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. Author manuscript; available in PMC: 2025 Nov 25.
Published in final edited form as: Support Care Cancer. 2025 May 5;33(6):450. doi: 10.1007/s00520-025-09506-6

Table 3.

Survivor cost conversation preferences

Theme Subtheme Code Quote
Survivor cost conversation preferences Preferred cancer care team member to discuss costs Financial advisor Maybe a financial advisor [that] handled the insurance companies and the payment processes, that would be good
Cancer care team The nursing staff that works with the doctor, because I feel like the doctors have better things to do than worry about who’s paying for what, you know?
Front desk staff I have no problem discussing it with the oncologist or the front office. It doesn’t matter to me
Optimal timing for cost conversations At diagnosis I think that it is at the time of diagnosis. It’s a really scary moment, which is made much more scary by the unknown financial element
Before treatment I don’t know if the time of diagnosis is the right time… I think it should be after the diagnosis. But when determining a course of treatment
Inclusion of friends or family in cost conversations Familial support It would be nice for my husband to be involved in the conversation [about cancer costs]
Oncologist responsibility in discussing cost Awareness and transparency of costs I think they should just be able to give a couple of different treatments so it’d be good for somebody that was worried about out-of-pocket cost
Balancing insurance and treatment cost Honestly, if there’s something equally as good that’s a lot cheaper, then certainly, that would be a consideration
High out of pocket costs If you can’t afford it, you contact us and we will find a way to get it paid
Oncologist role I just want to hear the treatment options from the doctor. I just want them to tell me what they think is best for me. I don’t even want them to worry about what they cost or what the insurance is going to be
Take-home cost informational materials Personalized materials and digital tools Personalized notes of discussion for the actual person, their actual insurance, their finances