Table 2.
EQ5D Utility Index, VAS, and dimension scores of unaffected family members versus norms
| EQ5D Scores | Fathers (n = 29) | Mothers (n = 52) | Partners (n = 6) | Unaffected Siblings (≥ 18 years) (n = 9) |
|---|---|---|---|---|
| Utility Index1 | 0.94 (0.82–1.0) | 0.82 (0.53–0.94) | 0.73 (0.64–0.83) | 0.94 (0.88–1.0) |
| Reference Norm3 | 0.88 | 0.88 | 0.88 | 0.88 |
| P-Value | > 0.05 | < 0.001 | < 0.05 | > 0.05 |
| VAS1 | 80.0 (70.0–90.0) | 80.0 (68.2–90.0) | 65.5 (60.2–74.5) | 80.0 (74.0–81.0) |
| Reference Norm | 80.0 | 80.0 | 80.0 | 80.0 |
| P-Value | > 0.05 | > 0.05 | < 0.05 | > 0.05 |
| Mobility2 | 17.4% | 23.1% | 33.3% | 11.1% |
| Reference Norm | 29.4% | 29.4% | 29.4% | 29.4% |
| P-Value | > 0.05 | > 0.05 | > 0.05 | > 0.05 |
| Self-Care2 | 10.7% | 17.3% | 16.7% | 11.1% |
| Reference Norm | 13.9% | 13.0% | 13.0% | 13.0% |
| P-Value | > 0.05 | > 0.05 | > 0.05 | > 0.05 |
| Usual Activities2 | 24.2% | 38.5% | 50.0% | 33.3% |
| Reference Norm | 31.2% | 31.2% | 31.2% | 31.2% |
| P-Value | > 0.05 | > 0.05 | > 0.05 | > 0.05 |
| Pain/Discomfort2 | 38.0% | 55.8% | 66.7% | 22.2% |
| Reference Norm | 62.9% | 62.9% | 62.9% | 62.9% |
| P-Value | < 0.05 | > 0.05 | > 0.05 | < 0.05 |
| Depression/Anxiety2 | 44.9% | 73.1% | 100.0% | 44.4% |
| Reference Norm | 51.1% | 51.1% | 51.1% | 51.1% |
| P-Value | > 0.05 | < 0.005 | < 0.001 | > 0.05 |
1Data presented as Median (IQR). 2Data presented as a percentage reporting any problems on the dimension. 3Reference norms are based on the U.S.A. EQ5D-5L scores. Significant differences from the reference norms are marked in bold
VAS, visual analog scale