Table 3.
Survivor cost conversation preferences
| Theme | Subtheme | Code | Quote |
|---|---|---|---|
| Survivor cost conversation preferences | Preferred cancer care team member to discuss costs | Financial advisor | Maybe a financial advisor [that] handled the insurance companies and the payment processes, that would be good |
| Cancer care team | The nursing staff that works with the doctor, because I feel like the doctors have better things to do than worry about who’s paying for what, you know? | ||
| Front desk staff | I have no problem discussing it with the oncologist or the front office. It doesn’t matter to me | ||
| Optimal timing for cost conversations | At diagnosis | I think that it is at the time of diagnosis. It’s a really scary moment, which is made much more scary by the unknown financial element | |
| Before treatment | I don’t know if the time of diagnosis is the right time… I think it should be after the diagnosis. But when determining a course of treatment | ||
| Inclusion of friends or family in cost conversations | Familial support | It would be nice for my husband to be involved in the conversation [about cancer costs] | |
| Oncologist responsibility in discussing cost | Awareness and transparency of costs | I think they should just be able to give a couple of different treatments so it’d be good for somebody that was worried about out-of-pocket cost | |
| Balancing insurance and treatment cost | Honestly, if there’s something equally as good that’s a lot cheaper, then certainly, that would be a consideration | ||
| High out of pocket costs | If you can’t afford it, you contact us and we will find a way to get it paid | ||
| Oncologist role | I just want to hear the treatment options from the doctor. I just want them to tell me what they think is best for me. I don’t even want them to worry about what they cost or what the insurance is going to be | ||
| Take-home cost informational materials | Personalized materials and digital tools | Personalized notes of discussion for the actual person, their actual insurance, their finances |