Table 2.

Participant demographic characteristics

Characteristic		M(Standard deviation)	Mdn(Range)	n(%)
Sex (female)				20(63)
Age (years)		16.8 (4.2)	17.5 (10–26)
Race	White			21 (66)
	Black			3 (9)
	Other§			3 (9)
	Asian			2 (6)
	Multiple races†			2 (6)
	Missing			1 (3)
Ethnicity	Non-Hispanic			21 (66)
	Hispanic			8 (25)
	Other			2 (6)
	Missing			1 (3)
Insurance	Public			21 (66)
	Private			5 (16)
	Private and public			3 (9)
	Other			1(3)
	None			1(3)
Rurality	Non-rural county of residence			28 (88)
	Rural county of residence			3 (9)
	Missing			1 (3)
Primary diagnostic category	Hematologic/oncologic			12 (38)
	Neurologic/neuromuscular			8 (25)
	Genetic/chromosomal			6 (19)
	Cardiac			2 (6)
	Pulmonary			2(6)
	Missing			2(6)

^†Self-reported multiple racial information included “White and Mixed” and “Asian and Filipino”

^§Self-reported racial information included “American Indian,” “Hispanic/Latino,” and “Asian.”