Table 2.

Subthemes and their definitions

Theme	Subtheme	Description
Scaffolded for uncertainty and crisis			Parents’ experiences receiving and navigating the 24/7 support available to them in precarious times
	Bolstered by sold foundations	Having the support of a trusted and experienced team gave parents confidence
	Assurance of 24/7 seamless support	Parents valued having access to the same known core team whenever needed
	Navigating limited support option	In an emergency, some parents had to navigate the available support options
Falling through the service gaps		Impact on families who experienced service gaps
	Abandoned ‘out of hours’	Parents’ felt vulnerable when services were closed
	Hospital as the last resort	Parents’ experiences of feeling unsafe and unsupported in hospital
	Unable to get home	Families’ experiences of being stuck in hospital