Table 3.
Details of recognition, remuneration, and reimbursement
| Item | Frequency (valid %) |
|---|---|
| How were PPI partners acknowledged in the manuscript or other materials?¥ | |
| Named as individual co-authors | 59 (20%) |
| Included in group authorship | 19 (6%) |
| Named in the acknowledgement section | 154 (51%) |
| Acknowledged in the body of the manuscript§ | 9 (3%) |
| Co-authors on/acknowledged in ancillary research material§ | 5 (2%) |
| Not applicable: patient or public partners elected not to be acknowledged | 35 (12%) |
| Unsure or unclear | 5 (2%) |
| None of the above | 70 (23%) |
| No answer/missing | 34 |
| Were PPI partners remunerated (e.g., cash, vouchers, honoraria) for their involvement? | |
| Yes | 132 (44%) |
| No | 158 (53%) |
| I don’t know/Unclear | 10 (3%) |
| No answer/missing | 34 |
| Were PPI partners reimbursed for out-of-pocket expenses related to their involvement? | |
| Yes (i.e., always, sometimes) | 186 (61%) |
| No | 73 (24%) |
| Not applicable (i.e., no expenses were incurred by patient and public partners) | 35 (12%) |
| I don’t know | 9 (3%) |
| No answer/missing | 31 |
¥ does not sum to 100% as multiple selections possible. § indicates categories developed post-hoc upon review of open responses in ‘other’ category.