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. 2025 Oct 24;5:438. doi: 10.1038/s43856-025-01031-1

Table 2.

Phenotypic description of individuals suspected of having non-GCK-MODY (n = 64)

Characteristics Non-GCK-MODY (n = 64)
Typical (n = 22) Atypical (n = 42) P-value
Age at clinical diagnosis (years) 18.5 (15.25–21.75); n = 22 23 (18.25–31); n = 42 0.005
Time between clinical and molecular diagnosis (years) 10.5 (6.5–29.75); n = 22 16.5 (8–22.75); n = 42 0.87
Glycated hemoglobin (mmol/mol) 68 (58–74); n = 7 77 (50–97); n = 9 0.40
Glycated hemoglobin (%) 8.4 (7.45–8.95); n = 7 9.15 (6.7–11); n = 9 0.40
Fasting glucose (mg/dL) 189 (131.5–250); n = 7 272 (195–385); n = 12 0.31
Symptoms of hyperglycemiaa 3/10 (30%) 17/22 (77.3%) 0.04
MODY calculator (%) 75 (75–75); n = 22 4.6 (2.075–15.1); n = 38 <0.0001
Body mass index n = 19 n = 37 0.69
Underweight 0 1 (2.7%)
Normal weight 11 (57.9%) 24 (64.9%)
Overweight 7 (36.8%) 9 (24.3%)
Obese 1 (5.3%) 3 (8.1%)
Time to insulin treatment n = 21 n = 42 0.001
Not currently treated with insulin 10 (47.6%) 10 (23.8%)
Immediately at diagnosis 2 (9.6%) 24 (57.2%)
Within 6 months of diagnosis 0 0
Over 6 months after diagnosis 9 (42.8%) 8 (19%)
Islet antibodies** n = 12 n = 18 NA
Positive 0/12 0/18
Negative 12/12 (100%) 18/18 (94.4%)
Metabolic comorbiditiesb (at diagnosis of DM or during clinical follow-up) n = 21 n = 42 1
Yes 14 (66.7%) 27 (64.3%)
No 7 (33.3%) 15 (35.7%)
Time of DM at the end of follow-up (years) 13.5 (6.7–31.2); n = 20 17 (8–24.7); n = 38 0.97
C-Peptide at the end of clinical follow-up (ng/dL) 2 (1.1–2.5); n = 19 1.4 (0.9–2.2); n = 34 0.79
Highest C-Peptide during clinical follow-up (ng/dL) 2.4 (1.9–3.1); n = 17 2.1 (1.4–2.); n = 29 0.22
Lowest C-Peptide during clinical follow-up (ng/dL) 1.6 (1.2–2.3); n = 17 1 (0.4–1.3); n = 29 0.05
Glomerular filtration rate at the end of clinical follow-up (CKD-EPI) 116 (97–121); n = 20 97 (85–114); n = 35 0.04
Diagnosis of DM in the family 18/20 (90%) 36/39 (92.3%) 1
Metabolic comorbiditiesc in the family n = 17 n = 33 0.03
Yes 7 (41.2%) 25 (75.5%)
No 10 (58.8%) 8 (24.5%)
Age at onset of DM in the family n = 17 n = 36 0.05
Before 18 years old 0 3 (8%)
Between 18 and 30 years old 9 (53%) 8 (22%)
After 30 years old 8 (47%) 25 (70%)

Data are expressed as medians (interquartile range), with n being based on the total number of individuals for whom information was available. Significant P-values are in bold.

NA not available, DM diabetes mellitus, CKD-EPI Chronic Kidney Disease Epidemiology Collaboration.

aSymptoms of hyperglycemia include one or more of the following: polyuria, polydipsia, polyphagia and weight loss.

b Islet antibodies are considered positive when antibody levels are three times above the upper limit of normal (for the laboratory test) and at least three antibodies tested (anti-insulin, anti-glutamic acid decarboxylase, anti-protein phosphatase-like IA-2) were positive.

cMetabolic comorbidities include one or more of the following: hypertension, obesity, dyslipidemia, and hepatic steatosis.