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. Author manuscript; available in PMC: 2025 Nov 6.
Published in final edited form as: Qual Health Res. 2023 May 22;33(8-9):753–764. doi: 10.1177/10497323231168581

Table 3.

Additional Participant Quotes.

Theme Quote

Individual and Systemic Injustice Directed at Black Breast Cancer Survivors “… how I’ve attacked this breast cancer journey, because of, not because of my medical providers, I feel like knowing the statistics you know I knew that going in, not just when it comes to breast cancer, I knew how disproportionately you know, we die of other diseases and we have other diseases and I also know how the medical community is. It’s a big process line, they’re trying to process people in, process people out, I mean you have your blocked time that you go in, you talk to the doctor, they’re taking notes while you’re talking to them. I mean I get, I knew that going in, so it kind of made me feel like I was geared up for a fight and not necessarily a fight against them but a fight against the system.” Maxine, 2-month survivor
Protecting Myself from an Untrustworthy Medical System “So, that became a quest for me to find out as much about breast cancer as I possibly could and on top of that I was given this diagnosis of DCIS, the non-cancer cancer and so if I don’t have cancer and if I do have cancer why is the treatment the same? Why is it not different? You know, all of those things were the things that I needed to know, you know in order to like make a decision. So I did, I spent days in that library just sitting there on the floor, just reading as much as I possibly could before I went back to the doctor.” Marjorie, 21-year survivor
Good Care Should Include Compassion, Respect, Shared Decision Making, and Tailored Support “My doctor recommended people to come see me that were their patients that had gone through [breast cancer], White women of course, but people came for me. They were looking for me, to help me at that particular time and so I feel like that’s kinda like what helped in my process.” Evelyn, 22-year survivor
“When you see people in the movies go through cancer diagnosis, they sit and they tell them what’s going on and a person goes into like a weird mode where they can’t hear anything and then like brings it back. But, as you see a part of the movie, part of what they do is that they have to go to therapy. I don’t know if it happened to you all, but I don’t think that’s a requirement of your care. And I think if you’re really thinking about someone’s full care, going through something like cancer, anything that’s life changing or if it’s debilitating that [therapy] should be a part of your care. You can deny it, but if it isn’t offered as a part of your treatment, I think that you’re going to do a disservice to anyone for going through something like this.” Renee, 1-year survivor