Table 4.
PedsQL™-SC Domain and Summary scores unaffected siblings versus norms: past month and past 7 days
| PedsQL™-SC | Domain Scores | Siblings (13- < 18y) (n = 4) | Reference Norms1 | Siblings (18- < 25y) (n = 5) | Reference Norms1 | Siblings (≥ 25y) (n = 4) | Reference Norms1 |
|---|---|---|---|---|---|---|---|
| Past one month/past 7 days | Physical Functioning | 91.4 (9.0) / 93.0 (10.0) | 90.7 (13.4) /– | 75.6 (25.4) / 78.8 (27.5) | 90.2 (12.5) /– | 91.4 (6.4) / 94.5 (4.7) | 88.7 (13.8) /– |
| Social Functioning | 97.5 (2.9) / 97.5 (2.9) | 85.2 (17.0) /– | 76.0 (20.4) / 76.0 (20.4) | 88.4 (13.7) /– | 98.8 (2.5) / 98.8 (2.5) | 89.3 (12.8) /– | |
| Emotional Functioning | 78.8 (13.8) / 83.8 (14.4) | 80.4 (19.5) /– | 62.0 (25.9) / 62.0 (28.6) | 78.4 (17.7) /– | 80.0 (17.8) / 81.3 (11.1) | 78.7 (17.5) /– | |
| School/Work Functioning | 91.2 (8.5) / 90.0 (10.8) | 78.1 (17.8) /– | 63.0 (22.2) / 67.0 (19.9) | 84.0 (14.3) /– | 95.0 (4.1) / 95.0 (4.1) | 85.0 (14.6) /– |
| PedsQL™-SC | Summary Scores | Siblings(13- < 18y) (n = 4) | Reference Norms1 | Siblings (18- < 25y) (n = 5) | Reference Norms1 | Siblings (≥ 25y) (n = 4) | Reference Norms1 |
|---|---|---|---|---|---|---|---|
| Past one month /past 7 days | Psychosocial Health Score | 89.2 (6.2) / 90.4 (7.7) | 81.2 (15.5) /– | 67.0 (20.5) / 68.3 (21.5) | 83.6 (12.7) /– | 91.3 (7.4) / 91.7 (4.7) | 84.3 (13.0) /– |
| p-value | > 0.052 | > 0.053 | > 0.052 | > 0.053 | > 0.052 | >0.053 | |
| Total Scale Score | 90.0 (10.8) / 91.1 (6.6) | 84.5 (13.5) /– | 67.0 (19.9) / 70.9 (22.7) | 85.9 (11.2) /– | 95.0 (4.1) / 92.4 (3.2) | 85.9 (11.9) /– | |
| p-value | > 0.052 | > 0.053 | > 0.052 | > 0.053 | > 0.052 | < 0.053 |
Data presented as Mean (± SD). 1 Reference norms are based on Dutch PedsQL-SC norms with a one-month recall period. 2p-value reflects the difference in summary scores between the past month and the past 7 days. 3p-value reflects the difference in sibling’ one-month scores and the reference norm. Notable items are marked in bold