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. 2024 Dec 1;21(12):1670–1677. doi: 10.1513/AnnalsATS.202405-457OC

Table 2.

Quotes from interviewees about dyspnea severity ratings on a 0–4 scale

When shortness of breath is rated a ____…
  1 2 3 4
24/7 O2 use
  • I wouldn’t fight to breathe. I would be okay.

  • …just get a little shortness breath, and then it’s gone. Then it’s… under control… But a 1 doesn’t feel bad. It’s just kind of that warning signal to slow down a little bit, but I can still maneuver…

  • But if I’m huffing and puffing and filling a cart with things and carrying it up to the building… if I’m walking and talking, I can get short of breath…

  • …you can still carry on even though you feel short of breath.

  • …you take out the trash… and then you start back and you go to suckin’ wind… I have to stop and go back to breathing before I can do anything else…

  • …went into [store] … and I had a cart, and I put the [liquid oxygen] … in the cart… and I had to stop every, say, a hundred feet or so to… to settle myself down… that was a 2.

  • Probably if I had to do box breathing for more than 10 minutes or 15.

  • I can’t do a lot… just doing simple stuff, it’s hard to breathe… just getting up and walking in the house, prepping all the vegetables… peeling, you know, washing, peeling…

  • …you’re just miserable, and it doesn’t matter how much you turn the air up or turn it down it. It don’t help.

  • …gotta stop and take a deep breath pretty frequently… can’t walk 50 yards… without stopping… when I’m working or doing some chores around the… house.

  • …longer period that I cannot catch a breath.

  • I would have to stop… and I’d be leaned over…

  • …take me an hour to get ready. and I would have to sit down between every activity of daily life washing my face… sit down to brush my teeth, to dry off. I just have to rest in between every little thing…

  • I’m thinking, well, I’m taking in more oxygen. I should be recovering faster…

  • …divide up a chore into specific spots… maybe only go halfway to the mailbox and… and lean on a ski pole or something, but…

  • …and a 4, I would be disturbing everybody around me with my gasping…

  • …inability to breathe [and having] panic… so I would say, it’s the loss of reasoning and causing one to go into fear mode.

  • …sometimes my recovery can take almost a half an hour…

No daytime O2 use
  • But, you know, I don’t feel like it’s super bad. I mean, I can feel it…

  • …I’ve gotta stop and catch my breath.

  • …go up the steps a couple of times, and I’m like, Oh, I gotta… I guess… Hold on just a minute… I gotta catch my breath…

  • A little labored on my breathing when we do the walk… It’s up and down and and… and… we’ll take our breaks.

  • …a 1, it would have to be like every time I, you know, take a walk or anything I get out of breath… sometimes when I go up the steps, I get out of breath.

  • [it would feel like walking] much faster so that would probably take me… I don’t often outpace myself much, but I would guess it would be about an 88 [saturation] … uh, where I would be put me in the 2 level.

  • I’m having occasional symptoms at times when I’m not feeling like I’m breathing like I should be.

  • …as soon as I climb the little bit of a hill before I hit the smooth part of the walk… um… I might have to just stand and rest…

  • …bad, but no [wouldn’t need] oxygen.

  • … just going up the stairs once or twice, and feeling like… Oh, that’s… that’s a lot of exertion… That’s probably where 3 would be.

  • I’ll get stuff and cover plants to do all this, and it can be pretty strenuous, and I can outrun my, uh [body’s], oxygen supply.

  • like I’m having more difficulty getting my breath, and then the numbers are probably… uh, matching that… constantly having to stop and concentrate to breathe and make sure my numbers are there.

  • …eating breakfast this morning, I just felt shorter of breath than I would normally… activities such as bending over, I get short of breath… the normal activities of daily living are all limited, you know, going up and down stairs…

  • I would say 4 is severe, and I would be on oxygen…

  • …it’s like I’m gasping… to my mind… I need to have oxygen.

  • Let’s say I had to climb 5 flights of stairs at a relatively rapid rate.

  • 4 is, I can’t keep them [saturation] up. I need oxygen.

  • …if I walk across the room and I get short of breath.

  • …just normal activities, you know, going to the grocery store, to the gym, where I just couldn’t do the activity or walk that I would have to sit down…

  • …[felt like] I was trying to choke air.