Table 5.

Subject interest in practitioner advice about testing

Sample quotations
Decided already (n = 32; 48%) It wasn’t even an issue about whether or not to get tested, I just knew it was something that I had to do.
I mean, I had made up my mind when I went there that day, that I was having it done no matter what was said to me.
It was like once the possibility was there, I decided I knew I wanted to do it, and then I would do it, you know, one way or another.
No, I mean I pretty much went in saying: ‘This is what I want, so let’s just do it.’
Open (n = 34; 52%) I didn’t even know that there was such a genetic test until I was diagnosed. And she (her oncologist) gave me all kind of little information booklets to read and that’s where I found in my reading about that and I asked her about it.
I don’t know that I, well I might have read about it but I really hadn’t. I didn’t know that much about it. I knew the sorts of things you can do without HRT, but I didn’t know about the genetic testing really until he (the oncologist) mentioned it and told me where to call and so forth.
I had read about the test, or about the genetic, the gene, the genetic testing, but in what I read, there was no information about possible false positives and things like that. There was no actual cost or, there definitely wasn’t anything that told me my insurance would be canceled because it would be considered a preexisting condition if I had it. Umm, so it was after that, it was, I spoke to the doctor after I read the article and started asking all these other questions.

HRT = Hormone replacement therapy.