Skip to main content
. 2025 Sep 3;12:1579182. doi: 10.3389/fmed.2025.1579182

Table 2.

Instruments constituting the registry dedicated to patient with Castleman’s disease; the number of fields and at which phase of data collection they are referred to is also reported.

Instruments Fields Retrospective/Prospective phase No. of mandatory fields
Demographics 11 Retrospective phase 4
Consents 5 Retrospective phase 2
General information about Castleman’s disease onset 7 Retrospective phase
Histopathology 10 Retrospective phase 0
Diagnosis 36 Retrospective phase 0
Castleman’s disease features up to the enrolment 229 Retrospective phase 0
Laboratory data during disease activity 49 Retrospective phase 0
Treatment strategies attempted over time 3 Retrospective phase 2
Treatments performed up to the time of the enrolment 1,160 Retrospective phase 0
Follow-up visits-the prospective phase 1,488 Prospective phase 41
Death of the patient (to open only in case of patient’s death) 4 Retrospective/prospective phase 0