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. 2025 Sep 29;17:105. doi: 10.1186/s13073-025-01529-2

Table 2.

Instances of non-penetrance. List of patients who lack the clinical phenotypes predicted by P/LP variants identified by CES/CGS even after careful reverse phenotyping

ID Patient phenotype Gene NM Zygosity Type and classification OMIM phenotype Evidence of pathogenicity Result of reverse phenotyping
192LO9459 Hearing impairment—Male infertility—Chronic sinusitis—Reduced sperm motility—Abnormal sperm morphology CAPN3 NM_000070.2:c.1466G > A;p.(Arg489Gln) Homozygous Missense Pathogenic (class 1) Muscular dystrophy, limb-girdle, autosomal recessive 1 (253,600) AR This variant has been published several times before (PMIDs: 10,330,340, 39,411,402, 31,589,614, 38,523,675, 32,668,095, 14,578,192, 38,324,470, 30,919,934). It is classified as pathogenic based on the criteria: PP5_Strong, PM1_Moderate, PM5_Moderate, PP3_Moderate, PM2_Supporting Lack of clinical muscle involvement
123LO2080 Brain atrophy—Cerebellar atrophy—Colpocephaly—Diabetes mellitus—Hypoplasia of the corpus callosum—Increased size of nasopharyngeal adenoids—Intellectual disability—Long nose—Microcephaly—Short philtrum COL1A1 NM_000088.3:c.2010del;p.(Gly671Alafs*95) Heterozygous Frameshift Pathogenic (class 1) Osteogenesis imperfecta type I This variant has been published several times before (PMIDs: 11,317,364, 26,863,094, 32,860,008, 33,939,306, 35,611,912, 31,239,369, 37,270,749, 37,270,749). It has been classified as pathogenic based on the criteria: PVS1_Very Strong, PP5_Very Strong, PM2_Supporting, PMID: 11,317,364 Lack of clinical and radiological bone involvement
163LO7560 Abnormality of the eye—Blindness—Congenital onset—Retinal degeneration—Visual impairment RNASEH2A NM_006397.2:c.557G > A;p.(Arg186Gln) Homozygous Missense Pathogenic (class 2) Aicardi-Goutieres syndrome This variant has been published several times (PMIDs: 24,300,241, 29,239,743, 38,976,295, 36,937,954, 38,178,268, 36,705,819, 38,909,119, 36,065,636, 31,130,284 and 34,374,989). It has been classified as pathogenic based on the following criteria: PP5_Very Strong, PP3_Strong, PM5_Moderate and PM2_Supporting Lack of neurological involvement