, as the mean differences between their pre- and post-intervention ratings on each Skills use item. On the Skills use total scale, parents in the treatment group scored on average 35.7 (SD = 6.2) at baseline and 43.5 (SD = 6.2) post IPSA (mean pre-to-post difference = 7.8, d = 1.48 [95% CI = 1.05, 1.90]), while parents in the comparison group scored on average 35.3 (SD = 6.8) at baseline and 36.4 (SD = 6.2) post IPSA (mean pre-to-post difference = 1.1, d = 0.18 [95% CI = −0.02, 0.38]).
Fig. 3.
Participants’ Self-Rated Use of Targeted PT Skills and Behaviors Before and After IPSA (Mean Difference). Note. The figure shows the mean difference between parents’ pre- and post-intervention ratings (i.e., post minus pre) of how often they engaged in a set of targeted parenting behaviors, as rated on a scale from 0 (never) to 6 (very often, e.g., several times a day), shown for parents in the treatment and comparison groups separately. Items relating to behaviors whose frequency should ideally decrease (marked with ‘Not’) have been reversed before insertion, so that any mean estimates lying to the right of the value zero can be interpreted as an indication of change in the desired direction
Discussion
To the best of our knowledge, this is the first RCT of a BPT intervention tailored to parents with ADHD. Specifically, we examined the efficacy of a BPT program called IPSA by randomizing parents to receive IPSA alongside their routine services or to continue their routine services only, pending IPSA. We found that participation in IPSA was associated with significant improvements in parental self-efficacy. In addition, we observed a pattern of change in the expected direction across the study’s secondary outcomes, including reductions in the participants’ perceptions of externalizing behaviors in their child. Concurrently, parents in the IPSA group reported increased use of parenting skills/behaviors targeted by the intervention.
Based on previous research, we know that many parents with ADHD describe parenting-related difficulties and report low parental self-efficacy [2, 4]. Reflecting this, parents in the current sample reported considerably lower parental self-efficacy (measured by the PSE, at baseline) than that previously observed among Swedish BPT-seeking parents without known ADHD [42]. Prior research has also established that BPT can help improve parental self-efficacy [17, 18]. Consistent with this, we found a significantly greater increase in parental self-efficacy (PSE Total Scale) among parents participating in IPSA than among parents in the comparison group, with large-sized post-intervention effects surviving follow-up. Indeed, a pattern of small to medium improvements was observed across all seven PSE subscales analyzed, each intended to reflect the participants’ perceptions of their parenting within a particular parenting domain. While it is not fully understood why parents with ADHD tend to experience less favorable outcomes from conventional BPT, it has been suggested that difficulties in initiating and implementing the acquired skills at home may play a central role; an activity that puts high demands on parental executive functioning and abilities to put plans into practice [1, 22, 60]. Considering this, it is encouraging that we observed medium-sized improvements not only in self-referential parental cognitions (e.g., thoughts about being a good enough parent, able to be there for one’s child; PSE subscale Acceptance) but also regarding parents’ perceived ability to introduce changes needed to influence their child’s behavior (e.g., being able to set limits and find ways to avoid conflict; PSE subscales Rules and Experience). Indeed, among the PSE subscales, the largest changes– with medium ES at follow-up - were seen for the subscales Rules (e.g., reflecting perceptions of being able to adhere to rules and reason with one’s child), Experience (e.g., reflecting perceptions of being able to learn new ways of dealing with one’s child and handle problems using others’ advice), and Guiding (e.g., reflecting perceptions of being able to influence one’s child’s behavior and to stay/act calm in challenging situations). Concurrent reports of reduced externalizing behaviors in the participants’ target children (discussed below) may– especially if read together with reports from treatment group parents of a more frequent use of targeted PT skills and behaviors after IPSA - further indicate parental experiences of actually doing things in new ways at home.
In addition to improvements in parental self-efficacy, we found that parents in IPSA reported greater reductions than parents in the comparison group across the study’s secondary outcome measures, assessing parental stress (PSS), home chaos (CHAOS), and child externalizing behaviors (ECBI IS and ECBI PS). These between-group differences were small-to-medium-sized and persisted from post IPSA to follow-up for all measures except CHAOS. Regarding home chaos, the construct is not commonly assessed in BPT trials. However, it was deemed interesting to monitor, as elevated levels of home chaos have been linked to parental ADHD symptomatology, ineffective parenting, and externalizing child behaviors [8, 61]. In contrast, parents rated their children’s externalizing behaviors as less frequent (small ES) and less problematic (medium ES) both immediately after IPSA and at follow-up. This observation is reasonable, as IPSA draws on key components and skills from BPT protocols designed to reduce externalizing behaviors in children [32, 33, 62] - a type of intervention commonly associated with medium-sized effects on child behaviors [19]. But most of all, the finding is encouraging, given that previous studies of BPT involving parents with clinical-level ADHD symptomatology have shown mixed results in terms of improvements in children’s behavioral symptoms [21].
Findings on the impact of conventional BPT on parental stress and distress tend to vary– with some reporting small improvements that do not necessarily persist at follow-up [18], while others simply conclude that BPT does not worsen parental mental health (e.g., depression; [63]). In this study, we noted a small pre-to-post-intervention reduction in parental stress (PSS) following IPSA, while detecting no change in general stress (PSS-10). Given the bidirectional relationship between parental stress and child externalizing behaviors [64], it is not unexpected that measures of the two constructs (PSS and ECBI) changed in the same direction. Meanwhile, it is reassuring that parents did not report an increase in general stress during the study period, despite the extensive nature of the IPSA program (including 14 sessions and between-session assignments). Also, we neither detected any deterioration in parental depression or anxiety (HADS), nor any other signs of unintended harm related to program participation. As alluded to above, it is not uncommon for BPT trials to include parental depression among their secondary outcomes. In our context, however, we deemed it more appropriate to ensure that participation was not associated with any worsening of parental well-being or stress.
Methodological considerations and limitations
As often in clinical trials of parent-mediated interventions (e.g [28, 65]), the generalizability of our results is constrained by the fact that the self-referred sample was mainly female (72%) and fairly well-educated - with an educational level comparable to that of the general population in the county of Stockholm [66], but high relative to what is commonly seen among Swedish adults with ADHD [67]. We have no information about levels of functional impairment, neither for the parents nor for their target child. However, the proportion of participants with at least one psychiatric condition in addition to their ADHD was consistent with what has been found in population-based register studies on adult ADHD [68]. Moreover, baseline ratings of child externalizing behaviors were comparable to those seen in PT trials explicitly recruiting families of children with clinical-level conduct problems (e.g [32]).
The proportion of participants who had access to at least one parallel intervention (e.g., ADHD medication) was high, but comparable between the treatment and comparison groups. It remains to be investigated how IPSA compares to conventional BPT, without ADHD adaptations.
Of note, although the trial was retrospectively registered during data collection, all data processing and analysis was carried out after the registration. All outcomes except program completion were assessed based on parental reports and parents were aware of their assigned intervention (i.e., IPSA or not) during the post BPT and follow-up assessments. For measuring the primary outcome, parental self-efficacy, self-report is the only option [69]. Nevertheless, future studies should consider involving additional informants or objective measures. Preferably, such studies should also include standardized and psychometrically evaluated measures of parenting and BPT skill utilization.
Clinical significance and future directions
The BPT protocol put to test in this RCT is designed for parents with ADHD - a group whose clinical and cognitive profile has been associated not only with an accumulation of parenting-related challenges and negative self-referential parental cognitions, but also with less favorable outcomes from conventional evidence-based PT [1, 2, 4, 21]. In short, IPSA aims to help adults with ADHD strengthen their parenting prerequisites and skills in ways that ultimately also benefits the functioning and well-being of their family, whether or not their children have already developed ADHD traits and externalizing behaviors.
Notably, only a fourth of parents in the current study had a child with ADHD. Our sensitivity analysis suggests that IPSA was efficacious in supporting also these parents, having children with ADHD, in improving their parental self-efficacy. However, further studies are needed to shed light on the intervention’s potential to benefit multiplex families where both parent and child has ADHD - a group that is often recommended BPT as part of the child’s multimodal ADHD treatment.
By enhancing parental self-efficacy, IPSA impacts a class of parental cognitions that has implications for the adjustment and well-being of both parents and their children [11]. Among the reasons why parental self-efficacy is often targeted in interventions aimed at influencing parenting are its importance for parental mental health and its potential to mediate relationships between various child and situational factors on the one hand and parental responses on the other [11]. Also often highlighted are the theorized links between self-efficacy for a certain behavior (e.g., a skill), motivation to engage in that behavior (e.g., attempts to use that skills), goal adherence, and persistence in the face of obstacles, frustration, or risk of failure [12, 14, 17]. Relatedly, experiencing self-efficacy has been found important for parent’s motivation to put their parenting knowledge and skills into action [13]. Hopefully, the participants feel better equipped to engage in effective, albeit potentially challenging, parenting practices after IPSA, and thus to act in ways that will further promote and reinforce their sense of parenting competence.
Going forward, it needs to be investigated whether the BPT effects and high program retention observed in the current study can be found also when IPSA is delivered in a regular health care or social services context. Indeed, the attendance rate (89% of sessions) and completion rates (96%, counting parents with nine [64% of] sessions as completers) observed among parents starting IPSA compare favorably to attendance and dropout rates in many prior BPT studies [70]. However, it remains to be explored whether this was enabled by characteristics of the participating parents (e.g., fairly well-educated), facilitated by any of the ADHD adaptations made (e.g., explicitly attending to parental needs, combining group and individual sessions, or offering individualized appointment reminders), or can be explained by something else not related to program quality. Qualitative or mixed-method studies might help provide a better understanding of parents’ experiences of participating in and implementing IPSA.
Calls to make the delivery of BPT more sensitive to parental characteristics and needs (e.g., [22, 71, 72]) have previously been acknowledged for example in the development of parenting interventions for parents with intellectual disability [73] and severe mental illness [74]. Many of the accommodations made to support parents in IPSA (e.g., joint problem-solving) are based on those employed in other BPT interventions and may well be considered universal. However, IPSA also includes modifications that are likely relevant especially for adults with ADHD, such as the addition of OT support to help parents try out personalized strategies and tools to facilitate their PT skills practice and strengthen their prerequisites for managing family life both practically and relationally. In addition, the IPSA group sessions provide participants with an opportunity to exchange experiences and advice with other parents who have ADHD and face similar challenges. That said, it must be considered that IPSA is comprehensive and resource-intensive for both parents and BPT providers. The approach of drawing on the benefits of group-based BPT while accommodating ADHD-related needs for parent- and family-tailored support aligns with recommendations to increase the dose and tailor the pace of BPT; to allow repetition, target parental use of compensatory strategies, and address parental organizational and self-regulation skills [1, 21, 22, 75]. Future studies should examine if the benefits of the adaptations made outweigh the cost of the additional program components, as well as for which population of parents with ADHD IPSA may be a good fit (e.g., neither too extensive nor too demanding). Pending this, the IPSA method for tailoring BPT to adults with ADHD seems promising; a fact likely due to the active involvement of parents with ADHD throughout the program development process [31].
Conclusion
This first RCT of the efficacy of the IPSA BPT program suggests that it has the potential to help parents with ADHD improve their parental self-efficacy, as evidenced by observations of large BPT effects both immediately after the intervention and at follow-up one and a half to three months later. Whether the study’s results - including parent-rated improvements in child externalizing behaviors and symptoms - remain stable over longer periods of time needs to be further investigated.
Supplementary Information
Acknowledgements
We would like to express our sincere thanks to: parents for their involvement in the study; Adhd-center, Habilitering & Hälsa, Region Stockholm (organization, managers, employees) for collaboration; additional IPSA therapists (Åsa Westling, Axel Kierkegaard Suttner, Charlotta Törngren) for clinical efforts and program feedback; research assistants (Malin Rödström, Frida Vestman, Julia Frostell, Sergej Engström) for screening, data collection and/or data management; statistician Annica Dominicus for advice in planning the efficacy-related analyses (e.g., the linear mixed-effect models); Andreas Gerhardsson for help with figures; CAP research center and BUP FoUU in Region Stockholm for access to clinical premises and infrastructure; funders for financing the study.
Abbreviations
- ADHD
Attention-Deficit Hyperactivity Disorder
- ASRS
Adult ADHD Self-Report Scale
- CHAOS
Confusion, Hubbub, and Order Scale
- ECBI IS
Eyberg Child Behavior Inventory, Intensity Scale
- ECBI PS
Eyberg Child Behavior Inventory, Problem scale
- HADS
Hospital Anxiety and Depression Scale
- IPSA
Improving Parenting Skills Adult ADHD
- OT
occupational therapist
- PSE
Parental Self-Efficacy scale
- PSS
Parental Stress Scale
- PSS-10
Perceived Stress Scale, 10-item version
- PT
parent training
Authors’ contributions
All authors contributed to the manuscript. T.L. contributed by writing the original draft, performing the analyses, and being involved in the design and conduct of the study and data collection. S.Bu. contributed by editing and reviewing the manuscript and by being involved in data acquisition. L.W. contributed by editing and reviewing the manuscript and by being involved in data acquisition. M.F. contributed by editing and reviewing the manuscript, interpreting data and providing supervision. S.Bö. contributed by editing and reviewing the manuscript and interpreting data, as well as by providing supervision and access to resources. Principal investigator T.H. contributed by editing and reviewing the manuscript, conceptualizing and designing the study, and interpreting the data, as well as by providing supervision (main supervisor) and granting access to resources.
Funding
Open access funding provided by Karolinska Institute. Funding was received from the following foundations: Stiftelsen Sunnerdahls Handikappfond, Stiftelsen Sven Jerrings fond, Stiftelsen Clas Groschinskys Minnesfond, Sällskapet Barnavård, Stiftelsen Professor Bror Gadelius Minnesfond, Fonden för Psykisk Hälsa, Stiftelsen Frimurare Barnhuset i Stockholm, Stiftelsen Kempe-Carlgrenska Fonden, and Stiftelsen Samariten. Funding sources were not involved in the conceptualization or design of the study, in the collection, analysis or interpretation of data, in the preparation of the manuscript or in the decision to publish.
Data availability
The research participants are patients at the clinical healthcare unit involved, which means that, in accordance with the ethical permit for the study, the datasets generated and analyzed in the study are not publicly available and cannot be shared.
Declarations
Ethics approval and consent to participate
The study was approved by the Regional Ethics Committee of Stockholm, Sweden (dnr. 2017/2435-31/5, 2019–06362, 2023-03871-02) and was carried out in compliance with the Declaration of Helsinki. All participants received written and oral information about the study and were given the opportunity to ask questions. Written informed consent to participate in the study was obtained from all participants.
Consent for publication
Not applicable.
Competing interests
The authors declare that they have no competing interests related to this work to disclose. However, for transparency, they disclose that: Four of the authors (T.L., S.Bu., L.W., T.H.) have been directly involved in developing the PT program under study and/or in the training of new IPSA therapists (who later delivered IPSA to several comparison groups). Two of the authors (S.Bu., L.W.) are IPSA therapists and have in this role treated the majority of participants in the study. T.H. receives royalties for treatment manuals from Hogrefe and textbooks from Studentlitteratur. S.Bö. has in the last 3 years acted as an author, consultant, or lecturer for Medice, Takeda, and LinusBio. S.Bö. receives royalties for textbooks and diagnostic tools from Hogrefe, UTB, Ernst Reinhardt, Kohlhammer, and Liber. S.Bö. is partner NeuroSupportSolutions International AB. M.F. receives royalties for two books on parenting from Natur & Kultur. LW receives royalties for a book on ADHD from Gothia Kompetens. T.L. receives royalties for a treatment manual from Hogrefe and parts of the contents of this manuscript appeared in her doctoral thesis [72].
Footnotes
According to clinical practice and guidelines in Sweden, diagnostic ADHD assessments should follow certain basic principles (e.g., include a full medical history, differential diagnostics, and a function/activity assessment), and be carried out by an appropriately skilled team involving at least one specialist doctor and one psychologist.
Publisher’s Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
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Data Availability Statement
The research participants are patients at the clinical healthcare unit involved, which means that, in accordance with the ethical permit for the study, the datasets generated and analyzed in the study are not publicly available and cannot be shared.



