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. Author manuscript; available in PMC: 2026 Sep 1.
Published in final edited form as: Clin Perinatol. 2025 Jul 15;52(3):589–608. doi: 10.1016/j.clp.2025.06.010

Table 2.

Well-Characterized Syndromes Caused by Single-Gene Variation Associated with CHD

Syndrome Gene Loci Cardiac Defect Percent with CHD Clinical findings References
Alagille syndrome JAG1
NOTCH2
20p12.2
1p12-p11
PPS, TOF, PA >90 Bile duct paucity, posterior embryotoxon, butterfly vertebrae, renal defects 21934706
16773578
Char syndrome TFAP2B 6p12.3 PDA, VSD 58% Wide-set eyes, down-slanting palpebral fissures, thick lips, hand anomalies 10802654
CHARGE syndrome CHD7 8q12 TOF, PDA, DORV, AVSD, VSD 75–85% Coloboma, choanal atresia, genital hypoplasia, ear anomalies, hearing loss, developmental delay, growth retardation, intellectual disability 28160409
Ellis-van Creveld syndrome EVC
EVC2
4p16.2
4p16.2
Common atrium 60% Skeletal dysplasia, short limbs, polydactyly, short ribs, dysplastic nails, respiratory insufficiency 10700184
12571802
Holt-Oram syndrome TBX5 12q24.1 VSD, ASD, AVSD, conduction defects 50% Absent, hypoplastic, or triphalangeal thumbs; phocomelia; defects of radius; limb defects more prominent on left 16183809
Kabuki syndrome KMT2D
KDM6A
12q13
Xp11.3
CoA, BAV, VSD, TOF, TGA, HLHS 50% Growth deficiency, wide palpebral fissures, large protuberant ears, fetal finger pads, intellectual disability, clinodactyly 12002156
21671394
Noonan syndrome PTPN11
SOS1
RAF1
KRAS
NRAS
RIT1
SHOC2
SOS2
BRAF
12q24.13
2p22.1
3p25.2
12p12.1
1p13.2
1q22
10q25.2
14q21.3
7q34
Dysplastic PVS, ASD, TOF, AVSD, HCM, VSD, PDA 75% Short stature, hypertelorism, down-slanting palpebral fissures, ptosis, low posterior hairline, pectus deformity, bleeding disorder, chylothorax, cryptorchidism 20876176

ASD, atrial septal defect; AVSD, atrioventricular septal defect; BAV, bicuspid aortic valve; CHARGE, coloboma, heart defects, choanal atresia, retarded growth and development, genital anomalies, and ear anomalies; CHD, congenital heart disease; CoA, coarctation of the aorta; DORV, double-outlet right ventricle; HCM, hypertrophic cardiomyopathy; HLHS, hypoplastic left heart syndrome; PA, pulmonary atresia; PDA, patent ductus arteriosus; PPS, peripheral pulmonary stenosis; PVS, pulmonary valve stenosis; TGA, transposition of great arteries; and VSD, ventricular septal defect.