Table 3. Overview of themes, axial codes, and stakeholders’ notes.
Themes and axial codes | Stakeholders’ notes (direct quotations) |
---|---|
Despite uncertainty, the benefits of using data outweigh the associated risks | |
Knowledge about data | Data is just a word–data is not used (yet)–there is a lot of data in LTC. |
Negative feelings | Data collection should not become the aim–fear of the unknown–risk that data steers a professional too much. |
Current applications | AI in practice–eHealth (data that is not necessarily added or used by humans)–going from retrospective to real-time insights, to prospective improvements. |
Ethical dilemmas | Uncertainty about reliability of data-Ethical dilemmas about data usage. |
Data’s potential for care | Data usage of quality of care–data supports tailored care to the client–identifying group selections. |
The lack of accessibility and uniformity hinders integrating data-informed care | |
Indicating variety of data |
Demographical information – Clinical Measurements – kinds of data, including audio, video, qualitative and quantitative. |
Uniformity in systems | Standardizing definitions in the systems—System often requires jargon, should switch to layman’s’ language—database structure is crucial for enhancing uniformity. |
Simplification | Translating data to present understandable information for clients, informal caregivers and public–professionals will be supported if data becomes more comprehensive and easy to use–simplifying data improves multidisciplinary learning and improving. |
Interoperability | Sharing data and associated solutions to increase data usage–LTC can continuously improve by connecting data between systems–Link external sources and strive for open data. |
Electronic health record |
Double checks in EHR–Data could support medication registration–Compliance cannot be tracked with data yet. |
Information gain | Systems should be unambiguously and easy to use–Making data both findable and usable–With LTC, agreements are needed for accessibility and governance of data. |
Accessibility | Creating overview of aging population (in region)–Matching eHealth and specific client(characteristics)–Insight into data of future clients. |
Centralizing storage | Working towards one platform and format for different disciplines-Centralizing information–Reducing workload or pressure as data entry and retrieval are in one place. |
HR and finance departments pioneer data usage, yet the potential lies in clinical decision-making | |
Organizational opportunities | Determination of long-term vision, supported by financial numbers–Organize care differently (more care with less resources–Data can be used positively or negatively to finance care. |
Data collection and analysis techniques | Collecting information on different levels, to gain insights what is important and for who–classifying systematic problem analysis–Identifying the different instruments for data collection will result in less administration costs. |
Predictions | Data can support in findings patterns and trends–Estimating lifestyle and preferences of clients–Predicting care intensity. |
Data-informed care demands individual, collective, and organizational prerequisites | |
Education, training, and support | Education to understand the goal of data and information–Support needed for individuals with less digital literacy–Education or train employees systematically. |
Teamwork and collective skills | Communicational skills within a team–Dare to innovate-mentality needed in a team–Every team should include an attention raiser or data specialist. |
Individual contribution toward data-informed working | Feeling the urge to do own contribution independently or together with informal caregiver)–Taking control and responsibility–Understanding that data should support and not influence. |
Requirements for learning and improving | Multidisciplinary collaboration with different layers (care, cure, management, IT)–Organizational or team objective should be formulated and communicated more clearly with everyone–Define responsibilities and roles. |
Multidisciplinary collaboration enriches collective knowledge regarding data | |
Central role for data | Data supports individuals in multidisciplinary approaches with shared and offering new ideas–Adhering to Evidence Based Practice working principles–Enhance dialogue and understanding between different professions. |
Collaborative and shared decision-making | Integrating multiple sources and professions allows for better consideration and substantiation–Appropriately implementing SDM result in more, better dialogue with clients–making decisions as a team. |
Striving for overarching goals | Teams should mitigate working with limited perspectives from other professions–by working multidisciplinary, the shared objective should be accepted by all–Crucial advantage is “multi-perspectivity” on the one subject. |
Collective knowledge | Leaning-by-doing enhances individual digital literacy levels–Gaining knowledge about digital systems, finding information and using that information – Collective understanding acquired by individual contributions. |