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. 2025 Sep 20;89:103516. doi: 10.1016/j.eclinm.2025.103516

Table 5.

Measures with sufficient evidence on psychometric properties and low risk of bias.a

# Measure Disease group Internal consistency Reliability Content validity Structural validity Hypothesis testing Responsiveness Cross cultural validity Criterion validity Measurement error
Quality of Life
 1. Cancer Module Adolescent Formb Cancer +25
 2. Generic Core Scales Adolescent Formb Cancer, blood disorders +25 +25
Care experience
 1. Care Evaluation Scale (CES), CES-10 Cancer +21 +21
 2. Caring of the Dying Evaluation (CODE) Generic +21 +21
 3. Consumer Quality Index Palliative Care (CQ-Index-PC) Generic +21
 4. End-of-life in Dementia Scales—Satisfaction with Care (SWC-EOLD) Dementia +21
 5. Evaluating Care and Health Outcomes-for the Dying (ECHO-D) Cancer +21
 6. FATE-32 Generic +21
 7. Family Perceptions of Care Scale (FPCS) Generic +21
 8. Health Competence Beliefs Inventory (HCBI)b Cancer +25
 9. Postmortem Questionnaire-Short Form (QPM-SF) Cancer +21
 10. Satisfaction Scale for Family members receiving Inpatient Palliative Care (SAT-Fam-IPC) Generic +21 +21
Quality of dying
 1. Good Death Inventory (GDI/GDI-sv) Generic +15 +15
 2. QODD- Korean Generic +15
QODD -Chinese Generic +15 +15
Suffering
 1. Cancer Distress Scales for Adolescents and Young Adultb Cancer +25 +25
 2. The Suffering pictogram Generic +33 +33

Psychometric properties: sufficient ‘+’ See Table A3 for criteria interpretation.

a

This table is based on information from only 4 reviews which reported both psychometric properties and risk of bias assessments. Risk of bias was classified as low if methodological quality was graded as excellent or good based on COSMIN 4-point checklist OR Very good or Adequate based on COSMIN Risk of Bias Checklist.

b

YA (Young adults).