| Feasibility |
|
High |
“It’s very easy. I mean very super easy to use, fast...I love the reminders every week to get in there, the text reminder. And I mean it’s again, it’s just super easy and fast. It only takes five minutes to go through and run through the questions really fast. So, I think it’s been a good experience.” (Participant 6) “It’s super simple, it doesn’t take much time. Yeah. That’s about it. I just- the reminders help. So, I get those reminders every week and just the fact that it doesn’t take long to fill out the symptoms. I like that it’s an easy pick on the scale and you don’t have to necessarily put in verbiage if you don’t want to. But there’s an opportunity, I think at the end to do that.” (Participant 16)
|
|
Low |
“So, I honestly did not use it as often as I thought that I would. But from what I recall- I’ve used it, it’s been a few months since I’ve recorded anything, but it was user friendly and pretty straightforward from what I recall. (Participant 28) “It, for me and my age, I find it difficult to read that much. The font is kind of small, so it makes it a little bit more difficult. Probably in hindsight, it would have been better to maybe watch- to have it on a tablet, an iPad, or something that is a bit bigger. But I don’t carry one of those around with me all the time.” (Participant 30)
|
| Acceptability |
|
High |
“I like it. It’s very easy. It’s not a hindrance to me being out and about my day, anything like that.” (Participant 4) I think it’s nice, concise, easy to use. It doesn’t take up much time. It’s nice and easy to use. I like that you guys text me a reminder if I don’t remember to do it. (Participant 8)
|
|
Low |
“So, I think for me, if I were to start having more symptoms, I probably would want to track it a little bit more. But because I’m not really having symptoms, I was kind of like, I don’t really need to go in and log anything, because I don’t really have anything to log.” (Participant 28) “Well, I didn’t use it. I didn’t have any what I would think of as extreme symptoms that I thought I needed a specialist for...So, why bother to go to an app when I can just call and get an answer pretty quickly? And if I need some kind of help, they can get it for me. And they did.” (Participant 29)
|
| Introduction to palliative care (component 1) |
|
High |
“I think, like I said, the website was very simplistic. And I think the paper went a little bit more in depth. So that if you had questions, or didn’t quite understand something, or this was a completely new and foreign topic to you, you could look back at it and be able to get more questions answered on there.” (Participant 8) “I think the things I learned from the reading, whether it was the website or the handout, I can’t remember. But, were just things I hadn’t thought about in addition to pain. I mean, I hadn’t really thought about things like appetite and constipation, depression and anxiety. I hadn’t really thought about those things as being something that palliative care would address. So, just seems to me there’s more to it than what I ever realized before.” (Participant 12)
|
|
Low |
“I really don’t remember. I kind of knew about palliative care, like I said, from my sister, and what she does for a living. But other than that, I don’t really remember the website.” (Participant 24) “We used that print out thing. I really can’t tell you or explain it to you. Yes, my sister explained it to me. She explained what the piece of paper was telling us.” (Participant 26)
|
| Text reminders (component 2) |
|
High |
“I appreciate the text reminder every Monday. Having a notification is great and having it at the same time, same day is also good.” (Participant 17) “The text notification is perfect. As soon as I get it, I pin it to the top of my texts to remind myself to make sure I do it. So, no, that’s perfect.” (Participant 19)
|
|
Low |
“It was nice to have the reminders come. Oh, your survey is due, please answer it as soon as you can, or whatever. I didn’t feel pressured to do any of it, but. And like I said, I had very few symptoms, so there was really nothing to say.” (Participant 24) “I think mentally it was a little bit draining...I think when you’re going through it [cancer], it’s kind of nice to have a break from thinking about it. Maybe that’s a little bit why when it popped up as reminder, it was kind of like, ‘Oh, I don’t really want to think about this right now.’” (Participant 28)
|
| Symptom reporting (component 3) |
|
High |
“It was pretty easy, I mean there wasn’t a lot of questions, so.” (Participant 5) “I think giving me a scale from 0 to 10, it’s helpful for me to easily choose. And also display pain, no pain, worst possible pain. Let me understand how the scale works is making it very easy to select. So, I can just take click on number. And also, I can even skip this question if I prefer not to answer. That’s helpful.” (Participant 17)
|
|
Low |
“I used my cell phone. Yeah. I am pretty efficient with the computers and stuff, so. Using a cellphone or whatever to answer the questions is again, easy. And I didn’t have any issues with any of it. Click and go. Click your answers down if there’s anything you need to spell out, you could. There’s plenty of area for that. Not just yes or no. And if you need to spell out something you could put down whatever symptoms you were having. And that was pretty well, easy to use.” (Participant 24) “Yes, I did use it. I know I did once, and I’m not sure if the second time it took or went through...And then afterwards, I just thought I’m not even doing this anymore.” (Participant 31)
|
| Palliative care self-referral (component 4) |
|
High |
“I thought it was okay, but I haven’t had to request that yet. Well, I like that the option is out there if I needed it. So, it’s just good to know that it’s there and in the background and available to me if I should need it.” (Participant 11) “Yeah, I think that’s good because I think it’s a very- to me it seems like a personal choice that somebody has to make. And I do think that you never know when somebody might get to that position that they feel like they need that extra assistance. So, having the access to do that. I mean, some people might feel like they have to wait until their next appointment or till the doctor suggests it. So, I think it’s nice to kind of, I don’t know, arm your patients with the tools that they need and know that they don’t have to go through their doctor or wait on an appointment but that’s something they can reach out to when they need it.” (Participant 16)
|
|
Low |
“Well, I supposed if I’d had more symptoms or something, I would have requested that, but. Like I said, I never even got so much as nauseous after my treatments and stuff. So, I really didn’t think I needed much palliative care.” (Participant 24) “I think that’s good. Did I request one? No. Well, if I do, I would use OSU MyChart and send a message to palliative care.” (Participant 26)
|
| Oncology team callback (component 5) |
|
High |
“I have not because at least at this point in the trial, I’m down there every single week already anyway. So, I’m discussing symptoms when I’m there. I think it’s great because, like I said, sometimes going through the regular channels or trying to figure out how do I log into the portal and message my doctor. If this is somebody that’s a brand-new patient, those things often can be daunting.” (Participant 8) “I think honestly, if something came up that I feel like I needed to reach out to my doctor, I would probably just call in at the office. That would be my first gut reaction.” (Participant 16)
|
|
Low |
“Well, I think you should have it, but I think the patient should know that if they go to MyChart, they can direct contact the team.” (Participant 27) “I call. If I don’t call, well, I’ve had several times I needed information or something. And I every time I called...I went straight to the source. I called the doctor’s office.” (Participant 29)
|
| Suggestions for program improvement |
|
High |
“I could give a section in there to where actually someone could document how they’re feeling in their own words. That might be helpful.” (Participant 2) “I don’t think with numbers you can fully explain it. I think it needs to be more patient-centric because everybody’s different and everybody reacts to it differently. The first time I went through chemo I didn’t feel anything. I really felt it this time. So, I think there’s - I think it needs to be a little more in depth.” (Participant 5) “It would be more beneficial if there was a way to say, have you experienced any new symptoms this week? And then like whatever you type in, then it’ll ask about that specific thing in the future.” (Participant 8) “Some of the symptoms it’s hard to quantify and I would forget the number I gave last time...So, if I can see what my last score is, it’s easy for me to make a judgment, right? Am I getting better or worse? So, I can move the score up or down from last time. (Participant 17)
|
|
Low |
“I guess the only thing that might help is to be able to explain why this is important. I got more of a feel of we’re just studying this app and seeing how it works for people and if you do it, fine, if you don’t do it, fine. That’s up to you but you’ll still be participating as long as you sign up or say you’ll do it or whatever. I guess I never got a real sense that it was really important.” (Participant 29) “My recommendation would be to do a follow up reminder. Because it always seems like whatever time I got it, I was not in a position to be able to do it at that time. And then I could just completely forget about it. For then the next Monday I got one, or it was like the time I’m starting work or something whenever the reminder comes in. And so, it was just not a good time that I could take the time to do it at that- and then I just completely forgot about it.” (Participant 30)
|
