Table 1.
Summary of Selected Results
| Variable | Proportion (%) |
| Surveys returned/distributed: | |
| UIHC | 42/100 (42%) |
| UHC | 23/54 (43%) |
| Regional school for hearing impaired | 33/163 (20%) |
| Regional center for hearing impaired | 8/10 (80%) |
| Overall | 106/328 (32%) |
| Surveys excludeda | 10/106 (9%) |
| Had genetic testing for child: | |
| UIHC | 30/32 (94%) |
| UHC | 2/32 (6%) |
| Overall | 32/96 (33%) |
| Had not had genetic testing for child because: | |
| Not offered | 47/64 (73%) |
| Offered but did not follow through | 14/64 (22%) |
| Saw no purpose | 12/14 (86%) |
| Overall | 64/96 (67%) |
| Positive toward genetic testing for deafness: | |
| Had genetic testing | 32/32 (100%) |
| Had not had genetic testing | 60/64 (94%) |
| Overall | 92/96 (96%) |
| Interested in genetic testing of deaf child | 72/96 (75%) |
| Perceived benefits of testing deaf child:b | |
| Identify cause | 65/70 (93%) |
| Learn accurate RR | 65/70 (93%) |
| Alter medical management | 41/70 (59%) |
| Interested in testing hearing sib: | |
| Identify sib's risk for having deaf child | 21/31 (68%) |
| Will let sib make decision as adult | 3/31 (10%) |
| Overall | 31/70 (44%) |
| Not interested in testing hearing sib:c | |
| “My child’s deafness is not genetic” | 10/20 (50%) |
| Do not approve of any genetic testing | 3/20 (15%) |
| Overall | 20/70 (29%) |
| Interested in testing for self (parent): | |
| To identify RR | 35/38 (92%) |
| Overall | 38/70 (54%) |
| Not interested in testing for self (parent): | |
| “Because I am not deaf” | 17/32 (53%) |
| Overall | 32/70 (46%) |
| Interested in prenatal testing:c | 61/70 (87%) |
| Could prepare for having deaf child | 44/61 (72%) |
| Not interested in prenatal testing: | |
| Saw no purpose | 6/9 (67%) |
| Did not want abortion to be an option | 3/9 (33%) |
| Overall | 9/70 (13%) |
| Inaccurate estimate of own (parent’s) RR: | |
| RR estimated as 0 | 52/90 (58%) |
| Overall | 83/90 (92%) |
| Inaccurate estimate of child’s RR: | |
| RR estimated as 0 | 43/90 (48%) |
| Overall | 88/90 (98%) |
| Child had negative Cx26 test result: | |
| Misunderstood test results | 6/19 (32%) |
| RR for self estimated as 0 | 19/19 (100%) |
| RR for deaf child estimated as 0 | 3/19 (16%) |
a
For explanation, see text.
b
Of those interested in testing. Two respondents did not answer questions about benefits of testing.
c
Of those not interested in testing.