Table 4.
Caregiver-reported barriers to social participation, overall and by participant sex among Fragile X Online Registry With Accessible Research Database participants, aged 5–17, by activity type, 2011–2021.
| Barriers to social participation a | Total (n = 830) |
Males (n = 629) |
Females (n = 201) |
p-valueb |
|---|---|---|---|---|
| n (%) | n (%) | n (%) | ||
|
| ||||
| Behavioral issues | 558 (72.2%) | 461 (78.9%) | 97 (51.3%) | <0.001 |
| Time constraints | 497 (64.4%) | 382 (65.4%) | 115 (61.2%) | 0.291 |
| Lack of community resources | 492 (64.2%) | 393 (68.5%) | 99 (51.6%) | <0.001 |
| Financial constraints | 381 (49.4%) | 285 (49.1%) | 96 (50.3%) | 0.788 |
| Transportation | 222 (29.3%) | 173 (30.3%) | 49 (26.2%) | 0.286 |
a
Number of participants missing data for: Behavioral issues (Total = 57, Males = 45, Females = 12); Financial constraints (Total = 59, Males = 49, Females = 10); Lack of community resources (Total = 64, Males = 55, Females = 9); Time constraints (Total = 58, Males = 45, Females = 13); Transportation (Total = 72, Males = 58, Females = 14).
b
Comparison of barriers to social participation by child’s sex using Chi-square test of independence.