Table 2.
Non-healthcare resource utilization per individual per year by ATTR-CA status
| Resource | ATTR-CA | Non ATTR-CA | ATTR-CA inconclusive | p value* |
|---|---|---|---|---|
| Labor | ||||
| Active worker | 0.0% | 1.6% | 0.0% | 0.670 |
| Annual working hour lost | ||||
|
Patient Caregiver |
n = 0 - n = 7 23.1 (16.6) |
n = 5 15.0 (20.6) n = 41 33.6 (25.9) |
n = 0 - n = 1 240.0 (-) |
- 0.160 |
| Home adaptations #,** | n = 61 | n = 273 | n = 15 | |
| 6.6% | 2.6% | 13.3% | 0.031 | |
| Handle | 1.5% | 0.0% | 0.0% | 0.084 |
| Shower | 0.0% | 0.3% | 6.3% | 0.005 |
| Bath | 1.5% | 0.3% | 0.0% | 0.446 |
| Corridor railing | 0.0% | 0.3% | 0.0% | 0.876 |
| Bed railing | 0.0% | 0.0% | 6.3% | < 0.001 |
| Emergency caller bottom | 0.0% | 0.3% | 0.0% | 0.876 |
| Orthopedic bed | 3.1% | 0.0% | 0.0% | 0.076 |
| Shower plate | 1.5% | 0.0% | 0.0% | 0.084 |
| Recliner chair | 1.5% | 0.3% | 0.0% | 0.446 |
| n = 61 | n = 273 | n = 15 | ||
| Other resources# | 34.9% | 27.6% | 46.7% | 0.179 |
| Walker | 4.6% | 4.9% | 12.5% | 0.400 |
| Walking stick | 16.9% | 13.7% | 18.8% | 0.709 |
| Caregiver | 0.0% | 0.3% | 0.0% | 0.876 |
| Crutch | 7.7% | 1.3% | 12.5% | 0.001 |
| Domestic cleaning | 0.0% | 0.3% | 0.0% | 0.876 |
| Wheelchair | 12.3% | 8.8% | 0.0% | 0.295 |
| Electric wheelchair | 1.5% | 0.0% | 0.0% | 0.084 |
ATTR-CA transthyretin amyloidosis with cardiomyopathy. Data are expressed as mean (standard deviation) or percentage. Non parametric estimates (median, P25 and P75) are included in supplementary information
* Kruskal-Wallis or Fisher exact test.
** Home adaptations were observed in 13 patients only. Numbers in bold are statistically significant. # in the last month.