Table 2.

Qualitative Responses on Impact of Index Child’s Condition on Caregivers and Their Siblings (Unedited Verbatim Responses)

Question	Open responses (study group)a
Index child’s condition’s effect on participating caregiver:	Self-worth (PC)
	Pain/comfort level (PC)
	Emotionally (PC)
	Makes me very sad and depressed (WC)
	Behavioral (WC)
	Fear of unknown with the asthma severity (WC)
Index child’s condition’s effect on caregiver’s spouse/partner:	Emotionally (PC)
	Patience, understanding (WC)
Index child’s condition’s effect on their siblings:	Self-worth (PC)
	Feel neglected and not as wanted (PC)
	Not able to go to her games or pick up from practices (PC)
	They be sad his not feeling good (WC)
	Behavior (WC)
	Having to stay with other family members when sibling is hospitalized, getting to school, not getting attention to own needs

^a PC, Index child is palliative care; WC, Index child is a well child.