Table 1. Median, IQR, percentage agreement, ICC and Wilcoxon signed-rank p value for resource use items in round 1 and 2 of the modified Delphi study.
| Round 1 | Round 2 | |||||
|---|---|---|---|---|---|---|
| Median (IQR) | Percentage agreement | Median (IQR) | Percentage agreement | ICC | Wilcoxon signed-rank p value | |
| GP face-to-face | 7.5 (5.5–9) | 7–9, 70.0 1–3, 0 |
8 (6–8) | 7–9, 92.0 1–3, 0 |
0.94 | 0.15 |
| GP online/telephone | 6 (5–7) | 7–9, 30.0 1–3, 20.0 |
6 (4–8) | 7–9, 38.0 1–3, 23.0 |
0.56 | 0.48 |
| Practice nurse face-to-face | 7 (5–8) | 7–9, 60.0 1–3, 10.0 |
7 (5–8) | 7–9, 62.0 1–3, 15.0 |
0.95 | 0.20 |
| Practice nurse online/telephone | 5 (3.5–5.5) | 7–9, 10.0 1–3, 25.0 |
5 (5–5.5) | 7–9, 17.0 1–3, 17.0 |
0.55 | 0.12 |
| Community mental health face-to-face | 9 (5.5–9) | 7–9, 70.0 1–3, 0 |
8 (5–9) | 7–9, 69.0 1–3, 0 |
0.99 | 1 |
| Community mental health online/telephone | 7 (5–9) | 7–9, 55.0 1–3, 0 |
6 (5–7) | 7–9, 38.0 1–3, 1.0 |
0.42 | 0.72 |
| Psychological intervention online/telephone (n=19) | 5 (3–7) | 7–9, 31.6 1–3, 26.3 |
5 (4–6.5) | 7–9, 25.0 1–3, 17.0 |
0.79 | 0.62 |
| Psychological intervention face-to-face ≤6 sessions (n=19) | 8 (6–9) | 7–9, 68.4 1–3, 5.3 |
7.5 (6–8) | 7–9, 75.0 1–3, 1 |
0.82 | 0.71 |
| Psychological intervention face-to-face 7+ sessions (n=19) | 7 (5–9) | 7–9, 57.9 1–3, 5.3 |
7 (6.5–7.5) | 7–9, 75.0 1–3, 0 |
0.90 | 0.05 |
| Pharmacy | 6.5 (3.5–9) | 7–9, 50.0 1–3, 25.0 |
5 (5–7) | 7–9, 31.0 1–3, 23.0 |
0.90 | 0.54 |
| Rare Dementia Services group | 8 (5.5–9) | 7–9, 65.0 1–3, 0.0 |
8 (7–9) | 7–9, 83.0 1–3, 0 |
0.79 | 0.33 |
| Rare Dementia Services 1:1 call | 9 (8–9) | 7–9, 80.0 1–3, 0 |
9 (8–9) | 7–9, 92.0 1–3, 0 |
0.88 | 0.16 |
| Private psychological therapy (n=7) | 5 (5–8) | 7–9, 28.6 1–3, 0 |
6 (5–9) | 7–9, 40.0 1–3, 0 |
0.3 | |
| Time off work to attend appointments with a person with NMLD, paid and unpaid (n=18) | 9 (9–9) | 7–9, 88.9 1–2, 11.1 |
9 (9–9) | 7–9, 82.0 1–3, 9.0 |
0.96 | 0.32 |
| Time off work/ sick leave, paid and unpaid due to caring for a person with NMLD (n=18) | 9 (7–9) | 7–9, 77.8 1–3, 11.1 |
9 (8–9) | 7–9, 82.0 1–3, 9.0 |
0.89 | 0.05 |
| Benefits: carer in receipt of allowance (n=19) | 9 (5–9) | 7–9, 68.4 1–3, 5.3 |
9 (7–9) | 7–9, 75 1–3, 0 |
0.80 | 0.05 |
| Early retirement due to caring for someone with NMLD (n=18) | 9 (7–9) | 7–9, 83.3 1–3, 11.1 |
9 (5–9) | 7–9, 73 1–3, 18 |
0.93 | 0.92 |
| Personal care | 9 (8.5–9) | 7–9, 85.0 1–3, 10.0 |
9 (8–9) | 7–9, 85.0 1–3, 8.0 |
0.92 | 0.95 |
| Physical help | 9 (5–9) | 7–9, 60.0 1–3, 20.0 |
9 (7–9) | 7–9, 77.0 1–3, 15.0 |
0.93 | 0.39 |
| Helping with dealing with care services and benefits | 9 (8.5–9) | 7–9, 80.0 1–3, 0 |
9 (9–9) | 7–9, 92 1–3, 0 |
0.82 | 0.28 |
| Helping with other paperwork or financial matters | 9 (6.5–9) | 7–9, 75.0 1–3, 5.0 |
9 (8–9) | 7–9, 92.0 1–3, 8.0 |
0.83 | 0.3 |
| Other practical help | 9 (6.5–9) | 7–9, 75.0 1–3, 5.0 |
9 (8–9) | 7–9, 85.0 1–3, 8.0 |
0.99 | 0.32 |
| Keeping him/her company | 9 (8–9) | 7–9, 85.0 1–3, 10.0 |
9 (7–9) | 7–9, 77.0 1–3, 15.0 |
0.96 | 0.93 |
| Taking him/her out | 9 (7.5–9) | 7–9, 90.0 1–3, 10.0 |
9 (8–9) | 7–9, 85.0 1–3, 15.0 |
0.99 | 0.63 |
| Giving medicines | 9 (8–9) | 7–9, 80.0 1–3, 5.0 |
9 (9–9) | 7–9, 92.0 1–3, 8.0 |
0.94 | 0.32 |
| Keeping an eye | 8 (6–9) | 7–9, 65.0 1–3, 0 |
8 (7–9) | 7–9, 77.0 1–3, 0 |
0.77 | 0.24 |
| Managing challenging behaviour | 9 (5.5–9) | 7–9, 70.0 1–3, 20.0 |
9 (7–9) | 7–9, 77.0 1–3, 15.0 |
0.85 | 0.34 |
| Help provided in the home, for example, sitting/befriending service (n=19) | 9 (5–9) | 7–9, 68.4 1–3, 5.3 |
9 (8.5–9) | 7–9, 83.0 1–3, 8.0 |
0.89 | 0.08 |
| Help provided in a residential setting e.g. residential/nursing home or hospital (n=18) | 6.5 (5-9) | 7–9, 50.0 1–3, 16.7 |
7 (6-9) | 7–9, 64.0 1–3, 9.0 |
0.97 | 0.92 |
| Carer’s assessment by local social services or health authority (n=19) | 7 (5-9) | 7–9, 68.4 1–3, 10.5 |
7 (6.5–8.5) | 7–9, 75.0 1–3, 8.0 |
0.92 | 0.77 |
Items in bold reached criteria for inclusion in both round 1 and round 2, items in italics reached criteria for inclusion in round 2.
GP, general practitioner; ICC, intraclass correlation coefficient; NMLD, non-memory led dementia.