TABLE 1.

Participant and Parent Demographics

Youth #	Current Youth Age	Youth Age at Diagnosis	Patient Race/Ethnicity	Youth Gender	Setting of Diagnosis (Neurology Clinic vs Hospital)	Treatment—Was Patient Started on Therapy After Diagnosis Was Made?
1	14	10	White	NB	Neurology Clinic	Yes
2	13	12	White	W(C)	Hospital	Yes
3	13	13	White	W(C)	Hospital	Yes
4	15	15	White	W(C)	Hospital	No
5	17	17	White	M(T)	Neurology Clinic	Yes
6	18	15	White	W(C)	Hospital	No
7	13	12	Black/Hispanic	W(C)	Hospital	Yes
8	17	7	White	M(C)	Hospital	Yes
9	15	14	White	M(C)	Neurology Clinic	No
10	14	13	White	W(C)	Hospital	Yes
11	12	12	White	M(C)	Hospital	Yes
12	16	15	White	W(C)	Neurology Clinic	Yes
13	12	12	White	W(C)	Neurology Clinic	Yes
Parent #	Parent Age	Relationship to Youth	Parent Race/Ethnicity	Parent Gender
1	47	Mother	White	W(C)
2	38	Mother	White	W(C)
3	42	Father	White	M(C)
4	48	Mother	White	W(C)
5	47	Parent	White	NB
6	47	Mother	White	W(C)
7	46	Mother	Black/Hispanic	W(C)
8	42	Mother	White	W(C)
9	41	Mother	White	W(C)
10	51	Mother	White	W(C)
11	39	Mother	White	W(C)
12	51	Mother	White	W(C)
13	33	Mother	White	W(C)

Abbreviations:

M(C) = Man (cisgender)

M(T) = Man (transgender)

NB = Nonbinary

W(C) = Woman (cisgender)