Table 5.
Measures with sufficient evidence on psychometric properties and low risk of bias.a
| # | Measure | Disease group | Internal consistency | Reliability | Content validity | Structural validity | Hypothesis testing | Responsiveness | Cross cultural validity | Criterion validity | Measurement error |
|---|---|---|---|---|---|---|---|---|---|---|---|
| Quality of Life | |||||||||||
| 1. | Cancer Module Adolescent Formb | Cancer | +25 | ||||||||
| 2. | Generic Core Scales Adolescent Formb | Cancer, blood disorders | +25 | +25 | |||||||
| Care experience | |||||||||||
| 1. | Care Evaluation Scale (CES), CES-10 | Cancer | +21 | +21 | |||||||
| 2. | Caring of the Dying Evaluation (CODE) | Generic | +21 | +21 | |||||||
| 3. | Consumer Quality Index Palliative Care (CQ-Index-PC) | Generic | +21 | ||||||||
| 4. | End-of-life in Dementia Scales—Satisfaction with Care (SWC-EOLD) | Dementia | +21 | ||||||||
| 5. | Evaluating Care and Health Outcomes-for the Dying (ECHO-D) | Cancer | +21 | ||||||||
| 6. | FATE-32 | Generic | +21 | ||||||||
| 7. | Family Perceptions of Care Scale (FPCS) | Generic | +21 | ||||||||
| 8. | Health Competence Beliefs Inventory (HCBI)b | Cancer | +25 | ||||||||
| 9. | Postmortem Questionnaire-Short Form (QPM-SF) | Cancer | +21 | ||||||||
| 10. | Satisfaction Scale for Family members receiving Inpatient Palliative Care (SAT-Fam-IPC) | Generic | +21 | +21 | |||||||
| Quality of dying | |||||||||||
| 1. | Good Death Inventory (GDI/GDI-sv) | Generic | +15 | +15 | |||||||
| 2. | QODD- Korean | Generic | +15 | ||||||||
| QODD -Chinese | Generic | +15 | +15 | ||||||||
| Suffering | |||||||||||
| 1. | Cancer Distress Scales for Adolescents and Young Adultb | Cancer | +25 | +25 | |||||||
| 2. | The Suffering pictogram | Generic | +33 | +33 | |||||||
Psychometric properties: sufficient ‘+’ See Table A3 for criteria interpretation.
This table is based on information from only 4 reviews which reported both psychometric properties and risk of bias assessments. Risk of bias was classified as low if methodological quality was graded as excellent or good based on COSMIN 4-point checklist OR Very good or Adequate based on COSMIN Risk of Bias Checklist.
YA (Young adults).