Table 3. Results of pilot trial.
| Primary and community healthcare (n=11) | Number of participants who used this service | Mean number of appointments |
|---|---|---|
| GP | 2 | 2 |
| Practice nurse | 1 | 1 |
| Pharmacy | 1 | 4 |
| Psychological therapy (n=11) | Number of participants who used this service | Mean number of appointments |
| Psychological therapy in-person, online or telephone | 1 | 16 |
| Community mental health appointment in a clinic, online or at home | 0 | 0 |
| Rare Dementia Support group | 1 | 1 |
| Rare Dementia Support 1:1 call | 1 | 1 |
| Other support group | 0 | 0 |
| Private healthcare (n=11) | Number of participants who used this service | Mean number of appointments |
| Psychotherapy | 2 | 12 |
| Psychiatrist | 1 | 2 |
| GP | 1 | 2 |
| Complementary therapy | 0 | 0 |
| Employment and benefits | Yes responses | |
| In receipt of carer allowance (n=11) | 0 | |
| Early retirement (n=11) | 1 | |
| Employer has made adjustments (n=9) | 2 | |
| Time off for healthcare appointments (n=8) | 2 | |
| Sick leave (n=8) | 2 | |
| Personal care | Yes responses | |
| Personal care (n=11) | 2 | |
| Physical help (n=11) | 1 | |
| Help dealing with care service and benefits (n=11) | 9 | |
| Help with other paperwork or financial matters (n=11) | 10 | |
| Other practical help (n=11) | 9 | |
| Keeping him/her company (n=9) | 7 | |
| Taking him/her out (n=11) | 9 | |
| Giving medicines (n=11) | 4 | |
| Keeping an eye on him/her to see he/she is all right (n=10) | 8 | |
| Managing challenging behaviour (n=11) | 1 | |
| Help and support | Yes responses | |
| Respite care (n=11) | 3 | |
| Carers assessment (n=3) | 1 | |
| Home help—private care (n=3) | 2 | |
| Home help—family (n=3) | 2 | |
| Home help—local authority (n=3) | 0 | |
| Home help—charity (n=3) | 0 | |
| Other care | 0 | |
| Transport (n=11) | Yes responses | |
| Needed transport for healthcare appointments | 5 | |
| Own transport | 5 | |
| Taxis | 1 | |
| Public transport | 2 | |
| NHS ambulance or patient transport service | 0 |
GP, general practitioner; NHS, National Health Service.