Table 2.
Instruments constituting the registry dedicated to patient with Castleman’s disease; the number of fields and at which phase of data collection they are referred to is also reported.
| Instruments | Fields | Retrospective/Prospective phase | No. of mandatory fields |
|---|---|---|---|
| Demographics | 11 | Retrospective phase | 4 |
| Consents | 5 | Retrospective phase | 2 |
| General information about Castleman’s disease onset | 7 | Retrospective phase | |
| Histopathology | 10 | Retrospective phase | 0 |
| Diagnosis | 36 | Retrospective phase | 0 |
| Castleman’s disease features up to the enrolment | 229 | Retrospective phase | 0 |
| Laboratory data during disease activity | 49 | Retrospective phase | 0 |
| Treatment strategies attempted over time | 3 | Retrospective phase | 2 |
| Treatments performed up to the time of the enrolment | 1,160 | Retrospective phase | 0 |
| Follow-up visits-the prospective phase | 1,488 | Prospective phase | 41 |
| Death of the patient (to open only in case of patient’s death) | 4 | Retrospective/prospective phase | 0 |