Table 3.
Additional Participant Quotes.
| Theme | Quote |
|---|---|
|
| |
| Individual and Systemic Injustice Directed at Black Breast Cancer Survivors | “… how I’ve attacked this breast cancer journey, because of, not because of my medical providers, I feel like knowing the statistics you know I knew that going in, not just when it comes to breast cancer, I knew how disproportionately you know, we die of other diseases and we have other diseases and I also know how the medical community is. It’s a big process line, they’re trying to process people in, process people out, I mean you have your blocked time that you go in, you talk to the doctor, they’re taking notes while you’re talking to them. I mean I get, I knew that going in, so it kind of made me feel like I was geared up for a fight and not necessarily a fight against them but a fight against the system.” Maxine, 2-month survivor |
| Protecting Myself from an Untrustworthy Medical System | “So, that became a quest for me to find out as much about breast cancer as I possibly could and on top of that I was given this diagnosis of DCIS, the non-cancer cancer and so if I don’t have cancer and if I do have cancer why is the treatment the same? Why is it not different? You know, all of those things were the things that I needed to know, you know in order to like make a decision. So I did, I spent days in that library just sitting there on the floor, just reading as much as I possibly could before I went back to the doctor.” Marjorie, 21-year survivor |
| Good Care Should Include Compassion, Respect, Shared Decision Making, and Tailored Support | “My doctor recommended people to come see me that were their patients that had gone through [breast cancer], White women of course, but people came for me. They were looking for me, to help me at that particular time and so I feel like that’s kinda like what helped in my process.” Evelyn, 22-year survivor |
| “When you see people in the movies go through cancer diagnosis, they sit and they tell them what’s going on and a person goes into like a weird mode where they can’t hear anything and then like brings it back. But, as you see a part of the movie, part of what they do is that they have to go to therapy. I don’t know if it happened to you all, but I don’t think that’s a requirement of your care. And I think if you’re really thinking about someone’s full care, going through something like cancer, anything that’s life changing or if it’s debilitating that [therapy] should be a part of your care. You can deny it, but if it isn’t offered as a part of your treatment, I think that you’re going to do a disservice to anyone for going through something like this.” Renee, 1-year survivor | |