TABLE 4.
Summary of the included studies.
Participants’ | Data | |||||||||
---|---|---|---|---|---|---|---|---|---|---|
Author, year | sample | sex | age | Interventions | Dose | Setting | Professionals | collection | analysis | Results |
Kim et al. (2018) |
1x lvPPA (1x care partner) |
1x female (1x male) |
62 years. (68 years) |
Aphasia Camp facilitates a variety of activities (e.g., adapted archery, canoeing, orienteering, hiking, caregiver support and conversation groups) | Once a year over a weekend | Group | Clinicians/students from the fields of speech and language therapy, physical therapy and occupational therapy | Exploratory semi‐structured interviewing | Conventional content analysis (inductive approach) |
The couple reported an increase in social connections and the launch of new activities. The couple's personality traits had an impact on their experience of aphasia camp and how they integrated their experience into their everyday lives after the camp |
Morhardt et al. (2019) |
Pilot phase: 6x PPA Formal intervention: 9x PPA (8x care partner) |
Pilot phase: 2x female, 4x male Formal intervention: 4x female, 5x male (6x female, 2x male) |
Pilot phase: 53–80 years, M = 67.5 Formal intervention: 55–82 years, M = 67.2 |
Pilot phase: ‘PPA education/talk‐based support group (Yale 1999)’ (focus on counselling, patient education and introduction of AAC techniques) with a separate care partner group Formal intervention: ‘Hybrid Support Group’ for people with PPA and their care partners (focus similar to Pilot phase) ‘Social Activity Group’ for people with PPA (focus on activities including art or horticulture) |
Five 90‐min bimonthly sessions | Group | SLT, clinical neuropsychologist, cognitive neuroscientist | Observational field notes | Thematic analysis | Support and education groups were valued by participants and contributed to a sense of wellbeing, personal empowerment and QoL (‘One member shared that he was "very depressed before the group" and "intermediately depressed after the group,"’ 1316). |
Jokel et al. (2017) |
2x lvPPA 3x nfvPPA (5x care partners) |
2x female 3x male (3x female, 2x male) |
59–80 years, M = 72.4 (56–85 years, M = 70.4) |
PPA participant group: conversations about current global, local or personal events without focus on health issues; word‐retrieval strategies Caregiver group: networking, speaking about current needs of partners; 2 of 10 sessions are practice of communication strategies in spousal dyads |
Ten 120‐min weekly sessions | Group | SLT, students from the field of speech and language therapy, social worker, neuropsychologist, nutrition scientist, neuropsychiatrist, neurorehabilitation scientist, clinical psychologist | Self‐assessment scale; spousal questionnaire; use of communication strategies; qualitative feedback | Inferential statistics (using the Wilcoxon sign‐ranked test); descriptive statistics |
Most valuable aspects for people with PPA and their partners were: disease education, learning about therapy options/psychosocial aspects and interdisciplinarity. Discussing how to deal with PPA was important. Participants described the group as a ‘fantastic experience’ (60) and wished to continue the programme beyond the initial 10 weeks. Comparison of pre‐post intervention scores in ASHA QCLS suggests positive changes (W = 0, Z = ‐2.0226, p < 0.05, r = 0.64). |
Góral‐Półrola et al. (2015) | 1x nfvPPA | 1x female | 73 years | Training with an AAC system specially designed for the needs of the patient | 20 sessions | Individual | AAC therapist/speech and language therapist, nursing staff | Documentation of conversational speech | Qualitative analysis, descriptive statistics | The patient had the ability to communicate nonverbally with her son and the nursing staff. |
Rogalski et al. (2016) |
28x PPA 3x other dementia diagnoses |
18x female, 13x male |
56–83 years M = 67.2 |
Internet‐based therapy via the Communication Bridge Web application, including impairment‐based/activity‐ and participation‐based approaches/disease education/counselling | Eight 60‐min sessions | Individual | SLT | Self‐reported functional gains, self‐assessment scale, qualitative interviews | Inferential statistics (using analysis of variance, t‐test), descriptive statistics |
Participant, care partner, and therapist feedback were overwhelmingly positive, with 16 participant and/or care partner pairs reporting that therapy ‘exceeded’ expectations. Repeated‐measures ANOVA showed a significant change in CCRSA scores across the three test intervals (p = 0.02). Post hoc t‐tests revealed a significant improvement in their confidence in communication from baseline to the 2 months (p = 0.018). |
Volkmer, Walton et al. (2023) |
4x nfvPPA 3x lvPPA 2x mixed PPA (9x care partner) |
5x female 4x male (5x female, 4x male) |
57–85 years M = 72.1 (34–80, M = 64.6) |
Communication partner training in which a dyad is supported to reflect on a video sample of their own conversation, identifying behaviours that facilitate or hinder communication; role plays and homework tasks enable transfer | 6 weeks of intervention containing four 60‐min sessions | Dyads | Trained SLT | Self‐assessment scale; communication partner rating scale; 4 × 10‐min videos of recorded everyday conversation | Descriptive statistics (using minimally clinically important difference) | 29/30 intervention goals achieved, and 16 of 30 coded conversation behaviours demonstrated change in the right direction; both (intervention and control) groups experienced an improvement in QoL. |
Jokel et al. (2010) | 1x svPPA | 1x male | 56 years2 | Retraining of forgotten words through errorless learning; utilizing the MossTalk Words software | Three times a week, 60‐min sessions | Individual | SLT | Linguistic/cognitive testing; word lists; rating scale | Inferential statistics (using the McNemar and Wilcoxon sign‐ranked test) | The results of the Wilcoxon test indicate non‐significant in ASHA QCLS scores (p = 0.125). |
Whitworth et al. (2018) |
1x lvPPA 1x svPPA |
1x female 1x male |
54–59 years M = 56.5 |
NARNIA intervention programme (Whitworth et al. 2015) | 20 sessions over a 10‐week period | Individual | SLT | Linguistic/cognitive testing; discourse performance using the Curtin University Discourse Protocol | Discourse analysis; inferential statistics (using McNemar, Fisher's exact test and the reliable change index) | Significant changes were seen in self‐reported social communication and participation ratings on the ALA according to the Reliable Change Index (RCI, ≥ 1.96 with a confidence interval of 95%). |
Beales et al. (2016) |
1x lvPPA 3x svPPA |
1x female 3x male |
53–70 years M = 60.25 |
Self‐cueing lexical retrieval intervention across word classes (nouns, verbs and adjectives) | Eight 90‐min therapy sessions twice weekly | Individual | SLT | Naming and discourse performance using the Curtin University Discourse Protocol, self‐assessment scale | Inferential statistics (using the Cochran test, McNemar test, and Fisher exact test), and descriptive statistics | All participants rated their confidence in word retrieval skills higher after intervention (range of 10% to 40% improvement) and perceived that their ability of word retrieval also improved. |
Mahendra and Tadokoro (2020) | 1x nfvPPA | 1x female | 57 years | Range of interventions offered to support communicative function, social participation, sense of identity, and emotional well‐being | Over a period of 3 years | Combined | SLT | Linguistic/cognitive testing, self‐assessment scale | Descriptive statistics |
Improved QoL‐scores in ASHA QCLS between Years 1 and 2 (3/5 > 4/5). In Year 3, the participant reported feeling positive about the future, confident and having positive things to do but also feeling socially isolated and bored. |
Cadório et al. (2021) |
1x mixed PPA 1x nfvPPA |
1x female 1x male |
52–60 years M = 56 |
Structured training | 12 sessions | Individual | SLT | Linguistic/cognitive testing, self‐assessment scale | Inferential statistics (using the McNemar test) | The patients’ QoL remained steady (C1 scored 18/25 at both time points; C2 scored 17/25 before and 18/25 after treatment). |
Andrade‐Calderón (2015) | 1x nfvPPA | 1x male | 84 years | Stimulating the phonological, lexical and syntactic processing | Weekly therapy sessions for a period of 12 months | Individual | SLT | Linguistic/cognitive testing, self‐assessment scale | Descriptive statistics |
Continuous improvement in GDS‐scores throughout the intervention (12 > 8 > 5); improvements in NPI (1 > 0 > 0); ‘Good’ and stable QoL according to DEMQOL. Family members of the participant reported improved participation in social life and that the participant lost his fear of initiating a conversation with relatives or strangers. |
Abbreviations: AAC, augmentative and alternative communication; ASHA QCLS, American Speech‐Language‐Hearing Association Quality of Communication Life Scale; DEMQOL, dementia quality of life measure; GDS, Geriatric Depression Scale; lvPPA, logopenic variant of PPA; NARNIA, novel approach to real‐life communication: narrative intervention in aphasia; nfvPPA, nonfluent variant of PPA; NPI, neuropsychiatric inventory; PPA, primary progressive aphasia; QoL, quality of life; SLT, speech and language therapist; svPPA, semantic variant of PPA.