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. 2025 Aug 26;20:456. doi: 10.1186/s13023-025-03987-8

Table 3.

PedsQL™-FIM domain and summary scores parents versus norms: past month and past 7 days

PedsQL™-FIM Domain Scores Fathers (n = 13) Reference Norms1 Mothers (n = 43/n = 42) 6 Reference Norms1
Past one month / past 7 days Physical Functioning 57.7 (25.2) / 65.1 (29.9) 64.9 (17.4) /– 47.1 (20.5) / 51.2 (23.7) 64.9 (17.4) /–
Social Functioning 48.1 (26.1) / 53.9 (33.1) 74.4 (19.1) /– 47.3 (27.1) / 50.6 (26.9) 74.4 (19.1) /-
Emotional Functioning 55.8 (29.3) / 67.3 (32.0) 67.6 (17.9) /– 43.0 (22.9) / 47.7 (25.6) 67.6 (17.9) /–
Cognitive Functioning 69.2 (23.4) / 75.0 (25.8) 73.5 (18.6) /– 56.9 (23.3) / 59.9 (27.7) 73.5 (18.6) /–
Communication 57.1 (27.2) / 67.3 (25.6) 81.9 (17.7) /– 48.1 (24.5) / 53.4 (26.9) 81.9 (17.7) /–
Worry 42.7 (24.0) / 51.2 (23.9) 78.1 (20.1) /– 35.6 (17.8) / 36.8 (21.0) 78.1 (20.1) /–
Daily Activities 41.7 (30.1) / 54.5 (33.6) 63.2 (22.5) /– 31.6 (25.3) / 38.1 (25.4) 63.2 (22.5) /–
Family Relationships 56.9 (22.8) / 65.0 (25.6) 67.0 (19.4) /– 59.0 (25.3) / 62.5 (26.4) 67.0 (19.4) /–
PedsQL™-FIM Summary Scores Fathers (n = 13) Reference Norms2 Mothers (n = 43/n = 42) 6 Reference Norms2
Past one month /past 7 days FFSS 49.3 (24.6) / 59.7 (28.0) 67.6 (18.4) /– 45.3 (21.3) / 50.3 (22.4) 67.6 (18.4) /–
p-value < 0.014 < 0.055 < 0.0014 < 0.0015
HRQoL-SS 57.7 (23.3) / 65.3 (27.3) 71.2 (14.9) /– 48.6 (19.8) / 52.4 (22.4) 71.2 (14.9) /–
p-value < 0.054 > 0.055  < 0.0054 < 0.0015
Total Scale Score 53.6 (21.8) / 62.4 (25.1) 73.2 (13.6) /– 46.1 (18.3) / 50.0 (20.7) 73.2 (13.6) /–
p-value < 0.014 < 0.015 < 0.0054 < 0.0015

Data presented as mean (± SD). 1Reference norms are the U.S.A. community-based norms with a one-month recall period.2Reference norms are based on U.S.A. families with children without chronic conditions during a one-month recall period. 4p-value reflects the difference in summary scores between the past month and the past 7 days. 5p-value reflects the difference in parents’ one-month scores and the reference norm. 6n = 43 mothers over the past month and n = 42 mothers over the past 7 days. Notable items are marked in bold